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Hep C Discussion Forum -> Post Treatment -> Energy Returning at Two Weeks Out
Post Info TOPIC: Energy Returning at Two Weeks Out
LanaiSurferGirl


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RE: Energy Returning at Two Weeks Out
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It has now been almost 2 weeks for me since I have been off treatment and my energy is returning as well! :)  It feels so good to not deal with the flu-like side effects.  I had some a few days after treatment but had family in town, went for a hike, and was busy with them...I am an outgoing person and it is easy for me to get caught up spending time with people (which I love) then realize I have burned out my energy later. :)  My hubby is good at reeling me in and making me relax  while I was on the treatment.

Other than that 1 post treatment episode I have done well and am on the road to recovery! :)

aloha,

Meghan



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
hrsetrdr


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wnose wrote:
hrsetrdr wrote:
Phil,   I have been wondering about the  "energy, but not the stamina or drive" concept for some time.  Now that I am "post treatment" I've joined the ranks of those having to deal with this.     I "think" that I might have a little more eneregy now, but I seem to have zero motivation to tackle certain tasks.     I wonder what is going on, perhaps a behavioral pattern developed while being on treatment, or some kind of residual effect from the medications...?

 

You're not the only one. I've found that you can't wait for the motivation to move...you need to get going then the motivation will slowly emerge. Break the task down into little steps and tackle each step.

 So very true, I'm planning to finish the drywall in the garage nextweek, when the heat-wave is supposed to break; every time I walk through the garage I do a "first this, then this" scenario in my mind.



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
wnose


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hrsetrdr wrote:
Phil,   I have been wondering about the  "energy, but not the stamina or drive" concept for some time.  Now that I am "post treatment" I've joined the ranks of those having to deal with this.     I "think" that I might have a little more eneregy now, but I seem to have zero motivation to tackle certain tasks.     I wonder what is going on, perhaps a behavioral pattern developed while being on treatment, or some kind of residual effect from the medications...?

 

You're not the only one. I've found that you can't wait for the motivation to move...you need to get going then the motivation will slowly emerge. Break the task down into little steps and tackle each step.



__________________

Diagnosed Geno 1a, 1992. Relapsed after riba-peg trmt in Aug 08. Oct 22 2011: Incivek 3rx @ 18 million VL.

Day 10: <15. --------------------->>>>>>12 OCT 2012: SVR!!! 
hrsetrdr


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Shep wrote:

I think after living under the fear, anixety and physical strain of tx, when you do step out of the fog and into the light. The light is just too bright and it takes awhile to adjust. It seems like so much has changed while we have been hyper focused on just making it through each day and counting each day until we reach the end. When it is over there isn't a single goal to focus on and not really sure what needs to be addressed first. It can be quite overwhelming and my reaction has been to go back into hibernation. And for sure that fog has not completely cleared!

But I did actually force myself out of the house last night and spent the evening we some of my farm community friends and we made sour kraut and then a meal to share. Made me feel almost "normal." I teally believe the energy and motiviation will come back--we just have to adjust to the light.

 Shep,

  I 'm afraid that I am a bit vulnerable right now, not surprisingly I find the highlighted statement so poignant but so very poetic at the same time.     I  hope you don't mind, I saved a copy in my "notable quotes" file.

-Tim



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Shep


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I think after living under the fear, anixety and physical strain of tx, when you do step out of the fog and into the light. The light is just too bright and it takes awhile to adjust. It seems like so much has changed while we have been hyper focused on just making it through each day and counting each day until we reach the end. When it is over there isn't a single goal to focus on and not really sure what needs to be addressed first. It can be quite overwhelming and my reaction has been to go back into hibernation. And for sure that fog has not completely cleared!

But I did actually force myself out of the house last night and spent the evening we some of my farm community friends and we made sour kraut and then a meal to share. Made me feel almost "normal." I teally believe the energy and motiviation will come back--we just have to adjust to the light.

__________________

Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
packerfan24


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way to go Alan. Take it one day at a time. It will all return to you. I know what you mean about walking and losing your breath. I walk down 3 flights of stairs is ok ,but I  have to take a elevator to get back up. Get VERY  winded if I walk up.

