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Post Info TOPIC: Ten Weeks Post Treatment - Physical Training


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RE: Ten Weeks Post Treatment - Physical Training
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Dave, that is huge. Way to go. My draws are tomorrow, results in a week. This will be a long, nervous bunch of days. maybe it will be real busy at work with no time to think about it. Right now I am just worried about getting to sleep tonight. Probably be staring at the clock from 4AM on.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!



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Congrats, Dave. That's a big one.



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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12



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news wrote:

Just wanted to share with you guys how the recovery is going ten weeks after. Believe it or not, I still have occasional Incivek related butt issues. I fear I'll have to learn to live with it. Nothing as intense as during treatment, but not fully back to normal. But the tiredness, confusion, out-of-breath, dry skin, etc. have all passed. My hair is still real thin, but has stopped falling out.

Yesterday I went out on the bike for a fun ride and tracked it with my Android phone. The track is here:

https://maps.google.com/maps/ms?msa=0&msid=213231294988691879253.0004cbf6885c8820dafa7  . The final portion marked "end" has the elevation and statistics.

Not too shabby for a 59 year old man who has had liver disease for 40 years and been through a grueling treatment. Hope my 48 weeks buddies are still doing well. Think of kiwi when you get tired of it. She was able to trudge through it. i don't know how you guys do it, but you are. Keep on keeping on.

Alan



-- Edited by news on Sunday 14th of October 2012 05:23:41 PM



-- Edited by news on Sunday 14th of October 2012 05:44:41 PM


 Not too shabby at all...keep on keepin' on. 

 

davesf wrote:

I'm at the gym or doing cardio 5 days a week. I'm eating right and getting in good shape. Kind of funny. The mental discipline to stay on regimen and avoid crappy food was always challenging (as it is for many people). But now it feels like a cakewalk compared to Tx.


I also credit the mental strength gained from dealing with tx., I'm totally commited(driven, maybe obsessive) to get in as best of shape as God will grant me. 


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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 



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Dave, congrats on the 12 week post Rx undet!. What a good one to get. You and Alan are making me green with envy with all this physical activity. I don't know if my poor wasted muscles could cope.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm



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I'm at the gym or doing cardio 5 days a week. I'm eating right and getting in good shape. Kind of funny. The mental discipline to stay on regimen and avoid crappy food was always challenging (as it is for many people). But now it feels like a cakewalk compared to Tx. I'm hoping to maintain this momentum in getting in shape. And my positive reinforcement today was my 12 weeks post UND! This was the one that had me worried and now happy. The unofficial official is done. One more to go. Looking forward to hearing the same news from you Alan. All the best, Dave

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All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo



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Went around the block again this morning:

It's a big block, almost 17 miles around

Getting ready for twelve weeks post treatment labs on Monday. Wish me luck. Need another UND for the war chest

Hope everyone is feeling at least tolerably well.

Alan



-- Edited by news on Saturday 20th of October 2012 07:40:28 PM



-- Edited by news on Sunday 21st of October 2012 01:06:56 PM

__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!



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Great to hear things are going so well post-tx Alan. smile

Heather xxx



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Finished TX 2005. Geno 3. Achieved SVR - Heather.

When You Are Up To Your Neck In It - Keep Your Chin Up!!

'Knowledge. Is knowing that a tomato is a fruit. Wisdom is not using it in a fruit salad'. My dad. X.


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Very good going, Alan!  Great photo, thanks for sharing it...what a fine looking pair of guys!  smile  ~ Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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It's great to hear you're doing so well, Alan - an inspiration to all those still on tx! smile

Love the pic wink Yes, kids keep you on your toes alright!

Steff xx



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Geno 3a. 24 wks tx 20/10/05 - 06/04/06. Achieved SVR.



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Good to hear Allan,. I'm on a positive exercise program as well. Yoga, working out with bands, climbing, mountain biking and hiking are all again  part of my life style.  Balance after treatment is the key as I see it. I'm about 8 weeks post.



-- Edited by Scout on Monday 15th of October 2012 03:01:10 PM

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Geno 1a, Viral load at 2 4, 8, 12 and 16  weeks, UND, Triple therapy Incevek done,   Peg & Riba Done, UND and making plans for the future!!



