|
Finally found a place...
(Preview)
I guess I didn't scroll down far enough on the Forum page but have finally found a place where I feel I "fit in." I am treatment intolerant. Did 10 weeks of tx before taken off all meds due to sx. I am glad my body showed me with the rash, that this wasn't the right combination for me. I just wish it w...
|
zuzusfam
|
4
|
3263
|
|
|
|
|
post doc appt.. fingers crossed
(Preview)
I go this afternoon along with labs... then the waiting game on results... been trying to get back in the groove of commuting & working, blessed to have completed tx , couldn't have done it without all the support of my forum friends... again thanks bunches hugs to all MJ
|
Mary Jane
|
9
|
1121
|
|
|
|
|
EOT +4 Blood
(Preview)
Hi all, Had my EOT + 4W blood draw yesterday, only for blood parameters. Hb: 12.4 up from 10.0 ( 2 weeks ago) up from 7.1 (EOT) WCC: 4.7 up from 3.1 ( 2 weeks ago ) up from 1.8 (EOT) Platelets: 124 up from 76 ( 2 weeks ago ) up from 36 (EOT) All very impressive and moving in the right direction. My energy levels a...
|
mallani
|
8
|
1640
|
|
|
|
|
Another one bites the dust!!
(Preview)
6 months bloodwork shows that another dragon has been slayed! :)
|
LanaiSurferGirl
|
24
|
1489
|
|
|
|
|
headaches
(Preview)
I am 3 weeks done with meds, now I am getting headaches. Is this normal withdraw? Ken
|
packerfan24
|
1
|
902
|
|
|
|
|
EOT + 2 week bloods
(Preview)
Hi all, What a difference 2 weeks makes! Had bloods done yesterday, 12 days after finishing the 48 week Victrelis triple. Hb: Now 10- up from 7.1 WCC: Now 3.1- up from 1.7 Platelets: Now 76- up from 36 ALT: 48 (normal range<45) Still nowhere near 'normal' but getting there. Dry skin and rash have gone...
|
mallani
|
17
|
2011
|
|
|
|
|
6 month post results are in -- update
(Preview)
Hi Gang! Sorry I haven't been around... just not feeling very sociable these days. But.... I just got the call from my nurse... so for those of you wondering about reduced doses of meds, here are the results. For most of tx I was on half recommended riba and half or less of interferon, 24 week tx duration....
|
innerview
|
21
|
1364
|
|
|
|
|
3 months and kiwi is still clear. woo hoo
(Preview)
heading says it all, got a phone call the other day i was like, uh oh...... (que suspense music) .. but it was good news, im still UNDETECTED baby, so stoked bout it.... so another 3 months to wait and see..... im feelin positive, but not jumping around celebrating too much.... but im a happy camper......
|
kiwi
|
29
|
2132
|
|
|
|
|
Lost another tooth!
(Preview)
I can't believe it. I've just got some taste buds back after finishing Rx, so was eating cereal this morning and broke off another molar at the gum line! This is from the guy that did two posts about looking after your teeth while on Rx. Just been to the dentist who won't touch me with my low platelets and WB...
|
mallani
|
13
|
1531
|
|
|
|
|
One Year Post TX Wow time goes fast
(Preview)
Its been one year since my tx ended.I feel great . My life is so different now its amazing. I do still however doubt in my head for some reason im cured lol. I will prob have a Dr re test me this week just to make sure. Wishing everyone the best!
|
jrc
|
8
|
1342
|
|
|
|
|
$ weeks post tx
(Preview)
Went to doctor on thursday, blood count went up and vl is still und. So far looking good and feeling great. Ken
|
packerfan24
|
5
|
960
|
|
|
|
|
3 months Lab Results
(Preview)
Rita,
NO VIRUS on 1/24/13 labs! So .. you are on your way to cure. Repeat in 3 months please and then come see me in the office.
A Magun
Yay!!!
|
Margo
|
14
|
1459
|
|
|
|
|
12 week post results -- UND!!!
(Preview)
That's the good news. On the other end ... I am still having problems with my left eye, my muscle strength is not returning as quickly as I had hoped, I'm having some major pain concerns in my right leg, and overall I am feeling pretty low (I think some mild depression, although if I'm talking about it perh...
|
innerview
|
23
|
2009
|
|
|
|
|
Another drug bad for your liver
(Preview)
I was taken off treatment Jan.18th,My blood platelets droped to 9,000 and had to be transfused with 6 units. I have been undetectable on week 12 ,and am on a 48 week treatment plan...still a long to go. Doctor put me on a med called "promacta"25MG twice a day. it is suposed to grow platelet...
|
turtles
|
1
|
980
|
|
|
|
|
Anxiety & AD meds- double edged sword
(Preview)
Ever since halting tx back in August, I've been haunted by some general anxiety, and take Xanax(1/2 minimum dose) which normally(whatever "normal" is) takes care of the situation. I've also been prescribed Trazodone to aid in sleep. So I see my doctor this past Thursday- we had a good t...
|
hrsetrdr
|
15
|
2068
|
|
|
|
|
After svr are you contagious and...
