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Hep C Discussion Forum -> Hep C News -> Photo of My $28,000.00 Worth of Sovaldi Pills & Bottle
Post Info TOPIC: Photo of My $28,000.00 Worth of Sovaldi Pills & Bottle
Dee738


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Photo of My $28,000.00 Worth of Sovaldi Pills & Bottle
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If anyone is still reading this thread, please contact Patient Access Network. They give grants to cover insurance copays for HCV drugs, up to $7000. They fully covered my copay. Easy application process, too. Check it out!

http://www.panfoundation.org/hepatitis-c



-- Edited by Dee738 on Monday 3rd of March 2014 03:40:10 AM



-- Edited by Dee738 on Monday 3rd of March 2014 03:41:01 AM

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Karen


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LTChaos-thanks for sharing this information...  I believe there will be many more that will find this news helpful...



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Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014
LTChaos


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Ugh! I wish I had seen this before I met the Gilead Rep today!!  Mila, the rep told me that Gilead does not want anyone paying more than $5 for a copay, and they want to work with everyone individually as needed to ensure they do not have to pay too much.  Please call the number provided by Tig below.    My Dr.'s nurse told me that so far they have not had anyone who had to pay anything exorbitant,  and insurance companies have been covering everyone they have submitted so far.  I am in upstate NY....I did up my HCS plan this year in case I needed to pay something, but after the visit today, I am concerned now that I may not spend much at all  * might even lose the money i put in.   It may be time for me to get braces.

 

Anyway, I hope you are able to recoup some of that money!!  



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GT 2  VL on 10/23/13 7.2 Million; AST 55;ALT 79;AFP 3.2; Started 12 weeks Riba/Sovaldi 2/2/14 - Results Undetectable at 12 weeks!  
Zlikster


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hehehe
When we think about it bit more...1 gram of gold at present price is cca 40$, so 400mg of gold is 16$...1gram of Sofosbuvir is 2500$ (400mg=1000$), this is waaaaaay more precious than gold. Actually, what compaund is more expensive?

Dear Gilead, please add your precious compaund to this list:

http://www.businessinsider.com/most-valuable-substances-by-weight-2011-11?op=1

almost expensive as gram of LSD! yay!

;D



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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
Karen


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Mila, What a shame!  Tig56 suggestion is a good one-Gilead may help with part if not all of your co-pay! Best of luck...coat aside, it is a great treatment choice.

Bill...I was thinking the same "how did the world get this way". Because I am living off IRA money, I did a budget the last two years-(don't want to run dry).  I was self-employed/self-supported all of my life.  Keeping in mind I have always paid for health care...at the end of the year, my nothing of a car cost me more than my health care/insurance and living expense....Something is terribly wrong with this picture!  Time to sell the car, get back on my bike! and look for a job...

Zlikster-Like that! The original color of those pills were peach-did you notice they are now "gold"....

 

 



-- Edited by Karen on Thursday 9th of January 2014 01:45:33 PM



-- Edited by Karen on Thursday 9th of January 2014 04:02:45 PM

__________________

Geno Type A1- VL 16.2m - F1-F2 Moderate Fibrosis - Started treatment 4/16/13 Sofosbuvir/Ledipasvir 6 months -  UND week 4 (5/14/13) - EOT 10/1/13 - 12wk blood draw 12/20/13 UND - 24wk/final blood draw March 2014
Zlikster


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can you get a little bit bigger pic, so i can use it as my desktop background ;)

PS: do not keep those expensive pills out of bottle!



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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
Bills


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Just unbelievable. 

So what do we say? I won't pay it? We are a desperate group of unfortunate souls. In a world where we want everything and want it now. And we are OK with paying. Some people pay over 100$ a month for the latest i phone and services. And think nothing of it. A $60,000.00 car, a $500,000.00 house. College loans 20 to 100K. How did this world get this way?

Wana live?  Doing math 12 weeks is $90,000.00. ? If I could get off this planet i would. But before i do Gilead will get my 90K and the other $$$$ for Delacivier? or something. After all i did for hep c I should be up to about about 150K already 12 weks intf / riba then a trail 45 weeks intf / riba and DB025 and another 26 weeks of intf / riba and inciveck. the inciveck was around 40 K alone

Of course I didn't pay the whole thing My insurance The 45 week trail, and insurance I did pay some $1000's in co-pays and Dr visits and Test over time.  i may be worth a million in drugs when I'm cured. I consider myself fortunate to have gotten off so cheap. But somebody paid it for me insurance was billed? if there's a way Gilead can get paid in full they will  profit$$ and Profit$$$$$

My heart go's out to the people who don't know about these programs don't have insurance or actually fall between the cracks of the systems. I pray for all of you who no one will tell there is a way to get it free or so low you feel like your steeling. And it's not just us with HEP C  it's every illness and life threatening thing we can think of. I wouldn't know this program existed or if I even think I'll qualify. If it wasn't for all of you who are always looking and posting ways to cope with our HEP C. This Group / Forum is the greatest thing I've ever found and have the deepest respect and love for all of you.

