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Hep C Discussion Forum -> New Members Area -> 14 weeks in... Can Finally see the light!
Post Info TOPIC: 14 weeks in... Can Finally see the light!
globetrotter


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RE: 14 weeks in... Can Finally see the light!
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Gracie

I don't know if Im repeating myself here to you...apologies if I am..brain fog a big issue....I had a week of painful itching when I stopped the Incivek which I hadn't had before and kept me up all night and very itchy bumps on my feet. It passed but I needed cream and a prescription from my doc. I have heard that this has happened to quite a few people 'withdrawing' from it..just a heads up incase.

 

Sally



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51 year old Geno type 1A,  possibly 30 years HCV. HBV detected but currently dormant. viral load over 1,000,000. Started triple with Telaprevir Nov 2013 for 48 weeks.

VL week 4 -179,

VL week 12 -50. 

VL WEEK 24 -UND
Gracie


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Luckily I haven't had any bottom issues nor rash so I guess I'm lucky that way. Eat lots of fat with breakfast and dinner when I take the incevik, so maybe that helps. My problem is just the blahs.... Bit queasy.... Always thirsty .... Tired .... Low energy ..... Cry at the drop of a hat .... Can't sleep .... I made an apt next week with my doctor to get a sleep aid. I do feel better if I sleep. Seems daunting that I have 42 weeks left but onLy 6 of incevik so hoping that makes me feel better .... Fingers crossed! God luck with your final weeks!



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
lakegirl


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Gracie,

   Yes... some of the side effect will end when you finish... The drug will take a few days to clear your body but you will see a change... The hardest side effect from the Drug was Hemorrhoids...  I asked my Dr To prescribe a cream with lidacane in it... and it helped a lot... Also some non scented baby wipes were my best friend.... BUT am very happy to report that problem is getting much better... also nausea has subsided a lot.... Hang in there....the first 3 months were rough but manageable....The biggest problem I am having now is weakness and the "riba Rage".. I get totally exhausted without doing much... and am pissed off at the world most of the time...but understand that's a major side effect with this drug..

GOOD LUCK!!    



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Tig


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Hello Lakegirl,

Welcome to the forum! I'm glad you've introduced yourself and know you'll benefit from the information here and the friendly, knowledgeable people. It has been a very supportive environment for me and so many others. I believe you're going to find that support as well.

I just completed 28 weeks of triple therapy, but I was on Victrelis, not the Incivek. I know from others that ending the Incivek made Tx easier and I believe it. I didn't have as many of the nasty side effects brought on by Incivek, but did experience the anemia Victrelis provides. Regardless of the drugs taken and the side effects experienced, the road to completion is a rocky road with its share of bumps and road blocks. But they are all navigable and doable. The post treatment recovery is as Gracie mentioned, variable and different for each of us. You can expect a period of recovery, weeks for some and months for most. I'm about 2 months post treatment and am better but not normal by any means. My strength is returning slowly, but I'm still dealing with rashes, fatigue and sun sensitivity from the Ribavirin. Riba does take at least 6 months to clear completely, so be cautious in the sun. It takes awhile for the Riba rage to subside as well. 

It sounds like you've got a wonderful family and support group around you. That alone is a wonderful benefit. I look forward to speaking with you in the future! Good luck!

Best, Tig



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Gracie


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Did you feel a lot better once the incevik stopped? I'm on week 6. I understand from others that some feel better right away, and some it takes time. The riboviron stays for up to 6 months, but not as much of course as if you are still taking it. The fact that your off the regimens, and hep c free at last will make any residual side effects minimal. Great job on 14 weeks!

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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
lakegirl


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During a wellness visit to my Primary care Dr.. It was found that I have Hep C.... I am a Genoetype1 and have had the Virus in my body and have been living with it for 14 + Years... I got Hep C from getting a tattoo in 1999 when I met my Brother for the first time... This came from what I though was a professional shop and thought was clean....BOY WAS I WRONG OR WHAT!!!

I did not have a clue that I even had anything wrong... Looking back over the last 2/3 years there are a lot of things that can be explained now that I know I have the virus... Body aches... Alcohol making me really sick ...Weight gain... just several things that makes since now....

The medicine  regimen is very difficult for the first 3 months.. everything is very timed and you have to have all of the fat for the Incivek... The side effects are difficult but manageable.. and get easier when you drop one of the meds,

I have never been a big time drinker....so that was probably the easiest thing to give up... not feeling well for the last 3 months and knowing I have 3 more to go is the hardest part... I have a wonderful partner that has been so wonderful and supportive thru this whole thing... and 2 beautiful grandchildren that I am so excited knowing that I will get to watch grow into adults... These things are what keep me going and wanting to get this treatment behind us.. and life to get back to normal

I want to know after I finish the medicine.. how long until I get my energy back and is there something I can do to help rebuild my blood counts? once treatment is done?



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