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Hep C Discussion Forum -> Post Treatment -> Well all this is my 3 year Undetectable and my Liver doctor has ended our 16 years relationship... How sweet it is
Post Info TOPIC: Well all this is my 3 year Undetectable and my Liver doctor has ended our 16 years relationship... How sweet it is
Tig


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RE: Well all this is my 3 year Undetectable and my Liver doctor has ended our 16 years relationship... How sweet it is
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We've seen some very encouraging regression recently. They didn't think that it was even possible until recent years, but the truth is in the results. Our member, Malcolm, showed significant fibrosis regression following his last multi sample, (left and right lobe) biopsies. He was compensated and is now considered non cirrhotic. Let the good news roll.......



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Pablito


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Wow, that's really encouraging!  The papers I've read, and I believe you have too Tig, report much more modest fibrosis regression.

I've managed to sweet-talk one of the nurses on the trial I'm on to do a repeat fibroscan at my EOT+24 appointment even though it's not part of the trial protocol.  6 months ain't that long but it'd be nice to see a little drop from my pre-treatment score of 9.1.



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44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.
Tig


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I believe he simply converted his Fibroscan score to the Metavir system. He didn't mention the actual FS results. The A/F system of scoring was all we used back in the day. It wasn't until FS became available that people started speaking in terms of KPa.



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Tig


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That's not his fibroscan score, Pablo. He was an A3/F3 on the METAVIR scale (score).

He's now an A0/F1....



-- Edited by Tig56 on Tuesday 26th of July 2016 03:35:48 PM

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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Pablito


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Can someone explain to me the metrics used by TeddyTrout to explain his fibroscan results?   

I'm more familiar with KPa 0-77.  Is there another system?  3.3 in the KPa system would be entirely normal.

Or did he mean FibroTest score?



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44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.
dustbear


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OMG this is fantastic news! I wish you well in your adventures and it was a pleasure knowing you. It may have been brief but you made an impact on me.
All the best to you,
Julie

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Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
wendyo


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Thanks for checking in Jack and sharing the good the bad and the ugly

Take care of yourself in your new adventure and stay strong. You are a champion and have shown us that. 

 



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Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Loopy Lisa


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Good luck Jack,

Amazing regression of the liver, not so great about the lungs and ex. I guess life throws the odd curve ball, but it means the door is open to new adventures.

Stay well and as Spook would say "prosper!"

 



-- Edited by Loopy Lisa on Tuesday 26th of July 2016 02:49:22 PM

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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Shadowfax


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Hey TT,

Great words to hear. Be healthy and happy in your new adventures.

 

SF



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65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Scruffy


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Hi Jack

Congratz on your three year. I hope life is smooth on your new adventure. Be happy.

Best wishes for you.



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Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
Pablito


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Hi Jack 

Congrats on your SVR x 3 years.  

And sorry to hear about the split.  I've been through the same myself.  My only tip is to try and you the opportunity to do some things in life your former life didn't permit.  I now make my living from music...something I would never have even dreamed of a few years ago.  But sounds like you've got that one covered with your upcoming move.

But before you dash off to the sun can you tell us how you feel 3 years down the line?  Your fibroscan scores are great, but you have more energy etc?  I ask as I have just finished treatment.

Pablo



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44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.
Linuxter


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Hey TT,

You look in swimmingly good shape riding on your bike, LOL.

A HUGE Congrats on the amazing success of SVR+3 years ... You are an inspiration to us all!

We wish you happiness and good health in the future, time to relax, stop to smell the roses and enjoy life.

Do drop in to say hi if and when you feel so inclined ... thanks for posting the good news, we love to hear of these successes.

 

Wishing you the best,

Dave



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63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
Tig


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Hey Jack,

Good to hear from you again! You've been a big part of the forum since 2012 and your journey through treatment was long and arduous, but you prevailed. This report at 3 years is great news on the viability of SVR. Your A/F score is fantastic, nice reductions! Thanks for sharing the good news.

Your new life in the Grenadines should be quite the adventure. I haven't been there, but all those Nat Geo programs and Lifestyles of the Rich and Famous, tell me you should have a great time in a beautiful place. If you're not a scuba diver or snorkeler, learn. There's nothing quite like diving in paradise and those islands are all of that. I wish you the very best in your new start.

Good luck and I hope you find time to let us know how things are going. Cheers!!!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Cheddy


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Jack,

This is really good news to hear you are undetectable after 3 years!  That's also very good news about the fibroscan. Many of us are in the holding pattern and longing to learn that that news, let alone 3 years, so thanks for letting us know! 

Now the COPD is not such good news.  I hope you have a handle on that.  I also hope that your new living situation results in peace and new adventures.  We all seem to get reset to "one step at a time."   That's a tough one.  Keep moving forward.

Best of luck, peace, and love to you, Jack.

 

Cheddy



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GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 
robertsamx


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Jack, Very glad to hear the news your done with your Doctor, and HCV. I t sounds like you are a true warrio, fought a good LONG fight on many fronts!  Very sorry to hear about your wife's S/X with your treatment, I know how hard mine have been on my wife.  Hang in there and please check in from time to time. You have earned your place in this forum. Peace to you!

RC



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 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   
TeddyTrout


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Well all it seems I'm done needing a liver specialist after 16 years of dancing around with 3 different treatments and a host of side affects from the disease and the treatments. I had a FibroScan last month and I'm a 0,1 I was a 3,3 before my last treatment of the dreaded triple combo of 48 months. I I just have to live with me COPD now. The other side effect was that my wife has asked me to leave so as of this week I am legally separated but now I'm headed to Saint Vincent and the Grenadines to live so I hope it evens out along the way. I think this will be my last post as well to this group and I wish everyone the best. Cheers Jack 



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