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Hep C Discussion Forum -> Post Treatment -> Increasing Liver Enzymes
Post Info TOPIC: Increasing Liver Enzymes
Caryn


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RE: Increasing Liver Enzymes
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Hi Tonib and Ranelle,

I can totally understand your frustration. Same thing happened to me earlier this year.It seemed for me that it was so hard to actually get started and then BAM, it's not working. It did not take long at all before I was back in my daily routine. I believe everything happens for a reason, I may not really understand why this happened to me now, but maybe someday I will. I see my doc in Dec about future treatment options. One thing is that I am much more educated (only really scratching the surface) than I was before. Good luck to you both. Let your body rest and remember there is hope for all of us just right around the corner! My nurse said that they were looking at sofosbuvir and interferon for me as soon as next year, but I have not been able to find anything that shows results. I may not jump on that wagon knowing that an even better option may just be another year away.  Lets keep each other posted on what our doctors tell us regarding upcoming treatments.



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1a, CT. Incivek triple 1/2013, vl 810 @ 2 weeks, 610 @ 4 weeks, 3000 @ 8 weeks, tx stopped. 

4/2014 - tx with Sovaldi/Olysio/Riba. VL 39 mil. - VL 230 @ 1 week, VL 40 @ 3 weeks, 5 weeks UND, EOT - UND, EOT @ 4 weeks UND, EOT @ 12 weeks UND!
tonib


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Thanks Ranelle for your encouragement you are always there with the right words....



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 geno 1, started peg and riba 7/5/13, now 29th day is vicrellis ***tonib VL started 6 million, after 5 weeks 374,000, after 8 weeks 150,000....the big test for VL is 9/27 at 12 weeks  TAKEN OFF THERAPY JUST NOT WORKING FOR ME...12 WEEKS STILL HAVE 9000 VL
nurschic


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Well my doctors office called me today to set up my next appointment. The nurse said the doctor wants to see me about talking to me about my options. Till then I'm just gonna have to keep my head held high and try to think of the best.......everything happens for a reason, right.

toni..... I am so sorry to hear the your in the same non responder club with me..... But on the bright side....maybe we can start the next treatment together. Dragon slayer partners!! 

thank you everyone for the kind loving words. Yesterday was very hard for me seeing my results, then I worked in the emergency room today and remembered that I am still very lucky and very healthy, cause there are so many out there a lot worse off then I am.



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Dx:2007; Genotype 1; VL 1.4mil, start triple therapy (peg/rib/inc) 6/2/13 (Failed), Harvoni 12 weeks EOT undetected, 6 month EOT UNDETECTED!
Tig


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Hey Toni, bummer just doesn't cover it ... I'm so sorry that you had to go through all of the pain and grief to get this kind of news. You seemed to always feel that something wasn't right and you knew it before they did. Just goes to show you that often there are times that your instincts are right. The meds were making you feel so lousy and serving no purpose. Consider this early warning of treatment failure as a bit of good luck. At least you don't have to continue taking this stuff for no reason. The new drugs will be your answer and their release dates aren't too far away. Remember that the Interferon regardless of this failure will have provided you with some benefits and should give you a nice window of time to do some recovering and preparation for the next round of Tx. Hopefully it will be a short duration, side effect light course of medication. You should be proud of your effort and give yourself the credit due. Regardless of the outcome, you're not a failure, the drugs were, this time. Next time, Dragon be damned!! Get your system clear of the poisons, get your strength back and get ready for next time, whenever that is. I'm proud of your efforts and most certainly of your willingness to battle the Beast, don't give in and never give up! Always here for you!!!  xxoo <3



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Kellie


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Toni, I'm sorry the meds didn't do their job. Same as with Ranelle, look forward to a new better, easier, less sx, less drama etc. treatment coming to a dr. near you in the near future, Sister.

Be good to yourself until then. I believe you will clear the virus soon. big hug and a flower for you



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HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
ios9


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Oh I 'm so sorry tonib ! that was not the treatment for you, it does not mean there is no treatment, but this one is not the good one. By luck you might be able to get AbbVie or Gilead next year and things will be easier and so much better.

Do not loose hope, keep eating and living healthy and things will work fine.

Warm hugs

Do



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Geno 1b. VL 17. M. AbbVie Turquoise II. UND EOT 4. 8. 12. SVR.

"Our task must be to free ourselves by widening our circle of compassion to embrace all living creatures and the whole of nature and its beauty."Albert Einstein

 

 

 
tonib


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Hi there, well I am also in the non responder club....just got the bad news from my doc....no more meds .......still have 9,000 and all this talk about mutations crap....and anyway I am off and as messed up as this may sound....I am very disappointed, but happy at the same time to get off this poison that has been making me so sick and tired and nauseous and just miserable for the past 4 months......

