Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> Post Treatment -> 6 mos post treatment
Post Info TOPIC: 6 mos post treatment
LanaiSurferGirl


Senior Member

Status: Offline
Posts: 232
Date:
RE: 6 mos post treatment
Permalink  
 

bummer!  I hate to see posts like this but there are new things in the pipeline every day.



__________________

geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
Lowrider


Member

Status: Offline
Posts: 29
Date:
Permalink  
 

Thanks for all the kind responses. I am not one to get hung up on stuff that can't be changed. I took a shot at clearing the virus and it didn't work, so at least the effort was made. Surprisingly, I feel much better overall than before I started treatment. More consistent state of mind to be sure.  Don't know if the drugs had a lobotomizing effect or it killed off some random junk unknown to me.  Either way, I came out of it feeling positive. Having honored the "live fast and die young" path in my younger years, with the majority of my cohorts long gone, and obviously failing the second phase of that self-destructive goal, I consider it a gift to be still kickin'.



__________________

"You can't count the miles until you feel them." T Van Zandt

68 yrs old, HepC 1A, relapsed 6 months post Victrelis/Interferon/Riba. Fibrosure F4 currently using Harvoni
JIme


Guru

Status: Offline
Posts: 733
Date:
Permalink  
 

Hey Mark. Tough results but you did your best. If you did decide to tx again the new stuff has little to no sx. It would be a breeze for you. In the meantime enjoy each day as much as you can. It sounds like your already doing that. Thanks for sharing this. Take care.

__________________

jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
news


Guru

Status: Offline
Posts: 850
Date:
Permalink  
 

Heroic effort is not reduced by the unsuccessful result. It is still heroic. Now you have been through this protocol you know it, inside and out. Whatever comes along next will be easy in comparison. Just enjoy the time off.

Alan



__________________

Geno 1A  Started Pegasys/Ribavirin/Incivek Nov. 20, 2011 .  Completed July 28, 2012 (36 weeks). For a treatment history, see:  https://jshare.johnshopkins.edu/xythoswfs/webview/_xy-9921874_1

SVR on January 14, 2013!!
Iris Dragonfly


Guru

Status: Offline
Posts: 1169
Date:
Permalink  
 

Mark, so sorry for the bad news, that must have been very disappointing. Will likely be waiting with you. Blessings dear...keep putting our best foot forwardsmile Iris



__________________

in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Oh, really sorry to hear this, Mark.  hmm  You gave it your very best shot though and on the positive side it`s great that you`ve made such a good recovery from tx 6 months on, and at least your liver had a nice long break from the virus. 

Take good care and keep that upbeat attitude going! smile  Hugs from Jill xx



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
tomyboy


Senior Member

Status: Offline
Posts: 142
Date:
Permalink  
 


Sorry to hear of thisi



__________________

Geno type 1,��after 20 YEARS Harvoni finally arrived....after six prior treatments...�Began harvoni for 24 weeks.....30 days viral count....STILL 0.......Tom now HEP C and Cancer FREE

J2theB


Member

Status: Offline
Posts: 12
Date:
Permalink  
 

Lowrider- I'm sorry to here this, I was just hoping someone made a clerical error. As I am sure you know we are getting closer everyday to a interferon free treatment for not just treatment naive folks.

__________________
kiwi


Senior Member

Status: Offline
Posts: 498
Date:
Permalink  
 

hate reading updates like this. sorry to hear that. its such a gruelling treatment to have that happen. not fair. !!!

all the best mate. keep up that good attitude. hugs from new zealand



__________________

kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
Bloomster


Senior Member

Status: Offline
Posts: 235
Date:
Permalink  
 

Sad to hear this for you after the gruelling therapy.  Glad that you're keeping your chin up.



__________________

My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
JoAnneh


Guru

Status: Offline
Posts: 1077
Date:
Permalink  
 

Oh how sad! Bummer! Keep up your great attitude
To love life! JoAnne

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Lowrider


Member

Status: Offline
Posts: 29
Date:
Permalink  
 

Thanks, Malcom. I am definitley going to wait for a treatment upgrade before stepping into this mess again. 

J2theB, the numbers were not exactly the same but close. 4.5 mil or so. I just posted the VL number from the printed results.



__________________

"You can't count the miles until you feel them." T Van Zandt

68 yrs old, HepC 1A, relapsed 6 months post Victrelis/Interferon/Riba. Fibrosure F4 currently using Harvoni
J2theB


Member

Status: Offline
Posts: 12
Date:
Permalink  
 

The viral load numbers were exactly the same? If so sounds like they gave you a pre tx number by accident. The odds of those two numbers being the same are 1 in a million.

__________________
mallani


Guru

Status: Offline
Posts: 3398
Date:
Permalink  
 

Hi Mark, sorry to hear your news- bummer. From your dates it would seem that you did 36 weeks of triple Rx with Victrelis, being Undet. from week 8. I hope you've recovered from Rx, and your liver has had a good rest. I'm 69 yo, Geno 1b, F4, doing 48 weeks of Vict. and struggling along at week 35. Fatigue is a real problem. Good luck with what you decide to do re further Rx. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Lowrider


Member

Status: Offline
Posts: 29
Date:
Permalink  
 

I haven't posted here for several months. I had responded well to triple therapy being undetectable at week 8 and all through treatment. Kaiser called last week to give me the results of the 6 months post treatment blood test. Hep C is back with the same VL (4,745,986)I had the start of treatment. Haven't shown signs of liver damage. Oh well, it was worth a shot. I'm 66 with Geno Type one. Probably infected about 1965 so not really interested in going through this again. Good thing is that apparently lots of progress is being made on a cure. Feeling fine and have exercised my way back to  health after treatment. Not much in the way of side effects left that I can determine not related to normal aging.

Mark



__________________

"You can't count the miles until you feel them." T Van Zandt

68 yrs old, HepC 1A, relapsed 6 months post Victrelis/Interferon/Riba. Fibrosure F4 currently using Harvoni
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> Post Treatment -> 6 mos post treatment
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.