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Hey Alan--you are truly amazing! I am so glad to hear you are doing so well. Would love to be riding with you. Haven't had much time for rides myself--but been taking lots of walks with the kids and the dogs. And working, working, working. Been getting out some to the community garden--we had Pesto Fest fund raiser and actually made about $3600 for the farm!! It was awesome. I am now 15 weeks post! It's getting better all the time!


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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!



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Thanks Alan! Maybe I need a new puppy to help me endure tx for 48 weeks!
I think of Kiwi making it a lot!!!
I am week 22 and its sad I could be thru soon but not my case.
I am visiting my grandson for few days. He is 8 months old and
I was able to go on a stroll w he and my son. I cooked a great meal and made banana pudding too.
I had to rest from walking and climbing stairs in their home is tiring.
Look forward to these things passing, I just want to be cured of Hep C
And stay healthy to enjoy my husband and family.
JoAnne



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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!



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That'd be me. Just getting prepared for the snowboarding season. Anybody that is having trouble staying active should rush out and get a 15-yr old to raise. Guaranteed to keep you moving. There are days when I'd put mine up for grabs, but most days he's a keeper.

Alan



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Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!



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Hey Alan, as you say , two fine looking specimens. Are you the one with the beard?



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm



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hey alan. good one. look after that butt bro. lol

im lookin forward to feelin better as well. gota try and get fit now. hahaha. this weekend, (first one without a shot) i was able to take my rubbish bins to the street, (only bout 100m but bit of a hill) BY MYSELF. with only one stop. that is a milestone, coz for a while there the 15 yo kid up the road used to take them up for me. i only took one. but i made it.

small steps. but happy steps.

i gota get my mongoose out and roadworthy again, take the pup for runs...



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)



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I just got back from a nice ride myself this morning.  I'm so grateful we can still enjoy it. I use butt cream. Makes everything slide around......lol.

My bowel movements have not gotten back to "normal" in my opinion.  They are a little softer than before tx and some foods go right through me. Also, I feel more fragile than before tx. A little muscle pull before tx has know become a major injury sometimes lasting weeks.  I hope this leaves soon as I love getting out side to workout. Also, my hair is thinner and I'm getting a big face.  I guess it's all worth it if we can be rid of this virus.

Time for some football now.  Have a great day!



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 



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Not to shabby indeed, but isnt the bike seat alittle hard on your seat?   Congrats on your success, best wishes.   Michaele



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MDodrow


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This sounds real good, kiwi. I can appreciate being able to do the uphill climb to the curb with the trash. That sort of thing was real hard when I was down in the dumps, but gradually they became easier. You are in for a long series of pleasant surprises. Most of the time now I feel better than I did before treatment began. It's like I actually got well a little bit. I guess we'll see. And by the way, we have a Mongoose urban style bike here. It is great. Makes for a nice ride around town.

I have attached a picture of the grandson and I after our ride this morning (only 9 miles today). He is 15, and I have raised him since he was 3 mos. old. His Mom came by right as we were pulling in from the road and shot the picture. Two fine looking specimens if I do say so myself.

Alan



-- Edited by news on Sunday 14th of October 2012 09:02:42 PM

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__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!



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As a matter of fact, the bike seat does aggravate the problem. But my padded shorts help a lot. It's just so much fun I kinda' put up with it.



-- Edited by news on Sunday 14th of October 2012 08:59:03 PM

__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!



Guru

Status: Offline
Posts: 850
Date:
Permalink  
 

Just wanted to share with you guys how the recovery is going ten weeks after. Believe it or not, I still have occasional Incivek related butt issues. I fear I'll have to learn to live with it. Nothing as intense as during treatment, but not fully back to normal. But the tiredness, confusion, out-of-breath, dry skin, etc. have all passed. My hair is still real thin, but has stopped falling out.

Yesterday I went out on the bike for a fun ride and tracked it with my Android phone. The track is here:

https://maps.google.com/maps/ms?msa=0&msid=213231294988691879253.0004cbf6885c8820dafa7  . The final portion marked "end" has the elevation and statistics.

Not too shabby for a 59 year old man who has had liver disease for 40 years and been through a grueling treatment. Hope my 48 weeks buddies are still doing well. Think of kiwi when you get tired of it. She was able to trudge through it. i don't know how you guys do it, but you are. Keep on keeping on.

Alan



-- Edited by news on Sunday 14th of October 2012 05:23:41 PM



-- Edited by news on Sunday 14th of October 2012 05:44:41 PM

__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!

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