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Hep C Discussion Forum -> Post Treatment -> Anyone have joint/muscle inflammation after end of treatment?
Post Info TOPIC: Anyone have joint/muscle inflammation after end of treatment?
zuzusfam


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RE: Anyone have joint/muscle inflammation after end of treatment?
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I had a little bursitis in my left hip before tx. Went to an ortho doc, got a shot, pain went away. Came back right before tx then stopped during. The pain (ache?) is back again along with lower back ache. My husband and I attributed it to being inactive for 10 weeks, and now I am starting to move around. After reading all of the posts, I am now thinking that it is another way my body is continuing to detox. (Once again, I am glad I am not the only one feeling stuff.)



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53 y.o. female, diagnosed in 1998. Started tx Oct 8th 2012. Genotype 1a. VL 600,000 before treatment; VL 98 11/12; UND 12/12. Reduced interferon to 135mcg 12/12. 12/17/12 stopped incivek due to rash. 12/20/12 Stopped all meds due to sx
JoAnneh


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Glad to read these responses as I have been
Experiencing leg/ankle pain ON and off
Tx. Hope 2013 makes all of your aches leave!


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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Scout


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Yeah if you have any family history of RA this is the time it will flare. Mine went ape **** the first time I went through treatment and has continued to plague me. I went completely off the RA meds during treatment and it was a rough ride. I'm treating it now and I'm 18 weeks post tx and und still. Get a diagnosis if you can. I did a bit of PT after treatment and it helped to get moving again. Also yoga has helped.



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Geno 1a, Viral load at 2 4, 8, 12 and 16  weeks, UND, Triple therapy Incevek done,   Peg & Riba Done, UND and making plans for the future!!
Cinnamon Girl


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Hi Debra, I think a lot of us find we have aches and pains post tx once we start getting our energy back and become more active, and it does make sense that it will happen after months of being couch potatoes!  I remember getting a lot of cramps and muscle spasms, mainly in my feet and legs but also in my body, but they disappeared after a couple of months or so once I`d got into better shape.

It`s good news that you`ve got so much more energy now anyway, and nice nails too, wow!  biggrin

Take care, keep in touch!  Jill xx



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
kiwi


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ive had a lot of trouble with aches and pains. knees, elbows, shoulders yup its horrible. knees almost feel a bit swollen. and yup it i do any activity, (yard work this weekend) it takes me over a week to get over it. im certainly in a better space head wise, but physically, im screwed right now.

went to doc with a list. my gp... there was a locum there coz my doc away. omg she was useless.

lookin up symptoms etc, and then said ''' i must admit, i dont know'''' this was coz my hands are covered in blisters again, really dry skin, peeling, and sore. my feet too. only hands and feet tho. so no idea i think its treatment reversal, coz at the start i had skin trouble too.

half the time we are on our own on this thing.

good luck people....



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kiwi. genotype 1. started pegasus and riba on 10 nov. VL 17.6 million. (4 weeks VL 1368)  week 15 UNDETECTED... :)
chatterbox


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RE: update:Anyone have joint/muscle inflammation after end of treatment?
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I went to my primary care physician today and he said this can be a normal part of post recovery. Inflammation popping up in different parts of body for no apparent reason. He's not to happy with liver dr's pa. Said he couldnt believe that she told me there was no connection. He said he estimates months for things to settle back. White and red counts almost back to normal. I have so much more energy; I really want to excersize but ive been afraid that if i even stretch that going to injure myself. He told me keep trying because the inflammation isn't triggered by it. It's random. I thought I was being a baby. He stressed that the treatment we go through is very similar to chemo and reeks havoc on our in tire system. It'll get better. One weird thing. I bit my nails my whole life. At 40 I told myself that I would let that one go and just accept it. For Past three months I've had long beautiful nails. Thanks to all again.

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Debra

 

Geno type 1a1b

Began Peg/Rib 4/16/2012  

Began Victrelis May 14, 2012            4 week and 8 week labs undectable

12 weeks und. 16 weeks und. Week 17 Cut peg, added Neopogen 5+months und.!
LanaiSurferGirl


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RE: Anyone have joint/muscle inflammation after end of treatment?
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i have had some RA like pain in my finger joints upon waking up in the mornings.  I turn on warm water and soak my hands for about a minute and all is well.  I noticed other people have had RA symptoms flare up on meds.  I have never had it before so hoping it goes away soon.  I am a little over 4 months post treatment.

aloha,

Meg



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geno 1a, mother & brother also hep c +...mom got a blood transfusion and passed it along.  Started tx with incivik 11/23/11 and brother started 2/8/2012.  Both of us und. at 4,8,12 and me at 24.  I am going 36 wks and brother is going 48 weeks.
chatterbox


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Thank you to all for answering. As usual this forum is so comforting. I went to my liver doctor last week and the PA said there was absolutely no connection to the treatment and that I should go to my primary care physician because maybe I have other diseases. Bitch! Thanks again. It's so good to know I'm not alone and that it'll get better.