I feel so disappointed and let down in life....I waited all these years to get the courage for therapy and now when I finally get the nerve....well this is what I getdisbeliefno



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 geno 1, started peg and riba 7/5/13, now 29th day is vicrellis ***tonib VL started 6 million, after 5 weeks 374,000, after 8 weeks 150,000....the big test for VL is 9/27 at 12 weeks  TAKEN OFF THERAPY JUST NOT WORKING FOR ME...12 WEEKS STILL HAVE 9000 VL
Kellie


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Hi Ranelle, Big huge hug for you. Try not to worry if you can, and look forward in time to a easier treatment. Just think you won't have to suffer all the sx of interferon and riba. I thought once I came off the sx would be less. Nope, now it looks like another set cluster f&*&k of sx to deal with. Hug and a flower for you



__________________

HCV 1A 1980. Dual tx 2003 -UND at wk 11-discontinued due to severe depression

Started Triple 4/16/13 for 24 weeks

UND wk 4,6,8,12,17 & 24

E.O.T. 9/29/13

EOT + 12 weeks=SVR, and EOT +26 weeks=Cured!
Terry


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Hang in there Ranelle     Try not to worry about the elevation it is because you have stopped the drugs for a while. My ALT at one point was 247 so not worry. I wish I could give you a big hug right now ! I use to find that taking a long quite walk around a small lake near me always helps to clear the mind . The water and scenery around the lake have a calming effect.  And another thing I like when I am down is to shop ( go figure a guy shopping. lol ) Go buy your self something nice it may take you mind off it. Keep in touch we are always here.



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Geno Type 1a stage 4 cirrhosis EOT 52 weeks SVR !!
Karen


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Hi Ranelle,

Jill has great advise (Try not to stress over your lab results and instead concentrate on living your life off tx while you are waiting for new drugs to be available.)

Take a couple deep breathes...sending you hugs!



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Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014
2willy


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hang in there, I am at six weeks over meds and my alt and ast were up and down right to the end, did blood work and they are 31 and 48 now and fiber scan showed I dropped from a 3/4 to a 3

bill emma and raven



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Geno type 1  rib and peg September 2012 , 5 weeks tripple and viral down to < 15 und april Aug 25 finished stay at peg 3 rib and eprex + blood transfussion finished treatment Aug 25 2013
ios9


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Dearest Ranelle, please do not cry and do not worry, it's very usual for enzimes to change from one month to another. It did happen to me before treatment too: it jumped on the roof after I was told I had an early cirrhosis. so your actual problem could be because of the stress, no more. Also as Malcom said, Mrs and Mr Virus C must have decided to get baby boomers now the first fight is over. But this is not the last fight, they just have a year or so in front of them, and ... new treatments  will fight them for good no problem :) 

Listen : I was very young when infected, spent 42 years with that Virus family (they were 17 millions when starting Turquoise II) and 5/6 weeks later had none, and my enzimes tests are just fine, normal level.

Also, it seems Interferon you took will help your liver at the end, this is what a study says : it helps liver to regenerate later on.

Have an healthy life and diet, you know AbbVie and Gilead are really powerful and will cure you as soon as your doc says you'r ready to get it.

Warmest hugs,

Do

 



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Geno 1b. VL 17. M. AbbVie Turquoise II. UND EOT 4. 8. 12. SVR.

"Our task must be to free ourselves by widening our circle of compassion to embrace all living creatures and the whole of nature and its beauty."Albert Einstein

 

 

 
Cinnamon Girl


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Oh please don`t cry, Ranelle, I`m sure the treatment you did hasn`t damaged your liver.  Liver enzymes aren`t really a good indication of liver damage and will most probably settle down soon.  Try not to stress over your lab results and instead concentrate on living your life off tx while you are waiting for new drugs to be available...you are young and fit and will clear this virus in the end!  Better times are ahead!  x



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
mallani


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Hi Ranelle,

Don't worry about your ALT and AST. They bounce around, and the virus is probably having a little celebration after you stopped the meds. It would be surprising if they didn't go up, but they will come back down. Just relax and get yourself fit for the next round.  Personally, I'd give Interferon a miss and wait for an all oral combo- either Gilead or Abbvie. You're young and have plenty of time. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Iris Dragonfly


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Hi Ranelle, I'm sorry I don't have the answer, but I would like to give you a cyber >> hug<<,

What does the Dr. have to say about it?

BB, Iris



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in the silence of the woods, you will not be alone- Chief Seattle

60 years on planet, Female, diagnosed 1978 as non-a non-b, VL 8mill+, Fibro f-1f-2, Genotype 1a, treatment naïve....UNTIL 7-01-18  !!!! started Harvoni 12 weeks. :)

4 weeks=UND, 8 weeks=UND, 12 weeks=UND (EOT= 09-23-2018)
nurschic


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Well...... I have been off treatment now for over a month after doing the 12 weeks of the incivek. All during the treatment my liver enzymes have been normal to slightly elevated. My 12 week labs saw a HUGE jump in my count and now they are even higher!!!! Im really starting to worry.....will they ever come back down??? Did I do more damage to my liver doing treatment??? I want to cry right now!!!



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Dx:2007; Genotype 1; VL 1.4mil, start triple therapy (peg/rib/inc) 6/2/13 (Failed), Harvoni 12 weeks EOT undetected, 6 month EOT UNDETECTED!
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