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Hep C Discussion Forum -> On Treatment -> Gettinr biopsy done on 6/18/12
Post Info TOPIC: Gettinr biopsy done on 6/18/12
Shep


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RE: Gettinr biopsy done on 6/18/12
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Got my fingers crossed for you--hope you do get a good nights' sleep!

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
LUV2RYDE


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So my results are in...I have an appointment tomorrow to discuss the results.......but I talked my doc's assistant into telling me what my numbers were she said a 1 and then a 2 on the other....I'm taking that is the grading and staging.....I kinda pushed her to tell me. I told her I wouldn't be able to sleep tonight....so I am thinking this is good news and am praying once I see Dr. E tomorrow he will say "Yes Trish you can wait for the new drugs" I am really praying so...as soon as I get back tomorrow I will give you the offical numbers.

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Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 
LUV2RYDE


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smileHey everyone~ biopsy went well. It was a piece of cake. The numming needle was the only pain I had....then after the procedure I felt a burning sensation and they did a c scan to just be sure. OK that dye that they inject in you I swear they were right it makes ya feel like you just peed your panites and that warming sensation all over my body...felt like I was having my first hot flash....lmao. But no worries it really was simple. Hoping and praying results are really good. Thanks for all of the support and good info



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Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 
Caryn


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Thanks Davesf - good information!  



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1a, CT. Incivek triple 1/2013, vl 810 @ 2 weeks, 610 @ 4 weeks, 3000 @ 8 weeks, tx stopped. 

4/2014 - tx with Sovaldi/Olysio/Riba. VL 39 mil. - VL 230 @ 1 week, VL 40 @ 3 weeks, 5 weeks UND, EOT - UND, EOT @ 4 weeks UND, EOT @ 12 weeks UND!
suey


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Hi. My doctor bugged me consistently over 5 years to get bx. It came back all 0's. Then 6 yrs I had a second showing stage 1 and no cirrrhosis. Then fibroscan to compare results 5 mos later. Triple therapy still wasn't't approved by FDA at that time, but he was insistent that I start once approved so here we are today. I was not anxious to jump on the band wagon for any of this, but can tell you the biopsy isn't that bad. More scarey than anything, but the nurses wrap you in these very nice warm blankets afterwards...very comforting. Hang in there, it will be okay. Hoping you have someone to pamper you with some TLC for a couple of days. It helps.

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Susan Yantz
davesf


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Caryn- I've Googled it a lot obviously.  From what I understand:

1) It's far more accurate than CT or US scans.  CT/US scans are more likely to show "normal" when there actually is damage.

2) It is the standard scan in other countries.  The U.S.A. is behind in adoption.

3) Conflicting Opinions- Some feel the Fibroscan is good enough (not good as) to replace biopsies (biopsies are a riskier procedure).  Others don't.

Any opinion from those in countries where Fibroscan is used routinely?



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
Caryn


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Dave,

I had the scan done in Houston, Tx. It states on the bottom of the results that it is NOT FDA approved, which I thought was interesting. This is why I am curious as to how accurate it could be.  I had an ultrasound done at the same time.

Judy, this is very confusing. At least being on this forum and researching, I have become somewhat  more educated on thsi mess, but not enough to know it all. I am just trying to get a great list of questions for the specialist when I see her again. The first time I saw her I was not prepared. 



-- Edited by Caryn on Saturday 16th of June 2012 02:24:11 PM

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1a, CT. Incivek triple 1/2013, vl 810 @ 2 weeks, 610 @ 4 weeks, 3000 @ 8 weeks, tx stopped. 

4/2014 - tx with Sovaldi/Olysio/Riba. VL 39 mil. - VL 230 @ 1 week, VL 40 @ 3 weeks, 5 weeks UND, EOT - UND, EOT @ 4 weeks UND, EOT @ 12 weeks UND!
Judy S


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Hi Caryn - this entire disease and tx can be so darned confusing.  I've seen about 8 different drs in the past 15 years about this virus, and all have told me that the only method they would trust to determine extent of liver damage is biopsy.  I have also had CT Scans and Ultrasounds, like Dave mentioned, and they have shown Splenomegaly, along with portal hypertension in my liver.  I was told that means my liver is backing up into my spleen, and that verifies cirrhosis.  Gosh, I've never even heard of a fibroscan until just last week on this forum.  Now Dave clarified, so makes sense.  No FDA approval for us out here, yet.



