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Hep C Discussion Forum -> Post Treatment -> One year out- Peripheral Neuropathy
Post Info TOPIC: One year out- Peripheral Neuropathy
JIme


Guru

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RE: One year out- Peripheral Neuropathy
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Hey Dave great to hear from you. Sorry about the lingering sx. I don't feel 100% all the time myself ad I was only on the triple tx for 2 months. Something definitely changed in my body and it hasn't gone back to how it was before but it's hard to put my finger on it. I hope time will improve things for you. Take care!



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jim

GT1a, St2 Lv2 last biopsy 2002, VL  11.4m,  start triple tx 9/30/11

VL 470 @4wks.....VL 22,000 @8wks  stopped tx

Round 2-  Started 3/16/12   PSI-7977, BMS-790052, Riba Undetectable day 14

Did 24 weeks Still UND 12 weeks post tx, SVR24!!!!!!! 2/14/13

 

 

 

 

 
JoAnneh


Guru

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Posts: 1077
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Dave,
Great to hear from you! We shared many
Months together on treatment. Glad to know
It has taken time for you as I keep thinking
I should feel stronger. The joint pain is my
Biggest side effect. I go for 6 month VL on Oct 15th.
You are so thoughtful to help us feel encouraged.
Once again, great to hear from you.


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JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Cinnamon Girl


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Hi Dave, congrats on your continuing SVR, thanks for sharing your good news!  I`m glad your post tx issues are gradually easing up for you, and your positive outlook is great to hear!  A good reminder also that it can take time to fully recover from the effects of interferon treatment and sometimes we need to be patient. 

Do drop by again and keep us updated on your progress.

Wishing you all the best in your virus-free life!  smile

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Kellie


Senior Member

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Posts: 328
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Thank you for the check in & shot of optimism - it gives me hope and reassurance that all will be well after treatment is over. 3 weeks to go of triple. My main issue now is insomnia. Fortunately most likely I only have to do 24 weeks. Congrats on your SVR and happy life



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HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
mallani


Guru

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Posts: 3398
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Hi Dave,

Thanks for dropping by, and great to hear you're still Undet. and enjoying life! The post interferon problems still haven't been resolved. Glad to hear yours are slowly resolving. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
davesf


Senior Member

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Posts: 322
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Hi all, hit my 12 month blood work clean and feel fantastic.  Thought I'd drop in and talk about the peripheral neuropathy for those who have any lingering symptoms.  The Interferon can cause a little bit of nerve damage.  For most of those people it affects, it manifests as sensory, typically as tingling or numbness at the tips of your fingers and toes.  Mine was motor, meaning I would twitch involuntary.  It reached the point where I got a mild anti-convulsant drug prescribed so I could fall asleep.  If anyone noticed in public, I would just pass it off as hiccups.  My online research told me that nerves heal slowly and could take up to two years.  At the one year mark this has proved to be accurate.  It's been a slooow but steady reduction in symptoms that have yet to go away.  But I have great faith that it will be fully healed in another year.  Just wanted to post a little optimism to help those in treatment who might be experiencing one more symptom that's stressing them out.

One day at a time.  You will make it.  And it will get better.

 



__________________

All Done Poisoning the Dragon that Used to Poison Me

Genotype 1b  Incivek Combo
Carolinca


Senior Member

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Hi Dave,

Thank you for your post.  Oh my gosh, my husband has the same thing.  He will involuntarily twitch at night, and it drives me crazy and keeps me up at times.  It seems to be getting better, but if it doesn't, that anticonvulsant seems like a good idea!  (I think he twitched before treatment, but the treatment made it worse and more frequent)

 

Carol



-- Edited by Carolinca on Wednesday 11th of September 2013 06:56:18 AM



-- Edited by Carolinca on Wednesday 11th of September 2013 06:56:38 AM

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Husband has HCV.  Viral load @ start of treatment was 1,600,000.  Genotype 2.

Treatment includes Ribavirin pills and Peginterferon injections for 24 weeks.

UND at 4 weeks, 12 weeks and EOT plus 1.5 weeks and 3 months. 

hrsetrdr


Guru

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Posts: 940
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Hi Dave, good to see you on the forum, happy to hear that post-tx life is treating you well. Like you, I'm thinking that it might take a couple years to get past the treatment effects; definitely looking forward to that.

Thanks for sharing your upbeat thoughts, that's something we all can't get too much of. Best of luck, Tim

 

P.S.  Malcolm, nice catch displayed in your avatar!  I'm going out of Point Loma Sunday night  on a 3 day charter, probably be fishing for some species of tuna(bluefin, yellowfin, ahi).



-- Edited by hrsetrdr on Wednesday 11th of September 2013 06:02:53 AM

__________________

"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
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