Hep C Discussion Forum

Kellie · Kellie

So last Friday night I start getting this really severe abdominal cramping. I mean this is a 10 on the scale of 1-10 for pain. I wait for it to pass. Nope - it just sits there. Finally at 0330 I wake my husband and we go to the er. After 8 hours, an abdominal, contrast CT scan, and heavy pain meds, they tell me...

JLynch30 · JLynch30

I am a non responder - any word on new meds?

2willy · 2willy

well just finished week 11 and recovery from the effects of the virus are mostly gone and liver is healing, suggested that I do vitamin e to soften liver tissue and it seems to be working. The body is still very weak and weight has not gone up that much but may be because I am eating more healthy. Energy is s...

Kellie · Kellie

Finally Feeling better this week than the previous weeks after eot. The heavy depression and irritability are almost gone now. My husband and I took a 3 mile uphill hike Sunday in our mountains. It was wonderful to get out again into nature. I feel like I can start to exercise a bit more vigorously now....

KLG · KLG

After a slight scare - hep nurse called me a few times and did NOT leave a message, which convinced me it must be bad news - I got the great news that I am UND at 12 weeks. Such a relief! And for the ladies, I decided I need to chop off the rest of my hair because the longer lengths were so straggly ( I wear it in a pon...

GodsGrl · GodsGrl

Just wanted to check in as I have not been on in awhile. I am starting to feel somewhat back to normal. My thyroid damage is permanent and I am 2 weeks on thyroid meds and feel much better. Unfortunately all this has really taken a toll on my marriage, my husband and I have officially separated. I am current...

KLG · KLG

Hi everyone! This probably has nothing to do with my hep c treatment, but thought I would ask. I am 3 + months post treatment and have been feeling great, back to normal, but now for the last two weeks have been feeling really tired and have noticed large bruises on my legs. My treatment was peg / RIBA only w...

ss · ss

I am writing in behalf of my husband - Treatment Failed he will think postive and move on. Thank You all for all of your support ! - Best of Luck to all of you in Treatment! Hopefully there will be something in the future - Cirrohossis is a tough thing - Thank G-d All of his functions are working and he has a...

Bloomster · Bloomster

Hi everyone, hubby and I went to have his specialist appointment today. We already had the 12weeks post blood results which were undetected, but had to get results on ultrasound and fibroscan. Ultrasound was all good and the fibroscan showed liver as normal. The specialist said she did not know ho...

Kathy1635 · Kathy1635

We were told in April 2008 that my husband had Hep C at that point he decided not to get treatment until 2009 he has portal hypertension he had very high iron he had to have a pint of blood taken out for 2 months every two weeks to get it out of him no he didn't have the gene In 2009 mu husband took at the time stand...

Rescape · Rescape

Greetings to all, Long time no speak. Received my 3 month post-treatment blood work results last week and I am very happy to report that all is good. Undetected, blood counts returning to normal and side effects have minimized. I feel stronger every day, my energy level is greatly increased, and I am...

Mary Jane · Mary Jane

Cartwheel time It's offical Friday was my 6 month POST treatment check up.. I kicked the dragon's butt..!! Still dealing with some sides.. but life is good... I couldn't have done it without this forum and some very special folks, the advice & encourgement helped me hold fast in the darkest hou...

Butcheeyboy · Butcheeyboy

Good evening everyone Haven't been to the forum in a while as I'm still dealing with my dads passing from cancer 4 months ago. It's been 6 months since I finished my '48' week treatment. I gotta say that I'm feeling great. Most of the side effects have gone, still have trouble sleeping. The Dr. called tod...

greenqueen · greenqueen

This small study was carried out in Australia to determine how people felt after their treatment. The issues that people face post-tx have not been given much attention and there isn't much help or follow-up care available - a case of "bye bye, now get on with your life". For anyone experie...

Kellie · Kellie

Well isn't this nice?

