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Hep C Discussion Forum -> New Members Area -> Trial experiance
Post Info TOPIC: Trial experiance
Milliganus


Senior Member

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RE: Trial experiance
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Welcome Gig!  I'm pretty new herewaiting to find a trial.  Sounds like you've been through so much.  I pray this treatment will finally have you virus free for good!  I've heard lots of good reports of the outcome of these 2 drugs.



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Marcy

Long-term HCV, GT1a, IL28B C/T, T/G;  VL 2 mil.  Merck C-Edge Clinical trial  EOT 10/01/14. +24= UND
ucbgal


Senior Member

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Posts: 297
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gig,

a huge welcome to this forum. your journey to becoming hcvfree is awe inspiring. the beauty of this forum is that we all can learn from each other. you will be a positive addition to this caring community.

sandy,ucbgal



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hrsetrdr


Guru

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Posts: 940
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Gig,

Welcome to the forum, sounds like you've been through the type of hell that most of us can only imagine. Good luck with your Sofasbuvir/Ledipasvir tx, we'll be here, best wishes, Tim

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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
Terry


Senior Member

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Posts: 123
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Hi Gig 

    I hope you had a great Holiday ! And you are now on one of the best treatments going so you will be on to better things in no time. You have found yourself a great site and we are all here for you. ! Take care   Terry



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Geno Type 1a stage 4 cirrhosis EOT 52 weeks SVR !!
suziq


Senior Member

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Posts: 327
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Hi Gig,

Welcome.  You certainly have a story to tell that brings hope to others. 

What trial are you on??  If you will post your trial and some experiences in the clinical trial participants section ( make the subject your trial number)  then others who may be on that trial or looking for info on it can find you easily.  This forum moves so quickly and a thread on your trial makes info easier to find.  Not sure if there is a thread for Liver Transplant but if there isn't , you might start one.  If there is, add your story.  It would help others who may be on a transplant list. Also, if you fill in the signature portion in user details, it will post on all your posts--helping those of us with poor memory or "brain fog"  

Don't want to sound bossy, but you have such an inspiring story, that I don't want anyone to miss it.

SuziQ



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Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR
newmex


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Posts: 157
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Hello Gig,

Welcome to the forum, and hope you had a good Christmas. I am kinda new here myself but am picking up loads of new info. Am on treatment with the Incivec but am really interested in the treatment you are on. Amazing to see how the treatment has progressed in the last couple years. Best of health in The New Year and am looking forward to seeing you virus free.



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John
Tig


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Thanks for the kind words Gig! I'm glad you've joined our group, you're going to fit right in. We can always benefit from someone with a strong, positive attitude here. It's what makes this the great forum it has become!!

Tig



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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Gig


Member

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Wow

What a compassionate group didn't expect anybody to even read my post let alone reply. You don't know how profound your words of encouragement are to all that are struggling with Hep . Fred I did not contact them they contacted me thru my Dr. they had sent out 300 trials requests to Hosp. all across the Country and asked Dr for patients they thought would be interested. Know I'm in MI and go to University of MI Hosp they could only come up with 2 people for trial and were given 12 slots to fill go figure would have thought people would be chompin at the bit but not so. Don't know how far you are from Anchorage but maybe see if they got any slots ?  Just a thought other than that I have no contacts at all nor websites nuthin would surely pass them on if I did.

As for this treatment being easier like nite and day allways been a fighter work const was in good shape physically

Dr said that was why I was watching tv in MY living room 3 days after Liver Tx what a road that was! liver cancer tx 4 other surgeries worst thing now is givin blood no veins left really is a pain lately goin for femoral artery good Blood there lol.

 

Not to drag this on but please Know that you are all in my prayers, your strength is your heart, and when you help someone else, your heart gets stronger

 

Thank You

Gig 

 

 



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Alaska Fred


Member

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Posts: 39
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Hi Gig! I've been trying to contact Gilead for the same trial and could use some advice. How did you make contact for this trial. The e-mail on the clinical trial gov. site has been a dead end. I have contacted Gilead several times and they have really nice but have yet to get back to me as to why I haven't heard anything. I tried triple therapy about 6months ago but at my one month labs my viral load was to high to continue. This sounds like a great drug combo. All the best to you in your treatment and God Bless. Alaska Fred

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Fred lambert
Zlikster


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Hi Gig, welcome! this indeed is best forum on the net for hcv support!

Wow, 22 months of Peg and Riba!!! i have wussed out @ 5.5months :/ I bet Sof/Led/Riba trial feels like eating candies compared to that hellish experience with Peg.

Hope you evict hcv from your liver this time :)

oh yeah, and - go India (or China)! :D





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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
mallani


Guru

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Hi Gig,

Welcome from me as well!  You've obviously had quite a trip and I'm glad to hear you're on a great drug combo. This must be a breeze compared to what you've been through before. All the best, and keep us posted. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Cinnamon Girl


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HI Gig, welcome from me too! 

Thanks for sharing your story with us, sounds like you`ve been through a pretty rough time over the last few years.  Great that you`re on a Sovaldi/Ledipasvir combo trial now and congrats on being UND at 4 weeks! 

We have a section called `Clinical Trial Participants` and you`re welcome to start a new thread there so we can follow your progress. 

Wishing you all the best of luck!  smile

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
dustbear


Senior Member

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Posts: 230
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Hi Gig,

Welcome to the best forum ever!

I'm not familiar with your tx but the news is wonderful, only 19 weeks left. It will be over before you know it.

Have a wonderful holiday.



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Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
Tig


Admin

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Posts: 9279
Date:
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Hi Gig and welcome to the forum! I'm glad you're here and I appreciate your offer of help and hope. It sounds like you've been down that road and back again, only to be taking yet another journey. I wish you the very best and would like to offer you my support as well. You've found a good place, with some wonderful people. Your attitude is impressive and I look forward to getting to know you as you continue to slay the dragon. Good luck and I hope you have a wonderful Christmas and healthy, happy New Year!!

Best, Tig



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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Gig


Member

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Posts: 6
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Hey All

Here goes first time here. Well I'm post Liver Transplant 3 yr treated pre transplant Inter and Rib 22 months of hell. Lasted a few months being und. short lived. Now I just started trial Sofasbuvir/Ledipasvir  Rib 24 week trial. I am now on week 5 so far VL pre treatment 800 k week 4 und VL don't know whether to jump for joy wait for the hammer. When it comes to treatments for me it is detaching myself pretending its somebody else getting g messed with. I think I have been thru bout everything from the Dr sometimes weve got to realize that if they do things easier they would sometimes ya just gotta bite the bullet. My prayers go out to those ether in treatment or newly diagnosed stay strong any questions Ill be glad to say what I know. Remember any one can be an expert in one thing so take your illness seriously learn all you can educate yourself for YOU can be your most effective Dr. Take Care All

Go Gilead

 

Gig



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