Ken 



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Packerfan24
hrsetrdr


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Phil G wrote:

Alan,  Glad its improving. It will continue. At 2 months post, I feel as good as can be expected, but no where near what it was before tx. But why should it? My physical condition is not the same. Getting back into into shape is not going to be any easier than its ever been in the past, and should probably expect it to be more difficult. I have the energy, but not the stamina or drive, but that's improving, too. One of the problems is I don't really remember what normal was. The brain fog is not completely gone.

 Phil,   I have been wondering about the  "energy, but not the stamina or drive" concept for some time.  Now that I am "post treatment" I've joined the ranks of those having to deal with this.     I "think" that I might have a little more eneregy now, but I seem to have zero motivation to tackle certain tasks.     I wonder what is going on, perhaps a behavioral pattern developed while being on treatment, or some kind of residual effect from the medications...?



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Phil G


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Alan,  Glad its improving. It will continue. At 2 months post, I feel as good as can be expected, but no where near what it was before tx. But why should it? My physical condition is not the same. Getting back into into shape is not going to be any easier than its ever been in the past, and should probably expect it to be more difficult. I have the energy, but not the stamina or drive, but that's improving, too. One of the problems is I don't really remember what normal was. The brain fog is not completely gone.



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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
Cinnamon Girl


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Good to hear this Alan, keep us updated as you go from strength to strength!  smile  Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
mallani


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Alan, Thanks for the update , great to hear. It is hard to remember what it's like to have normal energy levels. I remain concerned the post Rx path will not as easy for me. Keep us posted.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
JoAnneh


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Alan, why did you do 36 weeks instead of 48?
Curious cause my 2 week UND, 4 DET, 8 UND
So nurse prac told me yesterday 48 weeks.
Thanks and looking forward to more normal life after Inv.
JoAnne

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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
news


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JoAnneh wrote:

Alan, u r my role model! Yesterday I finished Invicek only 29 more weeks to go! Ha
I can't believe I may feel like working out again.
Can't wait. Keep us posted on progress. JoAnne

JoAnne, I am so happy and pleased for you. Finishing Incivek is huge. You are going to have much more quality of life now, with three less daily doses to worry about, no 20g. fatty snacks, and the itch will begin to subside. You are going to be so happy. Way to go girlfriend. The rest of the way should be much better. Alan

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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Shep


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Hey Alan! So happy to hear your energy is returning. It is a slow climb. In 2 more weeks I bet you will be running up that hill!

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
hrsetrdr


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Nice going Alan, so glad to see that you're able to make great progress to fully doing what your pre-tx life was about.   wootj.gif

 



__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
JoAnneh


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Alan, u r my role model! Yesterday I finished Invicek only 29 more weeks to go! Ha
I can't believe I may feel like working out again.
Can't wait. Keep us posted on progress. JoAnne

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
LUV2RYDE


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Alan~ I am so happy for you that your energy is coming back and your able to do things without much effort. I hope all of your labs are perfect! I am hoping everything goes smooth for me to do this trial in Oct so I don't have to do triple tx.

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Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 
news


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Until today I was not real impressed with the rate of recovery post treatment. I felt better, but the rate of improvement was too slow. But yesterday I walked to lunch with a friend at work. The return trip involves a long walk up a steep hill. During treatment I would be so winded it was hard to have a conversation. But yesterday I got to the top without much effort, carrying a belly full of chicken tiki masala and a coke. Today I was at the gym, and did the stationary bike for 30 minutes (8 miles), then hit my seven stations on the machines, doing the full number of reps at the full weight the trainer set up for me pre-treatment. It was difficult, but I never was able to do that during treatment. So, slow as it seems, there is hard evidence that the body is fighting its way back from this beating. This is such welcome news. In two more weeks I have labs to make sure the blood is returning to normal. I would love to dazzle the doctor by posting levels near my pre-treatment numbers, excluding AST, ALT and VL of course. Anyway, just had to throw that out there. It seems in post treatment, as is so many other areas, patience is a virtue. You can't just hit a switch and be ack to normal. Alan

__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
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