I was wondering what was going on around my month. Not on my lips, just the area around it and at the creases. It started about 2 weeks ago. I thought it was just dry irritated flaky skin, nope, I looked at some pics online of it. Now its tingling and red, as well as flaky. Ho...

hepCFREEwanab · hepCFREEwanab

Hello everyone, as weeks pass from the day my husband stopped treatment, remembering all he went through seems like a distand bad dream! We just got the results from his blood work done on 10/12 and although many things have gone back to normal or improved, the VIRUS IS BACK! When he started treatment h...

Dover514 · Dover514

Hello all, Have been away from forum for quite a while, during which time I completed the 48 week of treatment, since that time I was advised that my liver was basically shot and that a transplant would be down the road, on 5/31 I met with a hepatologist and plans were set in motion to to begin al the requir...

Kellie · Kellie

Well it's official for now - 24 weeks of triple = UND It was at week 17 since we last checked. I was a bit worried for nuttin. My NP keeps saying I'm going to feel worse before I feel better, not sure about that. I already feel clearer in mind and skin. My WBC is already up to 2.0 and mature wbc's are up to .86 alr...

Karen · Karen

This week a friend stopped by, took one look at me-laid their hand on my leg and said, "you are in need of touch". I busted into tears!! The next day another friend said, "let me give you a big hug", I resisted, they insisted. As they held me, I again started to sob. Two days later...

Zlikster · Zlikster

Hi folks! i have been offline for few days... just got back from full body check and talked with my hepa...blood counts are back fully (RBC,WBC,etc), but then scary thing showedup. ALT levels are back to it's pre tx numbers. ALT 53 (48 upper limit). I have had 45-70 ALT past 6 years, and while on tx i hade 2...

DJ · DJ

I finished up all of my treatment last week and tomorrow I see my doctor. I remember when I started in January the nurse mentioned to me (when we were alone) that the doctor usually orders blood work at 6 months, but that I could request a 12 week check after treatment. Should I do this? Is it worth while?...

garfield · garfield

Hi, I got this from "abbvie" and I am not fully sure, whether I read SVR12 or not. Does the number 1.4 state the sensivity of the pcr? HCV RNA PCR LOG10 HCV Log10 1.4 HCV RNA PCR LOG10 NADIR Log Nadir 1.4 HCV RNA LOG10 Change NADIR LogChNadir 0.00...

urespa2 · urespa2

Saw doctor today for my 7.5 month post treatment checkup. My lab results from two weeks ago showed all GI's as normal. Viral load is still UND per the quantitative test result which means I am considered to have a durable response. According to doc. its like reaching SVR. Next checkup in one year from no...

nurschic · nurschic

Well...... I have been off treatment now for over a month after doing the 12 weeks of the incivek. All during the treatment my liver enzymes have been normal to slightly elevated. My 12 week labs saw a HUGE jump in my count and now they are even higher!!!! Im really starting to worry.....will they ever co...

tonib · tonib

HCV RTPCR, Quant (Graph) Hepatitis C Quantitation 9,620 IU/mL 01 HCV log10 3.983 log10 IU/mL . 01 Test Information: 01 The quantitative range of the assay is 15 IU/mL to 100 million IU/mL using COBAS(R) TaqMan(R) HCV test, v 2.0. The limit of detection (LOD) and lower limit of quantification (...

nikcoh1 · nikcoh1

Hi all my hep c family - I just had my 12 week post tx bloodwork done and sadly the hep c is back. I wasn't going to post but (thank you for your advice malcomb) have decided to share this. I am having a very difficult time with this news but this too shall pass. New meds on the horizon and I have faith that one day...

bstanga · bstanga

Completed treatment a year ago. I did not do the six month test, just went on with life because I knew I would never do that treatment again. So I found my blood test schedule and did a RNA test. Results No HCV detected. thank goodness brian

tonib · tonib

All of a sudden in the past week my liver (well I think its my liver) hurts. I am 12 1/2 weeks in...anyone else have this?

