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Post Info TOPIC: new to this...advice appreciated!


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Hi Jamie - welcome to the forum!  There is tonnes of information here for you and lots of caring people to answer any of your concerns.  All the best as you start your treatment.  Caroline



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014



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image.jpg

 

Hello Jamie and Tzu and welcome to the forum 

You indeed have landed at a great place, the forum can be a cornucopia of useful information.

Any concerns and cares can be helped by members of the forum.

Hoping the best for both of you

Matt



-- Edited by Matt Chris on Saturday 20th of April 2013 05:04:09 AM

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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 



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Hi Jamie and welcome.  We were all teriffied before hand.  Before I started I wondered if I was suppossed to stock up on 6 months of TP.  Nope.  Just water, water,water. You are not alone.  I found a lot of support here.  Shots weren't the biggest deal for me.  Taking so many pills was a big change for me since I didn't really even take vitamins before.  

The good news is that I now take vitamins regularly..no biggie.

The better news is that after the triple therapy (Ribo, Interferon, & Victrelis) I have cleared the hepitiis from my system..so it worked!  I too had Geno type 1.  Knew about as much about my body as I do about my car.  Something goes out and then I learn.  You're going to be just fine.

 Fatigue really turned to pure weakness.  I, too, had (have) a very supportive husband.  But it was my own self esteem that I had to keep up because most of us woman are the care takers and the men seem to be fine with us resting and watching TV and whatever helps us get through each day.  They don't seem to take over what we do however and will allow things to pile up (sorry guys) which as it turns out, didn't ruin our house.  I had a lot of love, but, boy did I cling to my GIRLFRIENDS!.  

If and when you do feel bad, don't feel like you're whinning.  We need to vent even while we feel gratitude.  This is a great forum with great info and great support.  Welcome here.



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Debra

 

Geno type 1a1b

Began Peg/Rib 4/16/2012  

Began Victrelis May 14, 2012            4 week and 8 week labs undectable

12 weeks und. 16 weeks und. Week 17 Cut peg, added Neopogen 5+months und.!



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good luck Jamie and Tzu (and welcome!)



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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!




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Hi Jamie, and welcome.   I just joined this group this week.  I started my treatment a week ago today.  I'm a lot older than you are and probably have unknowingly been infected for 30 years or more.  Still, we'rs starting this journey together.

i was diagnosed a year ago but delayed treatment until after I retired this year.  Like you, I was pretty terrified about the treatment, especially since I don't have symptoms.  I'd ask myself, "Why put myself through all that if I don't feel sick"? Truth is, I'm doing it for my husband.  You also are very very fortunate to have a wonderful, supportive significant other.

Here is a summary of my first week on treatment:  I received my meds package from the specialty pharmacy on Wednesday.  On Friday, I had appointment with my treatment team where we talked at length, then I was instructed how to use the Redipen -- I am on PegIntron -- and gave myself my first injection around 2 pm in the doctor's office under their supervision.  It didn't hurt at all.  Afterward, I had labs taken and was surprised that my initial results actually had improved from the previous month.  Of course, my doctor assured me that the results would not look nearly so good next time, but I was pleased to  be able start from a better position.  

I didn't have any symptoms until maybe 8 pm.  I took my first dose of Ribavirin about 6.  The body aches started first and got worse and worse, then the chills set in.  I bundled up and went to bed.  I was able to get warm but the pain in my body -- my WHOLE body -- continued through the night.  I did take an over-the-counter pain medication mid-afternoon and again at bedtime.

Here's the good part.  I work up Saturday morning feeling just great.  I felt great for several days, but have become more fatigued as the week progressed.  I have had some lightheadedness, minor cough, shortness of breath and diarrhea, and my injection site has become redder through the week, although it doesn't hurt or itch.  

All in all, I feel pretty positive as I prepare for injection number 2 this evening.  Everybody is different, Jamie, and there's no way to predict how you will react.  I just want to let you know that the first treatment may NOT really knock you to your knees.  I'll be thinking of you, and I hope you'll keep in touch with me.

 There are some great people on this site who are ready to share and to help.  

Best regards and a big ((((hug))))).  



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Tzunamie

Gen. 1, Dx 2/12, Tx 4/13.  PegIntron, Riba, Victrelis 



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Hi Jamie, welcome to the forum!  It`s natural to feel nervous before you start treatment, we understand what it`s like!  We have many members here who`ve been very successful with one or other of the triple therapies, and some people are able to carry on working throughout, although not everyone can. Your `genotype` just means the particular strain of the Hep C virus you are infected with.

How sick you`re likely to get is difficult to predict as it varies from person to person, and some people have a much easier time than others.  But most people do get various levels of fatigue, especially as treatment goes on, and being able to get enough rest should be a great help, although you have your young age on your side!

Here`s a link to a couple of `triple therapy workbooks`.  You can download the appropriate one for you, depending whether you will be taking incivek or victrelis.  You`ll find they contain some very useful info...

http://www.hepatitis.va.gov/products/patient/treatment-workbooks.asp

You`ll probably find it useful to read some of the posts in the `On Treatment` section and the `stickies`.  Feel free to join in.

Best of luck, sound like you`ve got an amazing boyfriend! smile  ~ Jill

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



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Okay... hi everyone my name is Jamie. I'm 22, live in PA & just found out about 3 months ago i have hepatitis C, genotype 1. I am starting the Triple Therapy Treatment on Tuesday (5 days!! I'm so flippin nervous!) i don't know much about what specifically genotype one means besides my doctor telling me its the hardest (most unsuccessful on the first try) to treat. i know the basic stuff, like I'm gonna give myself a shot once a week & a bunch (9-11) pills a day, and that ill frequently have blood work done & stuff but i guess I'm just looking for some basic advice, motivation, anything you think i should know. little tips, helpful links, i would appreciats anything and everything! My biggest fear is how sick I'm going to get. i live with my boyfriend and he is a huge support systemfor me Luckily he picked up a second job so i could quit mine and just focus on myself and my health (plus my dr told me I'm going to be too sick to wodk)

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