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Hep C Discussion Forum -> Post Treatment -> HELP WHAT DOES THIS MEAN??
Post Info TOPIC: HELP WHAT DOES THIS MEAN??
garfield


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RE: HELP WHAT DOES THIS MEAN??
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Hi Tonib,

             I'm so sorry.

Now you can look forward , never again Interferon and an interferonfree therapy with few Sx and a better SVR chance in only 12 weeks is waiting for you.

best wishes



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Tig


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Hey Toni, you will live to fight another day, that I have no doubt! Your strength is admirable and I know it will carry you through your recovery and into the next battle! Stay strong Sister and believe in yourself. There are good things in your future and you know it! xo



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Matt Chris


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Hello Tonib

Your right Tonib, it is really tough but so is the human spirit. You may down but you are certainly not out and their is a whole lot more options to come. I think of it this way, we may have struck out this time but we have several more at bats to score and the odds are with us.

My advice is fill your time with doing good for others and it will keep your mind from dwelling on the pain. It's the best medicine their is.

Hoping toward the future with you

Matt



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
tonib


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Thank you everyone for the encouragement.....I guess I have finally stopped crying....and now I have to put on my big girl pants and move on.  But let me tell you this is really tough I was ready to fight the fight no matter what...and now I have to stop....so unfair...

 

Good luck and best wishes to my brothers and sisters on this forum...I will be watching and reading all about you.  And I will be waiting for my turn to kill the beast...



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 geno 1, started peg and riba 7/5/13, now 29th day is vicrellis ***tonib VL started 6 million, after 5 weeks 374,000, after 8 weeks 150,000....the big test for VL is 9/27 at 12 weeks  TAKEN OFF THERAPY JUST NOT WORKING FOR ME...12 WEEKS STILL HAVE 9000 VL
Biggyb


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Very sorry tonib, but as everyone say's there's better stuff on it's way. I have failed TX twice before and i know it sucks. Keep your head up and carry on...~Bob



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58 yo..Relapsed in 99 and again in 2004. Started triple therapy with Victrelis July 22,2012.  genotype 1a. week 8,12,16,24 VL Undetectable..E.O.T -- 6-22-2013,,,EOT + 24., UND. 

SVR !!!

 

~Bob~
hrsetrdr


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I am so sorry to hear this, I feel the ache inside as well.   You gave it your all but it just didn't happen, not right now anyways.

Best wishes, take care.

Tim



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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
tonib


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will my VL go up again?  Or will it stay at 9000?   

I guess this was not the time for me to be healthy and free from this horrible beast, and now the beast will have a party when it realizes the meds are gone.....furious

Beast 1

Me   0



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 geno 1, started peg and riba 7/5/13, now 29th day is vicrellis ***tonib VL started 6 million, after 5 weeks 374,000, after 8 weeks 150,000....the big test for VL is 9/27 at 12 weeks  TAKEN OFF THERAPY JUST NOT WORKING FOR ME...12 WEEKS STILL HAVE 9000 VL
mallani


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Hi tonib,

Sorry to hear the result. At least you can get off the meds and get them out of your system. The Interferon didn't work for you, so time to wait for the new orals. It's better to know now, rather than go through 48 weeks of hell, but I guess that's not much comfort now. Get yourself healthy and ready for the next battle. Your time will come. Hugs XX



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
ucbgal


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tonib,

 

my heart goes out to you... as others have said,you didn't fail the meds did. how brave & courageous you were to tackle tx while working!!!

it wasn't all  for nothing. you now have a much lower vl, are eating healthier and exercising and have joined this forum. please rest up & treat yourself well this weekend.

 

sandy,ucbgal



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Loopy Lisa


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Everytime I hear someone fails to cure, my heart sinks and I really feel emotion. I am so sorry, it is tough living day to day with this crap using us as a breeding ground without being told it is here to stay for longer. There is a rescue kit just around the corner but it doesn't really help to know that right now. I guess right now it is good to scream, cry and deflate a little. But remember we are all here holding your hand from afar. Hugs x



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
Karen


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Oh my (heavy sigh)...

Tonib, I am so sorry to hear your news.  You are courageous and will find your way to victory.  Sometimes we are the hardest to convince that we need time to heal...be gentle on yourself.  Sending hugs..K

 



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Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014
hepcat60


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Be proud that you were ready to go the whole nine yards.  I am so sorry to hear this news.  I know you are devastated.  



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Hep C 1a since probably 1981.  Incivek, riba and interferon-48 weeks.  UND at weeks 2-4-6-8-10-12-16-20-24.  Previously Interferon alone for 6 months non-responder.  SVR 48 weeks 12/11/14
Cinnamon Girl


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So sorry about this result, Tonib, I really feel for you.  You must be devastated right now, and it will probably take a little while for you to come to terms with what`s happened.  You know you gave it your very best shot but interferon based treatment doesn`t work for everyone, some things are out of our control. 

Do is right, you should be proud of yourself for trying at least.  Take good care of yourself and let your body and spirit heal for a while...your time will come, have no doubt about it.  Sending hugs...  x



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
ios9


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Hi Tonib,

I'm so sorry, to learn this from an email is really the bad way. Glad you have been able to speak to a doc. I've already written to you on the other thread. All my thoughts are with you.

Keep hope, relax as no more needle, and a solution will arrive in time. You may be proud of you to have try, it was a difficult decision. There will be better ones soon.

All my affection,

Do


 

 

 

 



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Geno 1b. VL 17. M. AbbVie Turquoise II. UND EOT 4. 8. 12. SVR.

"Our task must be to free ourselves by widening our circle of compassion to embrace all living creatures and the whole of nature and its beauty."Albert Einstein

 

 

 
tonib


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OMG ITS TRUE!!! The medicine is not working for me.....almost 13 weeks of pure hell all for nothing!!!

So upset right now......can't believe this......

__________________

 geno 1, started peg and riba 7/5/13, now 29th day is vicrellis ***tonib VL started 6 million, after 5 weeks 374,000, after 8 weeks 150,000....the big test for VL is 9/27 at 12 weeks  TAKEN OFF THERAPY JUST NOT WORKING FOR ME...12 WEEKS STILL HAVE 9000 VL
tonib


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HCV RTPCR, Quant (Graph)

 Hepatitis C Quantitation 9,620 IU/mL 01

 HCV log10 3.983 log10 IU/mL

. 01

 Test Information: 01

 The quantitative range of the assay is 15 IU/mL to 100 million IU/mL

 using COBAS(R) TaqMan(R) HCV test, v 2.0. The limit of detection (LOD)

 and lower limit of quantification (LLOQ) for this assay is 15 IU/mL.

 Results less than the quantitative range of the assay will be reported

 as "HCV RNA detected, less than 15 IU/mL".

 

JUST GOT AN EMAIL FROM LAB CORP....WHAT DOES THIS MEAN??



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 geno 1, started peg and riba 7/5/13, now 29th day is vicrellis ***tonib VL started 6 million, after 5 weeks 374,000, after 8 weeks 150,000....the big test for VL is 9/27 at 12 weeks  TAKEN OFF THERAPY JUST NOT WORKING FOR ME...12 WEEKS STILL HAVE 9000 VL
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