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Post Info TOPIC: virus still present
mallani


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RE: virus still present
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Hi Susan,

You are lucky to be at MSK as they are top line for NHL. Did hubby have a liver biopsy before starting triple and was he on Incivek or Victrelis?  I would have thought treating the HCV was the priority rather than using poisons like rituxan.  I'm sure you know that eradicating the HCV may cause marked regression of the SMZL. The poor guy must need a rest after all that treatment.  Will you talk to your Hepatologist about access to the new DAA's?  Unfortunately he won't be able to use the Abbott combo but the Gilead drugs would be an option.  I'm sure you're getting good advice and I'm glad he's feeling better, but I'd persist in trying to eradicate the HCV and forget the spleen for a while.  Good luck.

 



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Loopy Lisa


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You both sound very positive people, there are some amazing drugs in the pipeline that will soon be available. I hope you both enjoy the lovely weather! x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
angelwish


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Hi all and thanks.

My husband goes to MSK and his hepatologist works along with them. He underwent chemo/rituxan  for smzl and then the triple therapy. His blood counts are all good and his liver is fine ,  spleen shrunk also. The triple therapy kept the lymphoma at bay but he was so anemic and lost a tremendous amount of weight. He feels so good now the thought of more treatment is depressing. We will see what choice he is given. The team of docs he has is outstanding. I cannot believe we have been doing this for 2 years come August. 

We take one day at a time and it has been a beautiful Spring here so we are counting our blessing.



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mallani


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Hi Susan,

Sorry to hear hubby's treatment didn't work. Was there any regression of the SMZL while he was on Rx?  Various studies show up to 20% of SMZL have HCV.

As his VL was 8400, that's not going to be a Lab. error.

Is there any plan to treat the SMZL, or do your doctors suggest waiting for new DAA's for the HCV? Good luck.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Zlikster


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;-( hows his liver? i guess after he rest abit from last therapy he can get into some clinical trial?



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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
JoAnneh


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Oh what a heart breaker! At least his liver
Got a break and he is fishing and running!
He should be able to get on the new drugs on the
Horizon that has lots of less sides.
Keep us posted and thanks for update.
And yes stay strong and enjoy every day
Of healthy living:)


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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Loopy Lisa


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I am really sorry to hear about your husbands condition and the vl. I can't offer any insight but I hope that the Doctor can do something to help. Stay strong! x



__________________

Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
angelwish


Member

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Posts: 17
Date:
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My husbands 6 month post treatment test came back showing VL of 8400.

The nurse gave him the call and he will talk to doctor on Monday.

The nurse said they may test again and it will be ND???

His viral load was 17 mil. at the beginning and he has non-hodgkins lymphoma so it is more complicated. He feels fine is fishing and running again that is the good news.

Any words of advice?? TIA



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