End of month i go for 12 week check up and I'll be asking when will I get a chance again? They say life is the most precious thing on earth. At the same time there a price tag to keep it. Sick world. 

At least we have each other.

Bill S  

 



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

ucbgal


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mila,

thank you for sharing that info w/ us. it saddens me so.nonono

i wish you only the best in your journey. believe me you're doing the right thing. we all need to be proactive w/ this disease.

was wondering if you had applied for a clinical trial ? also what happens if you lose some pills ?

sandy,ucbgal

 



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Tig


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Hi Mila,

I just reread your post, I guess I missed your copay statement. How freaking ridiculous!! We've been discussing the outrageousness of the costs these meds are and you unfortunately are our first example of the highway robbery going on with Big Pharm and Insurance companies. I'm so sorry to hear that you're going to be out so much money. Have you checked the Gilead website and applied for their patient assistance program. If you need the information, I'll certainly find it again and make sure you get it. Supposedly for us PO' folks, they'll subsidize or pay for the script providing you qualify for it. You should def check it out.

Tig

 

Here, I found the information and fyi you can do some searches here on the forum (above) and find our comments as well as more info on Sovaldi and Gilead. But here's the article Jim posted for us:

 
 

 


 
Sofosbuvir (Sovaldi) Gilead U.S. Patient Assistance Program  
Gilead is committed to ensuring that people with hepatitis C can access Sovaldi and has launched Support Path (www.MySupportPath.com) to provide assistance to patients who are uninsured, underinsured or who need financial assistance to pay for the medicine. The program consists of an integrated offering of support services for patients and providers, including:  
· Access to dedicated case managers to help patients and their providers with insurance-related needs, including identifying alternative coverage options such as federally-insured programs (e.g., Medicaid, Medicare) and health exchanges.   · Education and support, including a 24/7 nursing support service line and the ability to schedule an onsite visit from a clinical educator.  
· The Sovaldi Co-pay Coupon Program, which provides co-pay assistance for eligible patients with private insurance who need assistance paying for out-of-pocket medication costs. Most patients will pay no more than $5 per co-pay. Co-pay assistance can also be applied toward deductibles and co-insurance obligations.  
· Gilead will provide support to the Patient Access Network (PAN) Foundation, an independent non-profit organization that provides assistance for eligible federally-insured and privately-insured patients who need help covering out-of-pocket medication costs.  
· The Support Path Patient Assistance Program will provide Sovaldi at no charge for eligible patients with no other insurance options.  
Information about how to apply for any of these forms of assistance can be found at www.MySupportPath.com or by calling 1-855-7MyPath (1-855-769-7284) between 9 a.m. - 8 p.m. EST.
Global Availability   Gilead is committed to helping ensure access to Sovaldi in resource-limited settings. The company is developing a hepatitis C treatment access program, focusing on those countries with the greatest HCV burden. Full program details will be announced in the coming months.
 


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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

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Mila


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Thanks, Tig56. That makes sense. You guys are ALL so smart! I was worried I'd have to buy an extra bottle for a few pills... Yes, it's a racket and an outrage that everybody doesn't have equal access to ALL healthcare regardless of their financial situation.



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* Gen. 3a * Age 56 * Relapsed in 1996 after 48 wks tx of 3M daily units alpha interferon *

* 24 wk Sovaldi/Ribavirin tx started Jan. 11, 2014 * VL 2.6M b4 tx * Undetectable @ 2 weeks *
Tig


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Wow! What a racket they have going!! The reason you get 28 count bottles is because these types of anti viral therapies are counted by 7 day weeks, thus 28 pills = 4 weeks of treatment.

Tig



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Mila


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Most people won't be able to afford this, even with insurance. no My co-pay this month for JUST 28 Sovaldi pills was $5,556.70. It should go down next month, but I need 6 months of treatment.

I wonder WHY there are only 28 pills/bottle instead of 30, when the treatment is always for a specific number of months??? 



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* Gen. 3a * Age 56 * Relapsed in 1996 after 48 wks tx of 3M daily units alpha interferon *

* 24 wk Sovaldi/Ribavirin tx started Jan. 11, 2014 * VL 2.6M b4 tx * Undetectable @ 2 weeks *
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