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Hep C Discussion Forum -> New Members Area -> Hi! I'm new, 3a, and beginning Solvaldi & Ribaviron this week.
Post Info TOPIC: Hi! I'm new, 3a, and beginning Solvaldi & Ribaviron this week.
Karen


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RE: Hi! I'm new, 3a, and beginning Solvaldi & Ribaviron this week.
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Great news Mila...I too have had my struggles with auto-immune issues + and my liver damage is minimal....according to blood work.  My doctor just commented, I am one of those patients that looks good on paper...So I get it!!

Welcome to all the new comers...Look forward to cheering you on to a hep c free 2014!



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Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014
LTChaos


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Mila, congrats on your treatment!  I just returned from a 'class' on the Sovaldi Riba combination held by Gilead, and my next step is treatment.  I am Genotype 2 & will hopefully start a 12 week treatment within the next couple of weeks. I mostly lurk here, but hope to become a little more vocal once i begin treatment.  

 

Best of luck!



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GT 2  VL on 10/23/13 7.2 Million; AST 55;ALT 79;AFP 3.2; Started 12 weeks Riba/Sovaldi 2/2/14 - Results Undetectable at 12 weeks!  
suziq


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Hi Larry,

I have 5 days left of my 18 week Merck trial with riba, no interferon. UND since week 4. I did an A1C at about 6 weeks into the trial and it came back 5.1.  It was 6.6 at screening.  Haven't had another test, but with your result, it might be a good idea.  I just thought the 5.1 was a mistake.  I did post about it at the time, but no one else responded about their diabetes.  Mallani did post that is was possible that liver problems were responsible for the diabetes.  So I will get it checked again and let you know.  Don't want to continue diabetes meds if I no longer have it.  And hopefully will have good news for both of us. 

I had no sides early on, but it began to affect my stomach at about week 13. Also began to tire easily at about week 12.   I'll know if it is the meds when I stop them next week.  My viral load at start was 788,000 and <25 at end of week 1. 

With only 90 days you may not experience any sides.

Mila,

I, also, have had few symptoms of Hep C.  Shocked when I found it had progressed to cirrhosis.  My coordinator said it can be a very silent disease.  Apparently it was silent for me most of the time.  I was told back in 1966 that my liver enzymes were elevated, but thought it was because I had Hep A several years earlier. I did stop drinking at that time (1966).  Diagnosed as Hep C in 1999 during a routine physical.  Guess that doctor wondered why my enzymes were elevated.

Congrats on your treatment.

SuziQ    



-- Edited by suziq on Thursday 9th of January 2014 07:27:24 PM



-- Edited by suziq on Thursday 9th of January 2014 07:29:36 PM



-- Edited by suziq on Thursday 9th of January 2014 07:42:05 PM



-- Edited by suziq on Thursday 9th of January 2014 07:45:03 PM

__________________

Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR
Larry2384


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Hi Mila!

I am new here too! I started Sovaldi and Ribavirin one month ago and so far have had no issues or side effects. My viral load was 1.6 million last time it was checked and was checked again last Friday. I am still waiting for the results to come back anytime and hope to be undetectable. I had my diabetes type 2 A1C test today and came back at 5.5 which means that I may not be diabetic anymore. The hep c prevents the liver from breaking down fats properly and contributes to diabetes so hoping to cure two problems with one treatment.

Welcome to the forum. You will find the support you need here. Everyone has been great to me so far.

 

Larry2384



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Larry2384

 

Gen 2b naive, age 57, contracted HCV in 1974, started 90 day regimen of Sovaldi + Ribavirin on Dec 14th. <15 undetectable after 5 weeks

 

 
Mila


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Hi Everybody! 

I have my Sovaldi and Ribaviron in hand and will begin the required genotype 3 6-month treatment this week. I was diagnosed with genotype 3a around 1995 and went through one year of daily alphaInterferon a injections, which was pure hell; obviously, I relapsed. 

My labs last week were excellent. Liver function was normal. (It's usually slighted elevated, but occasionally normal.) Viral Load is 276,000/million which is apparently quite low. I've never had a biopsy but ultrasounds are always normal.

My labs have often been slightly elevated since I can remember, but doctors used to shrug it off; I recall one saying that maybe it was because I was on the pill at the time. I was diagnosed eventually only when I saw a specialist due to increasing extreme fatigue, sporadic flu-like aches and pains, digestive problems...and "brain fog." I've since also had some auto-immune symptoms. Despite my labs being "good," there is no way I could work. My personal theory is that my body fights the virus so hard to protect my liver that it makes me sick. I've seen doctors at Stanford, UCLA, the Mayo Clinic, and in Manhattan. They have all told me that the amount of actual liver disease isn't consistent with how people FEEL. The doctor at Mayo told me he had a patient come in that week who had just run a marathon and felt great, but was found to need an immediate liver transplant. Although, of course, I'm fortunate that my liver is in good shape, it can be frustrating because you have no "proof" that you are really ill. Is anybody else like this?

I'm here, of course, for support if I need it during this treatment but also to hopefully be of help by sharing my experience with others. I'm a total newbie with forums, though, so please be patient and feel free to tell me if I'm doing anything wrong. Thanks!

Mila

 

 



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* Gen. 3a * Age 56 * Relapsed in 1996 after 48 wks tx of 3M daily units alpha interferon *

* 24 wk Sovaldi/Ribavirin tx started Jan. 11, 2014 * VL 2.6M b4 tx * Undetectable @ 2 weeks *
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