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Hep C Discussion Forum -> Post Treatment -> Just got some good news, and even better news!
Post Info TOPIC: Just got some good news, and even better news!
mallani


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RE: Just got some good news, and even better news!
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Thank you for all of your responses. This Forum and Members have helped get me through this treatment, and I am eternally grateful for all the support. Treatment may get quicker and easier soon with fewer side effects, but this Forum will be needed for those who don't have access to the new DAA's, and for those seeking advice and support. I'm not an Internet person and came across the Forum by accident, but it was a Godsend.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Bills


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Way to go Malcom

Your souding and looking better every time

Your gona get the valedictorian I can bet on it

Bill S

I had to research how to spell that lol



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

Bloomster


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Hi Malcolm - such great news.  I am so pleased for you. 



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My husband had genotype 1a, 46yo, started triple therapy (peg/rib/vic) 23rd July 2012, VL prior to treatment 14 million, UNDET 12, 24 weeks, EOT 24th June 2013, EOT +1.5 weeks UNDET, EOT +12 weeks & EOT +27 weeks UNDET; SVR January 2014
hrsetrdr


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Malcolm,

Congratulations on your improving labs, and continuing progress! I'm glad to hear that your walks are getting better. I don't understand the "-ve" reference regarding your RF, but I take it that it signifies a desirable value.

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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
mallani


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Hi Karen,

Thanks. As you probably know, albumin is the commonest protein in blood serum, and is manufactured in the liver. The albumin level is part of the Child-Pugh Score, used for assessing cirrhosis severity. The level is very sensitive to liver function, and as long as the level remains over 3.5 (or 35) your liver's working OK. Your levels look good. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
britlitkaren


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It is great news overall. I'm wondering about the albumin thing tho. Mine ranges 3.8 to 4.3. How does that correlate with how you read your numbers? The labs always confound me, but like you - I'm looking for fibrosis reversal. Albumin is part of total protein, right? And has something to do with the vessels? With portal vein hypertension that is something to watch. Again, bravo! Cheers! Woohoo! You've got this... Karen:)



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Diag 8-10. 1st VL 600,000. Gen 1a. Grade 4 Stage 4 cirrhosis w/ Esophogeal varices level 2. Viral load 1,750,000 7/12/10. Triple Therapy w/ Telaprevir began 7-15-11
Uval951


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Malcom, congratulations! I am very happy for you and believe in your SVR!



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Gen. 1b. 1st Tx in 2003 Rib/Peg. Biopsy F3-F4; 2nd Tx started 2/28/12, Pegasys+RibaPak+Victrelis for 48 weeks. VL: 260,000 (starting), 125,600 (4 weeks), UND-weeks 6-45.EOT 1/7/13 after 45 full weeks. Post Tx 4,12,24 weeks -UND  SVR!
Greg


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Congratulations mate well done, now relax and enjoy.



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The mind is like a parachute it works best when it is open. "The Dalai Lama" My blog: http://greghcv.wordpress.com/
Genotype 1a, started tx 1st Feb 2011, for 48 wks. Week 24 PCR 26/07/11 Non-Responder
New TX start date 12th Sept 2016 Harvoni x24 weeks.  VL 7.4 Mil. Week 4 "Undetected"
nikcoh1


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Malcolm - fantastic news. I am so pleased for you.

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Diagnosed 1997, Genotype 1b, unsuccessful tx in 1998 (interferon), 2004 (interferon & riba). Started victrelis/interferon/riba 7/20/2012, finally UND at week 24, will continue for 48 weeks. EOT 6/20/2013 UND, 12 weeks post tx Relapsed
JIme


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It is great to see some "normal". Numbers for the first time in years.  I don't remember when my aches and  pains went away but they did. (. Around 5-6 months? ). Keep walking if u can.      Congrats on those numbers.



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
Michaele


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Great!



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MDodrow
LUV2RYDE


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Malcom I am so happy for you. Now it's time for a celebration!!! Congrats my friend.

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Geno type 1A Started Abbott clinical trial mid Jan 2013. :-)

Viral load when I started this trial 4.75million  Went 12wks on placebo and started real meds on 4/5/13 after 1wk  on real meds 25 after UND @3wks,6wks.w00t: Done trial 6/27/13 and still UND.

 
Biggyb


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I am hoping to join it in july.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
12Step Guy


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Good news. I'm hoping to join the post Rx UND club in June.



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Genotype 1a, IL 28 = CT  Interferon and riba 48 wks in 99, Daily Peg and Riba 18 months in 2007, Started Incivek, Peg, Riba 6/21/12. 4th stage cirrhosis. Last Dart will be May 23 2013.
Loopy Lisa


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Congratualtions, seems a lot of good news on here lately. Wishing you all the luck in the world for the 24th week! :D



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Karen


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As Jill stated-Can hear you sigh of relief from here, and there...:) Smiled too!



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Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014
Caryn


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GREAT news!!! 



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1a, CT. Incivek triple 1/2013, vl 810 @ 2 weeks, 610 @ 4 weeks, 3000 @ 8 weeks, tx stopped. 

4/2014 - tx with Sovaldi/Olysio/Riba. VL 39 mil. - VL 230 @ 1 week, VL 40 @ 3 weeks, 5 weeks UND, EOT - UND, EOT @ 4 weeks UND, EOT @ 12 weeks UND!
Biggyb


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Wooo Hooo, great news !! keep it up..



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
mallani


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Thanks Jill and Zlikster.

My Rheumatoid Factor was -ve. I did another 5 km walk today and the stiffness is a bit better?  ALT elevation in cirrhotics is very common, but usually not more than 100, and relates to the constant regeneration of hepatocytes. This may settle down as the fibrotic progress will hopefully be subdued. I'm more interested in my albumin which has increased from 34 to 42 (normal range 35-50). Albumin is a very good indicator of cirrhosis severity. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Zlikster


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looking good Malcolm ) next PCR at EOT +24w?

why are ALT levels still that elevated? is that ok with cirhotics? when do u expect RF blood test results?

all the best!



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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
mallani


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Hi all,

Just got my EOT + 12weeks results.

My Hb is up to 15.5, WCC up to 7.5 and platelets to 137,000 (still a bit low). My GGT is normal at 47- first time since 1990.  ALT still up a bit at 69.  Everything else normal.

The VL is still <15 TND (Target Not Detected) which is my Labs way of saying Undetectable.

I did not post my 8 week ALT as it had gone up from 48 to 88, which smartass me (and my doc) took to be a sign of relapse. This disease continues to confound.

Needless to say I'm pretty happy. Thanks to all of you for your support. Cheers!



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Cinnamon Girl


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Oh Malcolm, what excellent news, many many congratulations to you!!!! biggrin  I can hear your sighs of relief from here!  I couldn`t be more pleased for you... go out and celebrate in style!! 

My goodness, you have well and truly earned this!  Big hug to you X



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
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