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Hep C Discussion Forum -> Post Treatment -> RIBA rage!
Post Info TOPIC: RIBA rage!
Huey


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RE: RIBA rage!
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The 24 weeks is a long haul, i know I'v been there, i stayed away form my grand kids because I didn't won't to snap at them, It is difficult, hang in there,

We are all in this together Keep your stick on the ice.'Red Green Show"



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  HCV Genotype 3a , now Psot-Tx was on S/riba. First VL was 5.8 mil on 7-5-13 then "und" at 3.8 weeks. 06/13/14 still und. off meds 3 days back on 7/29 Last pill 08/10/14 SVR+4

 
thepoet


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Thanks guys. I have truly been overwhelmed since my mom got sick on Mother's Day weekend. I've been in SC three times since then. I have had to make so many difficult decisions because I have no brothers and sisters. My daughter and aunt are there for her while I'm here in NY. Being on the meds makes me tired, but while I was there recently, I had very little rest. I was under so much stress trying to prepare the house for her to come home. While doing all of that, she was questioning why I wasn't sitting with her at the hospital like I normally do. What I'm trying to do is help my mom while keeping my life on track. I've discovered that every time I conquer a difficult situation and say that was the hardest thing I've ever had to do, the next experience is even harder. The good thing that I know is that this too shall pass. This is another season of learning, of sadness, tears, adjustments and eventually renewal.



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DJ...dx 2005...geno 4c...twice interferon/riba failure....completed 24 weeks Sovaldi & Riba on 10/18/14....SOT VL 600,000 after 16 days VL <43. Day 45 <43 again. Day 59...8 weeks UNDETECTED.

Happy and grateful to God for new life....
Tig


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It will be a great day when we can remove Riba from the equation. I had several months of a Jekyll and Hyde personality, it's real and it's not fun at all. I took an anti depressant while on Tx and I'm sure it helped keep me in some sort of check. If you feel it getting out of hand, please tell your doctor or nurse and see what your options are. Find the triggers that not only set you off, but find the things that start your water boiling and learn how to turn the burner down to a simmer. As long as there is Ribavirin, there's going to issues like this and learning how to deal with it is your best answer in my opinion. To not try, is a sure way to guarantee continued irritation and moodiness. I found relief through medication, meditation and an acute awareness of those things that triggered the ugliness we all know as the "Rage". It's also a great idea to do what we're able to do here, TALK! Being able to talk with my friends here, the people that know full well what it's like to feel that way, is an excellent way to defuse a potential blowup. If we can help, please let us know what's on your mind and we might be able to put you back into the happy place Ribavirin took away. Let's try okay?

Tig

PS: Prayers are on the way!  



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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lilbit


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Glad to hear about this. I am only in week 2 of Topaz II with RBV and grouchy beyond belief. lol now that I know it is just a side effect it will be easier to deal with.

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64 yo Diagnosed in 1991 with Hep C, Genotype 1a, VL close to 16,000,000, Tx Abbvie Topaz II 9/5/14, Wk 2 and 4 und. End of treatment 11/27/14 undetected.  EOT+4 und  EOT+12 und.  EOT+24 und CURED, EOT +52 now I feel really cured.
thepoet


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So I am now into week 20 of 24, and while the other sides have subsided or been eliminated, the rage, rages on. I find that /I don't even know who I am at times. The least little thing now sets me off. As I sat in church today, I asked God to help me because I don't even want to be around me. /I have mostly been a gentle and patient soul, but now...forget it. I have very little patience. I don't know how many customer service people I have hung up on. On top of all of this, I am going back and forth from NY to SC to care for my mother and applying to grad school.  I will be moving down there in a couple of weeks. I know that I will need to set up support system when I get there. Plenty of AA and Al-anon. Please pray for me and I will pray for us.



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DJ...dx 2005...geno 4c...twice interferon/riba failure....completed 24 weeks Sovaldi & Riba on 10/18/14....SOT VL 600,000 after 16 days VL <43. Day 45 <43 again. Day 59...8 weeks UNDETECTED.

Happy and grateful to God for new life....
RonH


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Very true to find out what triggers you and try to keep a grip on the rage. I have found that in my past I open my mouth only to ask forgiveness for something I wish I wouldn't have said, If you know what sets you off, that my friend is 1/2 the battle! Keep as positive as you can and run when needed!



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Genotype 2, VL 10,000,000

Sovaldi 400milligram 1x daily Ribavirin 400 milligram 2x daily. Started treatment 8-19-14, UND 9-30-14 UND 11-12-14!
Tig


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Hey Nirmalee,

Whatever it takes my friend!! I understand exactly what you're going through, it affected me the same way. As you've discovered, when you know a situation is likely to set you off, start counting and start running for cover. It took me a month or two to really get a grasp of that and yet I still had moments when the rage won. I've got some stories that crack me up now, but at the time, I came close to cracking something else! Do whatever you have to do to avoid those situations that spawn the rage. I hope they find a drug that eliminates the need for Ribavirin, but until then it's a worthy component in the fight against HCV. Hang in there and keep up the good fight. If you need a place to vent or someone that will listen to you yell, we're here for you!

Tig

 

PS: I would've loved to have had that magic wand Harry used. It would've really helped me take care of those people that sparked my rage! I would've sewed a few lips shut had I been given the opportunity, ha, ha!!!



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Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Milliganus


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HaHa.......good thing I'm not taking Riba....I've had both these "issues" before treatment!

 

Remember, this too shall pass!   smile



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Marcy

Long-term HCV, GT1a, IL28B C/T, T/G;  VL 2 mil.  Merck C-Edge Clinical trial  EOT 10/01/14. +24= UND
dragonfly


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I have to remember to count to at least 200 before opening my mouth and by then I can't remember what it was that wound me up. Which is worse - memory loss or nastiness?  I'm keeping a low profile and watching Harry potter which always cheers me up.

N



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