2willy · 2willy

well I am quite pleased seems the inside is good just have to work on the mental part here are the results, hemo 142;red 4.34; white4.8; NCD98.2; nch32.7; nchc33.3; plat 192; absolute 3.3; glucose 5.7; creat103; AST 31; ALT 48. That really impressed me for where I was at and all problem with treatment a...

Bloomster · Bloomster

Hey guys, my husband just rang our nurse to see if his 12 week viral load results were in. She did not want to say over the phone, but said 'that she was smiling and that we should be smiling very big'. So we take it that he has got the 12 week undetected. What an absolute relief. Thank you to everyone who h...

Topic		Started By	Replies	Views	Last Post
	Colitis! (Preview) So last Friday night I start getting this really severe abdominal cramping. I mean this is a 10 on the scale of 1-10 for pain. I wait for it to pass. Nope - it just sits there. Finally at 0330 I wake my husband and we go to the er. After 8 hours, an abdominal, contrast CT scan, and heavy pain meds, they tell me...	Kellie	21	2071	Nov 15, 2013 by suziq
	any word on meds for non responders? (Preview) I am a non responder - any word on new meds?	JLynch30	1	6104	Nov 12, 2013 by tonib
	week 11 of recovery (Preview) well just finished week 11 and recovery from the effects of the virus are mostly gone and liver is healing, suggested that I do vitamin e to soften liver tissue and it seems to be working. The body is still very weak and weight has not gone up that much but may be because I am eating more healthy. Energy is s...	2willy	4	1163	Nov 11, 2013 by Cinnamon Girl
	Post treatment update EOT 5 weeks (Preview) Finally Feeling better this week than the previous weeks after eot. The heavy depression and irritability are almost gone now. My husband and I took a 3 mile uphill hike Sunday in our mountains. It was wonderful to get out again into nature. I feel like I can start to exercise a bit more vigorously now....	Kellie	10	1340	Nov 10, 2013 by Kellie
	12 week EOT and hair... (Preview) After a slight scare - hep nurse called me a few times and did NOT leave a message, which convinced me it must be bad news - I got the great news that I am UND at 12 weeks. Such a relief! And for the ladies, I decided I need to chop off the rest of my hair because the longer lengths were so straggly ( I wear it in a pon...	KLG	11	1252	Nov 9, 2013 by KLG
	Post Treatment check in (Preview) Just wanted to check in as I have not been on in awhile. I am starting to feel somewhat back to normal. My thyroid damage is permanent and I am 2 weeks on thyroid meds and feel much better. Unfortunately all this has really taken a toll on my marriage, my husband and I have officially separated. I am current...	GodsGrl	8	1211	Nov 5, 2013 by 2willy
	3 months post - fatigue and bruises (Preview) Hi everyone! This probably has nothing to do with my hep c treatment, but thought I would ask. I am 3 + months post treatment and have been feeling great, back to normal, but now for the last two weeks have been feeling really tired and have noticed large bruises on my legs. My treatment was peg / RIBA only w...	KLG	2	1226	Nov 3, 2013 by KLG
	I will go On - Treatment Failed (Preview) I am writing in behalf of my husband - Treatment Failed he will think postive and move on. Thank You all for all of your support ! - Best of Luck to all of you in Treatment! Hopefully there will be something in the future - Cirrohossis is a tough thing - Thank G-d All of his functions are working and he has a...	ss	23	6276	Nov 1, 2013 by Zlikster
	Specialist appointment (Preview) Hi everyone, hubby and I went to have his specialist appointment today. We already had the 12weeks post blood results which were undetected, but had to get results on ultrasound and fibroscan. Ultrasound was all good and the fibroscan showed liver as normal. The specialist said she did not know ho...	Bloomster	5	1343	Nov 1, 2013 by Bloomster