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Debra

 

Geno type 1a1b

Began Peg/Rib 4/16/2012  

Began Victrelis May 14, 2012            4 week and 8 week labs undectable

12 weeks und. 16 weeks und. Week 17 Cut peg, added Neopogen 5+months und.!
Mary Jane


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from one wild child to another you are in good company this group has been a lifesaver for me.. as far as your PA that's why the call it " practicing medicine"  I am thankful everyday folks keep it real on this forum.. hope you aches will disappear over time.. all the best MJ



-- Edited by Mary Jane on Thursday 13th of December 2012 10:30:53 PM

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Do not go where the path may lead, go instead where there is no path and leave a trail.Ralph Waldo Emerson

1a - VL 22 million  F2- IL28B- CT / Inck-Riba- Peg triple therapy 9/15/12 UND 4/8/14  8 wks BT ..3/1/2013 done! 3wks Post UND
Phil G


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Same here. My aches and pains (back, elbow, shoulder) were there before tx, stopped during tx for the most part, and showed up again in post. I attribute it to activity or lack off. I can normally trace it back to something I did, and it gets better if I stop doing it or change the way I'm doing it. I am referring specifically to exercise, but also seems to apply to just about everything in my life. 



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Geno 1A, VL 1.9 mm, SOT 12/2/11 - Pegintron/Ribavirin/Victrelis, UND since wk 8, EOT 6/15/12 (28 wks), SVR 11/30/12
Shep


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I have had similiar experience. I am almost 24 weeks post--seems incredible. Right after had horrible knee and back pain--it was mostly associated with thyroid. Now the thyroid is fairly contained but still have mild pain in knees, right hip, back and shoulder. It does tend to linger. Still am feeling better than have in years.

Finishing is still awesome!!

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Diagnosed 1996 genotype 1b VL alot tx starting 12/23/11 Victrelis UND week 8!!! 28 weeks of tx

Completed tx 7/6/12--still UND!!!!
K2


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A little, I put it down to using mussles and doing more than I had done in a while. 10 wks post no real probs, I want that day after workout muscle ache biggrin



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genotype 1a. started pegasus and riba on 25/03/2012 added victrelis after 4 weeks, treatment naive. CHC. 4 weeks UND & continue to be so far. Finish tx 6/10/12. Fingers crossed for SVR.
chatterbox


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I finished treatment a month ago. Energy is coming back and better attitude. But I'll be fine one day and then I felt like I tore my shoulder rotater. Excruciating. Like couldn't lift a glasss of water. Then after 3 days of that ebbing, feel pretty good again, then feel like injured groin muscles. This goes all over my body. Feet. Neck. Really dibilitating. And getting old. Has anyone else experienced this? Feel like I'm going nuts.

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Debra

 

Geno type 1a1b

Began Peg/Rib 4/16/2012  

Began Victrelis May 14, 2012            4 week and 8 week labs undectable

12 weeks und. 16 weeks und. Week 17 Cut peg, added Neopogen 5+months und.!
krowdog


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Yep, I still  experience some  of that, even at 8 months post tx.  I had little joint pain before, but that actually went away while on tx.  I guessed that the virus was causing the joint problems,  but about 2 weeks post tx, my joints started hurting (and I was Undetectable).  I woke up one morning with a terrible neck pain.  It is still with me, 6 months later, but is getting better.  Just like you, my shoulder will also flare up for no apparent reason. And other joints too..

I went to get checked out for Rhumatoid Arthritis, but my rheumatologist didn't think it was RA.  After consulting other physicians, she said the tx effects could last up to a year, or even a bit longer.

All of this IS slowly getting better, and it has not really been debilitating.  I am working full time, climbing, etc, but it can be painful.  When it hits, I just take it easy, and like you, it goes away quickly (except my neck, which I  tolerate)  One of our forum members, Judy, had some neck probs, and was getting a cervical sub-dural Injection for it.  I might do that, but I think time is healing this.

congrats on finishing your tx.  Best wishes,

Brad

 

 



-- Edited by krowdog on Thursday 13th of December 2012 02:28:25 AM



-- Edited by krowdog on Thursday 13th of December 2012 02:28:40 AM

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(Geno 1a, Incivek Triple Tx, 6 month post TX - 9/20/2012 = SVR!!!)
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