(Preview)
Do you need to disclose to anyone anymore? I keep finding conflicting answers but most are from like 2009. I'm thinking there might be better tests measuring smaller amts of virus in the blood by now and also triple therapy came since then so.... This is driving me nuts
|
libgirl07
|
3
|
1011
|
|
|
|
|
Treatment stopped
(Preview)
New blood test, platelets, WBC, RBC all fell do dr says I must stop. Go for another blood test tomorrow, maybe hospital for transfusion. Feeling really crappy all the time, fall asleep if I sit down . It sucks cause I did 5 shots already. ----side Effects are too bad
|
Buzz
|
6
|
3830
|
|
|
|
|
One More for Our Side
(Preview)
As I've been telling my clients today...I'm officially cured. I started out just under a year ago today. And it's definitely been an interesting ride. This forum has been an amazing lifeline of support and commonality (if that's even a word). I came on here needing a lot of help in...well every...
|
davesf
|
22
|
1577
|
|
|
|
|
Drugs
(Preview)
How long does it take for the drugs to get out of your system? Ken
|
packerfan24
|
10
|
1421
|
|
|
|
|
Hepatitis stuffed animal
(Preview)
Hey! I keep forgetting to post this on here...my sister in law gave me one of these with a note attached saying "Meghan, I miss you. I know you won the fight and I am not living inside you anymore but thought you might want to have something to remind you what we have been through together" I g...
|
LanaiSurferGirl
|
2
|
974
|
|
|
|
|
Nicaragua Update
(Preview)
This is Grenada on the coast of Lake Nicaragua. We stayed here for three days before moving on to Ometepe. I'm going to be uploading photos one at a time as the Internet service at the lodge I'm at is fairly slow. This is one of the many beautiful churches.
|
davesf
|
23
|
1819
|
|
|
|
|
4 months post treatment
(Preview)
I am still undetectable! :) It has almost been 1 year since my first negative blood test so I hope it stays this way! My brother has 3 shots left too! Happy Holidays, Meghan
|
LanaiSurferGirl
|
17
|
1560
|
|
|
|
|
The Greatest Christmas Of All
(Preview)
Dec. 25 2012 after a seven hour marathon of opening presents (we always say we will not get as much this year, but as always and being blessed with my daughter, son, daughterlaw and 2 beautiful grandchildren the gifts never stopped) when the last present was opened I felt this was my time, as I explaine...
|
DANIEL
|
6
|
1107
|
|
|
|
|
Call me cured!
(Preview)
Got the news the other day that I can consider myself cured of Hepatitis C! I will now say the treatment was worth it even though it didn't feel that way much of the time on triple (Insevek) therapy. So happy to have had so much loving support here. Bless you all! Kate
|
wilsondog
|
20
|
1536
|
|
|
|
|
Big Weekend, Ending With SVR
(Preview)
Saturday and Monday were spent at Whitetail Mountain Resort teaching adaptive snowboarding to a class of four Warfighter Sports guys. By Monday evening these guys were on the intermediate slopes and cutting up the mountain. What a great feeling to see your students do so well in such a short time. Th...
|
news
|
25
|
1340
|
|
|
|
|
Long-Term effects of Interferon/Ribavirin
(Preview)
Hello folks, Its been 4 years since I finished the therapy and I was cleared. My counts were very high and my liver 50% fibrotic. I have 100% function and am still clear. I have zero history of anxiety or depression and have no history of substance abuse. Ever since the therapy, or at least it seems as thou...
|
underthewave
|
26
|
7544
|
|
|
|
|
got a question? on any new meds where i have failed on protease inhibitor
(Preview)
i failed the incivek treatment. well i stayed undectected until 32 weeks in my treatment. my nurse prac told me i could never DO protease inhibitor ever again. genp type 1a here. i did a trial of a protease inhibitor in 2010 for 3 weeks but was dumped because of a small rash that had othing to do with meds. i...
|
TazKat
|
2
|
853
|
|
|
|
|
A little stress, then relief
(Preview)
OK, so I'm almost 5 months post treatment. I had an appointment with my Rheumatologist on the ninth and routine blood test revealed a slightly elevated AST, ALT was normal but a bit higher than the previous test. Just to be safe my Hepatologist went ahead and ran a viral load test. Drum roll, still UND....
|
Scout
|
7
|
1322
|
|
|
|
|
SVR Bloods Tomorrow 8AM
(Preview)
Cross your fingers. Results are usually available Thu-Fri of the week of the draws. Better believe my blabby self will be posting like a madman late next week, no matter the results. Alan
|
news
|
10
|
1454
|
|
|
|
|
Biopsy time again
(
1 2
)
(Preview)
Well, I'm getting another liver biopsy on Tues, Dec 4. My last one was in March 2000 and I was Grade 2/4 and Stage 2/4. In a nutshell it said "mild limiting plate necrosis" and "portal-portal septa with architecture intact". It took 16 years for my liver to get to that point. T...
|
Judy S
|
52
|
3632
|
|
|
