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Hep C Discussion Forum -> Post Treatment -> Merck trial Post treatment
Post Info TOPIC: Merck trial Post treatment
suziq


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RE: Merck trial Post treatment
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Still UND at 9 weeks post treatment  Go for 12 week POT next Tuesday.  Posted about my fire under my Merck trial heading.

SuziQ 



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Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR
Zlikster


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congrats Suzi :)

it's amazing how quickly body can recover from Riba accumulation and how fast energy levels get back (i bet it's corleated with Hgb/oxygen levels). Hope you are enjoying your hcv free life! Next goal SVR12/24!

best



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GT 3 dg. 08-2012 / FibroScan: 5 kPa F1 / FibroTest: F0-1 A1 / SoC TX: PegInt 120mcg+Riba 1000mg UND from w8 relapse EOT+4w
01-2016 Sof+Dac+Riba UND from w8, SVR24!
hrsetrdr


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Hi SuziQ,

I'm glad to hear that you are feeling better, best wishes to you for your post tx future!

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"hrsetrdr"=Tim

Treatment halted on Aug.8,2012 due to vision problem.  6 month post tx labs

Aug.2013 SVR

Be strong when you are weak, brave when you are scared, and humble when you are victorious.
- Unknown

 

 
LTChaos


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Suziq I have been following your posts & am so happy to hear this! You deserve it!!  Maybe it's the Riba, but I am tearing up over here 



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GT 2  VL on 10/23/13 7.2 Million; AST 55;ALT 79;AFP 3.2; Started 12 weeks Riba/Sovaldi 2/2/14 - Results Undetectable at 12 weeks!  
Loopy Lisa


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That is great stuff and wow at 79 you sure are an inspiration. I hope you have a wonderful, energy filled future :)



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Genotype: 3b

VL.�over 15, 000 000

Failed TX 2014: Interferon/Riba.

Cured using Sof/Dak combination.

I can eat cake again! <3 
mallani


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Hi SuziQ,

Congrats and you're well on the way!  Inspirational stuff! Glad you're feeling better and we look forward to the next good news. Cheers.



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Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
Matt Chris


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Hey Suziq

Super congrats on the SVR 4, its been real interesting to follow your trial. The Mercks combo certainly will be a great treatment for GT1's hope it gets fast FDA approval. Thanks for encouraging all our members who have considered entering HCV trials you have been a real plus in giving real world advise.

Pulling and hoping for your next 8 weeks to be successful.

matt 



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"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
Cinnamon Girl


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Hi SusiQ, congrats on on your SVR4!  So pleased to hear how much better you`re feeling now and thank goodness the stomach pains have cleared up, all very good news!  Amazing what a difference it makes once the virus has gone and the meds are out of our systems, that`s when you can really see how worth while it`s all been.

Thanks for sharing this, you`re an inspiration to us!  smile

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
suziq


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RE: Merck trial Post treatment 4 weeks post treatment UND
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Well, just got my 4 week post treatment call.  Still UND!!!  Enzymes 29 and 34.  My HGB is back up to 14.2.   And I am finally feeling better this last week. No more stomach pain.  Sure miss my naps.  Go lie down and sleep about 20 minutes now.  Have done 2-3 hour naps for a number of years.  It is not so much more energy as it is more stamina.  And a general feeling of well being.  Guess the riba is mostly gone. 

I feel incredibly fortunate to have gotten this trial and feel the way I feel now at the age of 79.  I can tell a difference from the way I have felt for a number of years.  Since I had no real pain from Hep C, I thought it was not affecting me.  But with no virus for over 4 months running around in my system (or pills or riba for one month), I can tell a difference.  Just hope for no relapse.  My coordinator said she has not seen a relapse at the center past week 4, but that most of her info was on Gilead trials.  Merck will be doing another Phase 2 trial in a few weeks.  Think she said it is for 1B--didn't say why only 1B. I am 1A.  I get more hopeful each time I get a UND.   

These new meds are really amazing !!!!!

Suzi Q 



__________________

Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR
Matt Chris


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RE: Merck trial Post treatment
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Hello Suziq

Sad the hear your still having the stomach issues. Have you isolated the cause, food, this years flu, or other causes? Has your study doctor helps with any suggestions?

Most of the time after so many years of living on the planet we kind of get a intuitive sense of what has caused it. Perhaps your body is adjusting to not having to deal with the HCV anymore, whatever it is you will stabilize and feel better real soon.

matt   



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
mallani


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Hi SuziQ,

Sorry to hear about the gastro problems. Stay in bed and relax after what your body's been through. You guys in the Northern Hemisphere are having it tough. I'm trying to decide whether to play golf today as the forecast is 37C. I don't handle the hot weather as well as I did. Good luck for the VL, but I suspect you won't need it. Cheers.



__________________

Geno 1b, IL28B CT,  x3 prior relapser,  ex-cirrhotic, 75 yo, did 48 weeks with Victrelis/Peg./Riba.  VL 1.28m at start, UNDET. at 8 ,12 ,16 ,24 ,30  and 48 weeks.  EOT 15 Feb 2013 , UNDET. at EOT + 28 weeks. SVR!  Still Undet. at EOT +5 years

Malcolm
suziq


Senior Member

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Posts: 327
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I was supposed to go for week 4 EOT labs today, but it is postponed until Thursday due to possible ice storm. 

I spent the first 2 weeks EOT in bed most of the time. Bad gastro problems last few weeks of tx and they got worse after EOT.  Another trial participant posted me privately that she was having similar problems. She was still UND at week 4 EOT labs.  I am finally beginning to feel better.  Still have very little energy.  Felt good for most of treatment. 

SuziQ    



__________________

Geno 1A  Age 82 Treatment naive Cirrhotic Told I had liver disease in 1966. Diagnosed as Hep C 1999.Started Merck clinical trial with Riba on 9/9/2013 Week 1 and 2 <25  Weeks 4, 8, 12,16,18 UND.  EOT Jan 14,2014  EOT +12 UND   JULY 1 2014 EOT+24= SVR
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