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Hep C Discussion Forum -> Post Treatment -> 1 year after tx
Post Info TOPIC: 1 year after tx
britlitkaren


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RE: 1 year after tx
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So glad to hear about the continued SVR results. I'm one year post also. This is beyond our wildest dreams. The mental lapses? haha. Yes. It has gotten better though. I'm thinking it can be controlled with diet. At ESLD, who knows? I'm still a believer. @robert d I'm glad to hear that you found a doc to stick with you. That is what it took for me too. I had transfusions etc. I screamed like crazy when they threatened to pull me off.
We're all pretty blessed. Karen:)

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Diag 8-10. 1st VL 600,000. Gen 1a. Grade 4 Stage 4 cirrhosis w/ Esophogeal varices level 2. Viral load 1,750,000 7/12/10. Triple Therapy w/ Telaprevir began 7-15-11
robert d


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The last ultrasound show the liver as looking funny but no signs of cancer. The last liver biopsy was between 3and 4 fibrosis hope that's spelled right. alt and ast levels were all normal as well of the rest of the blood work. Next time I will have a ct scan done the insurance would not pay for one this time. My doctor said that my liver should start repairing its self now that the virus is gone sure hope see is right.



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Geno 1a diog 2005 vl 1500000 stage 1&1, 2011 stage 2 to 3 fib stage 3 infl. Started triple x 11/16/2011 VL 15,000,000
Zlikster


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great news! how is your liver now? what stage?

best



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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
JoAnneh


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Great encouraging update! Yes triple tx
For 24 or 48 weeks is tough! I am post tx
5 1/2 weeks and certainly feeling better.
Breathing better, more energy improving
Physically. But My mental lapses are freaky!
Ur message of lapses makes me wonder
Will mine continue too. I just know I am not
As foggy as I was after 48 weeks tx!
Getting SVR is amazing blessing and that
Is our goal.


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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Biggyb


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Great news Robert, thanks for the update.



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
Cinnamon Girl


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Hi Robert, that`s great news and must be very reassuring for you.  Your perseverance in finding the right doctor to treat you certainly paid off, and even though you had a rough time it has been so worth it in the end.  Post treatment health is a notoriously neglected area and I wish you all the best for your continued recovery. 

Thanks for dropping by and sharing your good news!  smile



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
robert d


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You are right Tim I think as time goes on more light will be shed on post tx issues, also my doctor is still checking things like joint pain ankle swelling, inching and  ultrasounds of my liver looking for signs of common things that might be wrong. All of which means she still concerned about my health in the areas that she can address.



__________________

Geno 1a diog 2005 vl 1500000 stage 1&1, 2011 stage 2 to 3 fib stage 3 infl. Started triple x 11/16/2011 VL 15,000,000
hrsetrdr


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Robert, 

Glad to hear that you're 1 year post tx and still undetected, a declaration of "SVR" sounds appropriate here.        I concur with your observation that doctors seem uninterested in lingering post tx sides,  although I suspect that many post tx ailments end up being difficult to define, thus making a plan for action equally hard to assemble.



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
mallani


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Hi Robert,

Thanks for letting us know your fantastic results. Yes, triple is hard work, particularly for 48 weeks, but the end result is worth it. I agree that once SVR is obtained, the docs are less interested in any lingering Sx or post-Rx issues. With the new drugs coming, patients won't have to suffer as we did. Enjoy a HepC-free life. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
robert d


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Just had my one year after treatment blood work done. Thank God I am still undetected! Triple therapy is rough but one needs to do all they can to stay on treatment.  Most sx cleared up but still having brain fog some skin problems and GI issues.  Doctors don't seem as worried about them as I am. My doctors were a lot more concerned about getting rid of the hep c than they are about post treatment issues. Don't get the wrong idea I am very happy with the way my doctor handled my treatment. I went to two different doctors before I found one that would do the 3x treatment for me. My one doctor said he wanted me to stop treatment instead of having the blood transfusions. Thank God the doctor doing the treatment did everything to keep me healthy enough to complete the treatment. I am very fortunate, for I have read on this forum where other people had to stop treatment or reduce meds.



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Geno 1a diog 2005 vl 1500000 stage 1&1, 2011 stage 2 to 3 fib stage 3 infl. Started triple x 11/16/2011 VL 15,000,000
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