Hep C Discussion Forum

Assessing and treating HCV is a complex problem. Ideally, we want an Hepatologist who is experienced in Rx and Sx, up-to-date, sympathetic, willing to answer questions (even if they come from forums or the internet) with adequate Pathology, Radiology and other Speciality backup. Some of us are lucky and have such people. Others do not have a choice, be it geographical, financial, Insurance or VA driven. Some end up in Hospital Outpatients, where they may be seen by a Consultant, Research Fellow, Clinical Assistant or Registrar. The quality of care may vary. Some doctors have a marked intolerance to Forum-based questions- be careful not to mention specific cases. Not all seem to accept that an informed patient is more likely to be Rx-compliant and motivated.

Your relationship with your treating doctor plays a big part in getting through Rx, which, as we know, can be profoundly disturbing emotionally and physically. I would suggest a short list of questions :

1. What is my expected Rx duration and what are my chances of SVR.

2. How often am I reviewed, and by whom.

3. What Sx can I expect and how will they be treated.

4. When do I have blood tests, when is the VL done, and what are the indications for ceasing Rx.

5. Can I keep copies of all of my test results.

6. Is there a 24/7 telephone number for urgent queries.

If you get positive answers to all of the above, you're in good hands.