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Post Info TOPIC: New to the forum.
Liamc


Veteran Member

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RE: New to the forum.
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Hi ,

Thankyou  for the encouragment and kind words, feeling over whelmed right now on what is in front of me. Where is your friend in Thailand.?

take care

liam



__________________

GT3a Age 61. Clinical trial sovaldi/riba 24 weeks. finished trial 17th April 2015 undetected. EOT+4 weeks undetected.24th July 2015 "SVR"

24 week SVR!!
JoAnneh


Guru

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Welcome, You won't be alone anymore!
You have found gold by finding this
Forum. We understand where you are at
As we have been there too.
Lots of smart and caring people on this forum.
Ask any questions!
I have a friend who is a missionary in Thailand.
I may be visiting in November to help her
Great cause to save children from slavery!
I agree this forum has more info than
Majority of doctors!
Best wishes,

__________________

JoAnne

Genotype 1a, Triple therapy w/Invicek started May 19, 2012

DET 4 wk. UND 2,6,12,24 48 treatment. Achieved SVR 2013!
Liamc


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Hi Malcolm, 

Greenslopes hospital just got back to me the trial is now full I didn't get in. Thankyou  for your help.

liam



__________________

GT3a Age 61. Clinical trial sovaldi/riba 24 weeks. finished trial 17th April 2015 undetected. EOT+4 weeks undetected.24th July 2015 "SVR"

24 week SVR!!
Liamc


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Hi Malcolm, yes please that would be great mate.

cheers

liam



__________________

GT3a Age 61. Clinical trial sovaldi/riba 24 weeks. finished trial 17th April 2015 undetected. EOT+4 weeks undetected.24th July 2015 "SVR"

24 week SVR!!
mallani


Guru

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Hi again Liam,

Just got a call about a new Trial at Greenslopes. It's for Rx-naive, cirrhotic and non-cirrhotic, and a biopsy will be required (paid for). Send me a PM if you want contact details. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Liamc


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Hi Malcolm, thanks I will get on to that today. Cheers mate liam



__________________

GT3a Age 61. Clinical trial sovaldi/riba 24 weeks. finished trial 17th April 2015 undetected. EOT+4 weeks undetected.24th July 2015 "SVR"

24 week SVR!!
mallani


Guru

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Hi Liam,

There was a small Trial of Sovaldi/Riba for 18 and 24 weeks, at Greenslopes Private Hospital here in Brisbane. It was for Rx-experienced patients only, and is full. They will probably have further Trials- it may be worth contacting the Gallipoli Foundation at Greenslopes. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Liamc


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Thank you Jill for this valuable information. I will stay very close to this board. I have an EU  and Australian passport so I am willing to go where i can to get into a trial

cheers

Liam



__________________

GT3a Age 61. Clinical trial sovaldi/riba 24 weeks. finished trial 17th April 2015 undetected. EOT+4 weeks undetected.24th July 2015 "SVR"

24 week SVR!!
Cinnamon Girl


Guru

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Hi again Liam, we hope there will be some new clinical trials for Sovaldi in Europe this year.  Our friend Zlikster from Bosnia also has genotype 3 and is waiting to retreat at the moment, hopefully with an interferon free combo.  You can follow the current discussion on this thread...

http://hepcfriends.activeboard.com/t56240673/bristol-meyers-is-back-in-the-race-all-genotypes/

There are also some clinical trials currently recruiting in the UK, for gen 2 and 3, here are the details...

http://www.clinicaltrials.gov/ct2/show/study/NCT01962441?term=sofosbuvir&rank=2&show_locs=Y#locn

We usually post news of clinical trials either in the HCV News or General Discussions areas, so stay in touch and keep reading and hopefully something suitable will come up for you.

Best of luck!

 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Liamc


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Thankyou Malcolm for that information, do you think there would be any chance of fast tracking solvaldi?Would  you know of  any geno 3 trials starting in Europe?

cheers



__________________

GT3a Age 61. Clinical trial sovaldi/riba 24 weeks. finished trial 17th April 2015 undetected. EOT+4 weeks undetected.24th July 2015 "SVR"

24 week SVR!!
mallani


Guru

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Date:
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Hi Liam,

Sovaldi will probably be approved in Australia later this year by the TGA (Therapeutic Goods Administration). Gilead will then apply for PBS listing i.e. partly funded by the Australian Government. This will be referred to the PBAC who will drag their heels and possibly refer it for approval in a year or so. The Government will say it's too expensive, and defer it. This will go on for 3-5 years. By then your fibrosis will have progressed, so you probably don't have any other other option than to try 24 weeks of Peg/Riba. Your chance of SVR is probably 60-80% which are good odds.  Fibroscan is not very accurate for the mid-levels of fibrosis- my doc said always add a stage , just in case. I don't know of any Trials for Geno 3 in Australia or the far East at the moment. Good luck. Cheers mate.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Liamc


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Posts: 97
Date:
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Hi, I have read a lot of very useful information on this site and now it's time to take the plunge.

i am a genotype 3a fibroscan Kpa 9.6 age 59. I have been managing the hep c with good diet supplements and exercise in the hope that an interferon free drug would come on the market( like many others I think).Up until a year ago I was managing everything ok but   now my energy levels have really gone down and my alt/ast are high. I live in thailand and am from Australia. I was told it will be a long time before these new drugs will be available in Australia and even longer before they are subsidised. I know think I have to really make a decision. Do I go the interferon way or wait longer? After reading several of the posts here I am also starting to doubt the competence of  my liver doctor here.

it is such a relief to find this forum and the people on it, I have felt very alone with all of this.

Liam



__________________

GT3a Age 61. Clinical trial sovaldi/riba 24 weeks. finished trial 17th April 2015 undetected. EOT+4 weeks undetected.24th July 2015 "SVR"

24 week SVR!!
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