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Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
davesf


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Hi Caryn,

I was curious where you had your fibroscan done?  From what I understand, it doesn't have full FDA approval yet so there are only a few Beta sites in the U.S.  Most of us US residents have to settle for CT and Ultrasound which are supposed to be less accurate.

All the Best, Dave



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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
Caryn


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Judy,

I was advised to put off treatment as well due to the low % of it working. I will begin treatment in the fall. I have not had a biopsy, although I was encoureged to do so. I feel stupid for not doing it when it was suggested as all of my blood work came back okay and ultrasounds were fine. My spleen has always been enlarged. I had the fibroscan test done and it is now showing that there is an 83% chance that I am between stage 2-3. I wish I were more clear on the accuracy of that test. Has anyone had the fibroscan test and then a biopsy and found the fibroscan test to be inaccurate? 

 



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1a, CT. Incivek triple 1/2013, vl 810 @ 2 weeks, 610 @ 4 weeks, 3000 @ 8 weeks, tx stopped. 

4/2014 - tx with Sovaldi/Olysio/Riba. VL 39 mil. - VL 230 @ 1 week, VL 40 @ 3 weeks, 5 weeks UND, EOT - UND, EOT @ 4 weeks UND, EOT @ 12 weeks UND!
Kellyw


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Thanks Judy, that makes sense.

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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
Kellyw


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I was never offered a bx. Ultrasound looked ok so... Still wondering how there are different criteria for tx. As far as I know my liver was ok, my labs were generally good w/ups and downs in liver enzymes, some normal some off by a little. Pos ANA and pos Hep C. My doc said good idea to have tx now while ok? And I'm glad. But sounds like for other Docs they wait for more liver damage? Just thinking about things. Guess there are different "camps" ? If one wanted tx. Could u go to different doc and get different opinion?

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Kelly 2b dx 8/11. Tx begun 12/30/11. Apparently had it for decades.
Margo


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Good luck! I haven't had one because I was such a wuss. But my doc said I have 1 stage fibrosis, no significant liver damage so he left me alone, thank gd. They were very persistent at one point though! Let us know how it feels lol.

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Geno 1b, relapsed in 2009 a week before my treatment was to be over. Started triple therapy on April 28th, 2012. UND at week 4,8,12,24,3 months post tx.
LUV2RYDE


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Yes so Monday it is. Today I went to meet the doc doing the procedure...asked him all kinds of questions. It will be ultrasound guided and he was really nice. He said my bloodwork looked good and it will be over before I know it. He also said something about me laying on my right side after the procedure...I told him no can do...I have  rotator cuff tendanitis and a bone spur so being on my right side right now is impossible. Ok well here's to a great reading onmy biopsy and no pain. If it goes well I wont have to go through my three treatment plan and can wait for the new stuff coming out. Positive thoughts.



__________________

Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 
Judy S


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They want you to lay on your rt side to reduce risk of bleeding after bx.  Puts pressure on your liver that way, to stop bleeding.  I had one in 2000.  I got the referred pain in rt shoulder, which was very painful.  However, a friend had no problem at all with his; 50% get the referred pain is what dr told me.

Kelly, I've found that most drs push for tx right away, as the less time we have the virus, the less the liver damage.  However, there weren't any great txs for my geno 1a until last May, so I held off so I could be tx naive with triple therapy.  Previously, I had only 35% chance of SVR.  Now we have about 80%.



-- Edited by Judy S on Friday 15th of June 2012 04:27:19 AM

__________________

Geno 1a; VL 4.7 million in Feb 2012. Started PegIntron & Ribavirin 3-9-12. Added Victrelis 4-6-12. UND since Week 8. Stopped tx Wk 23. UND 4 Wks post-tx. Relapsed 12-weeks-post.

52 y/o F, started Epclusa 11-10-19, F0/F1.  EOT 2-1-2020. UND. All liver function tests normal.
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