	One year and 4 months (Preview) We were told in April 2008 that my husband had Hep C at that point he decided not to get treatment until 2009 he has portal hypertension he had very high iron he had to have a pint of blood taken out for 2 months every two weeks to get it out of him no he didn't have the gene In 2009 mu husband took at the time stand...	Kathy1635	1	932	Oct 31, 2013 by Cinnamon Girl
	3 months post (Preview) Greetings to all, Long time no speak. Received my 3 month post-treatment blood work results last week and I am very happy to report that all is good. Undetected, blood counts returning to normal and side effects have minimized. I feel stronger every day, my energy level is greatly increased, and I am...	Rescape	6	1024	Oct 28, 2013 by Matt Chris
	It's offical (Preview) Cartwheel time It's offical Friday was my 6 month POST treatment check up.. I kicked the dragon's butt..!! Still dealing with some sides.. but life is good... I couldn't have done it without this forum and some very special folks, the advice & encourgement helped me hold fast in the darkest hou...	Mary Jane	46	2330	Oct 26, 2013 by JoAnneh
	6 Month Post Treatment (Preview) Good evening everyone Haven't been to the forum in a while as I'm still dealing with my dads passing from cancer 4 months ago. It's been 6 months since I finished my '48' week treatment. I gotta say that I'm feeling great. Most of the side effects have gone, still have trouble sleeping. The Dr. called tod...	Butcheeyboy	5	1175	Oct 25, 2013 by 2willy
	Recovery from Hepatitis C Treatments ( 1 2 ) (Preview) This small study was carried out in Australia to determine how people felt after their treatment. The issues that people face post-tx have not been given much attention and there isn't much help or follow-up care available - a case of "bye bye, now get on with your life". For anyone experie...	greenqueen	53	12266	Oct 23, 2013 by TeddyTrout
	Case of Angular Cheilitas (Preview) Well isn't this nice? I was wondering what was going on around my month. Not on my lips, just the area around it and at the creases. It started about 2 weeks ago. I thought it was just dry irritated flaky skin, nope, I looked at some pics online of it. Now its tingling and red, as well as flaky. Ho...	Kellie	14	1615	Oct 20, 2013 by Tig
	Update on Angelo since stopping treatment on 8/16 (Preview) Hello everyone, as weeks pass from the day my husband stopped treatment, remembering all he went through seems like a distand bad dream! We just got the results from his blood work done on 10/12 and although many things have gone back to normal or improved, the VIRUS IS BACK! When he started treatment h...	hepCFREEwanab	4	1292	Oct 19, 2013 by hepCFREEwanab
	the monster came back (Preview) Hello all, Have been away from forum for quite a while, during which time I completed the 48 week of treatment, since that time I was advised that my liver was basically shot and that a transplant would be down the road, on 5/31 I met with a hepatologist and plans were set in motion to to begin al the requir...	Dover514	15	1880	Oct 18, 2013 by Matt Chris
	EOT 24 week Labs (Preview) Well it's official for now - 24 weeks of triple = UND It was at week 17 since we last checked. I was a bit worried for nuttin. My NP keeps saying I'm going to feel worse before I feel better, not sure about that. I already feel clearer in mind and skin. My WBC is already up to 2.0 and mature wbc's are up to .86 alr...	Kellie	7	1104	Oct 15, 2013 by Kellie
	The Healing Process (Preview) This week a friend stopped by, took one look at me-laid their hand on my leg and said, "you are in need of touch". I busted into tears!! The next day another friend said, "let me give you a big hug", I resisted, they insisted. As they held me, I again started to sob. Two days later...	Karen	5	1114	Oct 13, 2013 by TeddyTrout
