Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> New Members Area -> New member
Post Info TOPIC: New member
maddie


Senior Member

Status: Offline
Posts: 210
Date:
RE: New member
Permalink  
 

Welcome, Carrie.  So glad to hear your doc is prescribing this protocol for you.  It knocks down the VL so quickly. I have just over a week to go.  Side effects for me have been minimal.  And it appears to be the same for most of our community on these two drugs.  Have you heard yet if the Olysio has been approved? 



__________________

Dx. 2005-liver bx.: stg 2/gr 1. at that time  - GT 1a multiple transfusions in 1981.  Started Sovaldi and Olysio 1/16/14  (No prior treatments) Q80K present.  UND week 4,8 and at EOT.   UND at wk 4EOT, Und at wk 8EOT  SVR 12!!!..SVR 24 :-)
Hep-C Dragon Slayer


Veteran Member

Status: Offline
Posts: 73
Date:
Permalink  
 

Hi Carrie,

   Welcome to the group.  I hope the Olysio get approved for you soon.  The two DAA are very powerful and show good results quickly for us.

   Is your doctor also adding Ribavirin to the meds combo ? 

I have heard of a few others in other HCV forums that are only on the combo, seems that the Gastro docs are now considering the combo without Riba and or Interferon.

I just completed 12 weeks and was UND from day 18.  and I hope to soon to report SVR results.

Before you know it, you will be doing the same.

 

Stay strong and good like with your fight.

 



__________________

GT 1A:  VL: 4,695,000, started treatment 1/6/13 with off label Sovaldi/Olysio/Riba     No Interferon due to Sarcoid  in liver and lungs.  Recent biopsy shows Cirrhosis level 5/6.  EOT 3/30/14. SVR 8 on 5/30/14
Groupergetter


Guru

Status: Offline
Posts: 796
Date:
Permalink  
 

Hi Carrie, I guess we can welcome each other  smile  I too am a relative newcomer to the forum.  I started treatment on the Sovaldi/Olysio just over 3 weeks ago.  No need to be scared about starting on these meds.  The side effects are nothing compared to the interferon/riba, and the SVR/cure rate is high.  Glad you are about to get started. Hope the treatment goes well for you, and SVR is in your future. 



__________________

1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
CarrieR


Member

Status: Offline
Posts: 5
Date:
Permalink  
 

Thank you. I am glad I found this forum. It already helps to see that I am not alone.

__________________
Carrie
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hi Carrie, welcome from me too, good to have you with us.

Just want to wish you all the best of luck with getting your insurance approval for Olysio, you must be eager to get started now, and I hope it doesn`t take too long. 

You`ll soon feel at home here, this is a very friendly and supportive group.  Everyone is happy to help so do feel free to ask any questions, and note that we have a `Search` box at the top of the page.

Good luck, and keep in touch!  smile

 

 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
OldenSlow


Senior Member

Status: Offline
Posts: 380
Date:
Permalink  
 

Hi Carrie,

Welcome to the forum. Hoping you'll stick around and keep us updated on your progress. ;)  Approvals can take awhile. Some go smoothly, others don't. Rest assured it will be worth the wait. They are remarkable drugs and feedback from those on therapy has been overwhelmingly positive. I'm guessing you are genotype 1, given the prescribed combo?

Once your scripts are approved, be sure to stay on top of the refill process. This is very important! We have members who have had troubles with refills as they move through treatment. It's driven by the cost/coverage issues of the new meds. It doesn't seem to affect everyone, but play it safe anyway. Ask any questions you may have about that and we will be sure to answer. Best of luck to you.

wayne



__________________

66 y/o male - Geno 1b - F4 cirrhotic dx 2001 - 16 wk treatment w/ Sovaldi/Olysio/Riba - Und @ EOT+24 SVR

 
Rybronco


Veteran Member

Status: Offline
Posts: 79
Date:
Permalink  
 

Hi Carrie,

I was biting at the bit to get mine approved. Finally, it came. Stay strong and steadfast, but most of all stay patient.

Welcome!



__________________

49 yo. G1a prior tx 2005 with peginf and RIBA 12 weeks dc due to side effects. vl 7.8mm Current tx Sovaldi/Olysio 12 weeks started 2-21-2014,  UND at 4 weeks, EOT+12 SVR
Richstar


Member

Status: Offline
Posts: 26
Date:
Permalink  
 

Carrie you will see results so fast. My VL was at 8million on Jan 1st, two weeks later it was 383. I was up and around and even cooking everyday, my wife loved it. she did the dishes tho :o) These meds kick butt.



__________________
Fireman Rob


Senior Member

Status: Offline
Posts: 334
Date:
Permalink  
 

Hi Carrie,

I'm sure you have seen all of the great information on this forum.  It's sounding individual specific on time frames.  Some people are getting the meds approved in a few days, some in a few weeks.  The important factor is you have been approved for the Solvaldi as that is the backbone to the new, and very successful treatments.

There are many people on this site that have and are helping me navigate the path to SVR. 

Good luck and welcome to the forum.

-Rob



__________________

Age 33, Male. GT-1 for ten years. Diagnosed in March, 2014.

Treated with Sovaldi/Olysio: SVR 24 on February 16, 2015!
CarrieR


Member

Status: Offline
Posts: 5
Date:
Permalink  
 

Hello all. I am new at this and look forward to sharing my experience with the new drugs. Savaldi just approved me got my letter today. Now just waiting for olysio. My doc just started working with them. I am not sure how long it will take but savaldi took about 3months. I really hope it will be soon so I don't have to start over as I feel like crap everyday.

__________________
Carrie
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> New Members Area -> New member
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.