	13weeks post tx, bad results (Preview) Hi folks! i have been offline for few days... just got back from full body check and talked with my hepa...blood counts are back fully (RBC,WBC,etc), but then scary thing showedup. ALT levels are back to it's pre tx numbers. ALT 53 (48 upper limit). I have had 45-70 ALT past 6 years, and while on tx i hade 2...	Zlikster	17	1784	Oct 13, 2013 by KLG
	Should I ask for a 12 week check? (Preview) I finished up all of my treatment last week and tomorrow I see my doctor. I remember when I started in January the nurse mentioned to me (when we were alone) that the doctor usually orders blood work at 6 months, but that I could request a 12 week check after treatment. Should I do this? Is it worth while?...	DJ	33	2359	Oct 12, 2013 by Bloomster
	Secondly - Help What does this mean (Preview) Hi, I got this from "abbvie" and I am not fully sure, whether I read SVR12 or not. Does the number 1.4 state the sensivity of the pcr? HCV RNA PCR LOG10 HCV Log10 1.4 HCV RNA PCR LOG10 NADIR Log Nadir 1.4 HCV RNA LOG10 Change NADIR LogChNadir 0.00...	garfield	14	1588	Oct 6, 2013 by mallani
	Update on treatment (Preview) Saw doctor today for my 7.5 month post treatment checkup. My lab results from two weeks ago showed all GI's as normal. Viral load is still UND per the quantitative test result which means I am considered to have a durable response. According to doc. its like reaching SVR. Next checkup in one year from no...	urespa2	9	1066	Oct 5, 2013 by Shep
	Increasing Liver Enzymes (Preview) Well...... I have been off treatment now for over a month after doing the 12 weeks of the incivek. All during the treatment my liver enzymes have been normal to slightly elevated. My 12 week labs saw a HUGE jump in my count and now they are even higher!!!! Im really starting to worry.....will they ever co...	nurschic	15	1186	Oct 5, 2013 by Caryn
	HELP WHAT DOES THIS MEAN?? (Preview) HCV RTPCR, Quant (Graph) Hepatitis C Quantitation 9,620 IU/mL 01 HCV log10 3.983 log10 IU/mL . 01 Test Information: 01 The quantitative range of the assay is 15 IU/mL to 100 million IU/mL using COBAS(R) TaqMan(R) HCV test, v 2.0. The limit of detection (LOD) and lower limit of quantification (...	tonib	15	1513	Oct 5, 2013 by garfield
	12 weeks post tx blood results (Preview) Hi all my hep c family - I just had my 12 week post tx bloodwork done and sadly the hep c is back. I wasn't going to post but (thank you for your advice malcomb) have decided to share this. I am having a very difficult time with this news but this too shall pass. New meds on the horizon and I have faith that one day...	nikcoh1	13	1614	Oct 4, 2013 by Loopy Lisa
	One year later NO HCV detected (Preview) Completed treatment a year ago. I did not do the six month test, just went on with life because I knew I would never do that treatment again. So I found my blood test schedule and did a RNA test. Results No HCV detected. thank goodness brian	bstanga	12	1222	Oct 3, 2013 by Matt Chris
	My liver hurts (Preview) All of a sudden in the past week my liver (well I think its my liver) hurts. I am 12 1/2 weeks in...anyone else have this?	tonib	7	1396	Oct 2, 2013 by Michaele
	6week post meds blood work (Preview) well I am quite pleased seems the inside is good just have to work on the mental part here are the results, hemo 142;red 4.34; white4.8; NCD98.2; nch32.7; nchc33.3; plat 192; absolute 3.3; glucose 5.7; creat103; AST 31; ALT 48. That really impressed me for where I was at and all problem with treatment a...	2willy	6	929	Oct 2, 2013 by Biggyb
	12 week results (Preview) Hey guys, my husband just rang our nurse to see if his 12 week viral load results were in. She did not want to say over the phone, but said 'that she was smiling and that we should be smiling very big'. So we take it that he has got the 12 week undetected. What an absolute relief. Thank you to everyone who h...	Bloomster	9	1021	Oct 2, 2013 by Terry
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