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Hep C Discussion Forum -> On Treatment -> WHEN THE TRAIN FINALLY REACHES ITS DESTINATION - THEN WHAT? PARTY PARTY ??
Post Info TOPIC: WHEN THE TRAIN FINALLY REACHES ITS DESTINATION - THEN WHAT? PARTY PARTY ??
Brian1412


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RE: WHEN THE TRAIN FINALLY REACHES ITS DESTINATION - THEN WHAT? PARTY PARTY ??
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wow , everyone looks different when I am on my laptop.  Bet you can understand  me better not on the dumb smart phone right? I can actually type.. just not on alleged "smart" phone.



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Brian1412


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All are welcome !



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Rubye


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Maybe Gilead would pay for an ad with Hep C survivors as a cast having good clean fun in Las Vegas. Is that oxymoronic though? 



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UNDETECTED 5/4/15 - 16 weeks after EOT, 1st treatment - Sovaldi and Olysio, Geno 1a, 67 year old with compensated cirrhosis, over 40 years with HCV.
Brian1412


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Cruises are very inexpensive. This time of year

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Brian1412


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Ah....i dont think Gilead. Would chip in

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bubble


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St. Somewhere.  I'm in !!!!!



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60 yrs. Geno1b 2001. 9mil. VL. �Failed Post Riba/Peg tx. 2006 46 weeks. Diagnosed 1A 2015(?) F3 fibr. 225k VL. Vikera/Riba 12 weeks 3/20/2015. "Undetected" start to finish. Undetected 1yr post tx.
Tig


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Gracie,

That Rocky Mountain train trip across Canada is on my bucket list! I once took Amtrak from Pittsburgh, PA  to Spokane, WA. I reserved one of the private two room sleeper apartments with a big picture window and all I can say is WOW! The scenery is like nothing people will ever see unless they are able to take that route. Going through the Montana Rockies was incredible! If I could manage it, I'd get everyone here onboard that train. What a way to celebrate all of the successes here! 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Gracie


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Ha ha... We could go on a train ride together... They do these wonderful train rides through the Rocky Mountains here in Canada. Breathtaking scenery. 

I'd always be up for Vegas though. Even a cruise would be awesome! 

This could be pretty fun! 



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
Brian1412


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Ft lauderdale ...

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shadow10cats


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Well now that's more like it!

And I agree maybe Gilead should help out.  After all what awesome advertising for them to have a convention hall filled with people cured on their drug.

I will contact them.

My mom told me "it never hurts to ask anything; the worst that can happen is they say no & you are no worse off than before"

She also said "if the wind gets too strong - put some rocks in your pockets" lol

 I learned far to late in life just how wise my mom was.



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Diagnosed 10/04 / VL 12.7 M / Genotype 1b - Grade 2, Stage 1 / 2007 -Pegylated Interferon & Ribavirin - Stopped Due to Sides / 2011 - Telaprevir, Interferon & Ribavirin - Stopped Due to Sides / APR 2015 - COMPLETED HARVONI So Far Undetectable :) 
Bills


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Ok Maybe its a stretch  but  What about VEGAS  And You can take a train

There are plenty of hotels and many places to rent a banquet room and easy flights anywhere in the US  Average flights like NY to LAS Vegas per person $400.00 only 6hr  drive from LA   then 10-12 hrs you be as far back as Denver Colorado ( Not a winter trip ) Who don't like Veags? Plenty of other things to do Shows, Rides Swimming pools, Restaurants you can helicopter to the Grand Canyon, Skydive  Of course you don't have to do any of that but you can.

Warning it is an adult playground so if have vices that you haven't tackled yet maybe not such a good idea LOL 

https://www.youtube.com/watch?v=gOoKzw3JSCM

Thank You thank you very much

Bill S

 

 

 

 

 



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

Gator Man


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If you don't mind an S/O guy from an earlier train, I'm in and a cruise or something else in warm weather would be fun. I would love to meet everyone. 



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Geno 1b, compensated cirrhotic, 54 yo, prior null responder. Pre tx VL approx 595,000, tx with Sovaldi/Olysio (no Riba) started 1/8/14. VL 40 @ 2 weeks, UND @ 4 weeks. Still UND @ EOT + 1 year.

Gator Man SVR12, Dragon 0, Final Score.
RudiRoo


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Tig, that's a great idea!

Then I could meet you all on Magen's Bay - that's where all the tourists go and I don't know of a caribbean cruise line that doesn't stop here. I would love to meet you all!



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Hep C since 1982, GT IL28b CC, tx naive, VL 2.5M, normal liver panel, Hepascore F-0, A-1. Sjogren's, Hashimoto's, Raynaud's, etc. SOT S/O 12 wk tx on 10.28.14. EOT 1.19.15. HEP C FREE AT LAST! 4.29.15
beingsassy


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I would go if possible. I think we could all use a celebration.

gigi



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genotype 2 completed sovaldi and ribavirin on 6/4/14. SVR on 12/3/14
Groupergetter


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This is a great idea. Depending upon where and when, I'd make it.  Would be a blast to meet and get a hug from folks on the forum.  Warmer weather is better :)



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1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
Bills


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Oo I missed it too But i wouldn't miss the meeting for anything.

 



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Bills

Harvoni started 12-12-14 for 24 wks PrevTX Geno 1 stage 3 cirrhosis - non resp Int/ ribv. Started Trial  in Aug 2011 -July 2012 into Incivek relapsed  Feb 2013 Had 72 weeks on interferon & Riba.

Mugsy


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Gilead should fund a cruise for us!

 



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62 y/o F     Genotype 1b  for 40+ years    cirrhosis    Started Harvoni  on 11/23  for 12 weeks       UND  12/22/2014     Ended treatment on Feb 15th.

12 week's EOT viral load      <15 
Tig


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Wow!! I missed your post too BJ, sorry about that:(. There's definitely a party atmosphere brewing for this train's arrival!! How about we take the train to Ft. Lauderdale, FL and we take a Carribean cruise? Now that would be a party!!! WOOT!

Tig



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Ro


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Hey BJ.

I thought it was a rhetorical quest...

It would make an interesting gathering

Ro

 



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Cinnamon Girl


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Hi BJ, oh I`m so sorry no-one has replied to you!

I think it`s a great idea for people riding the Harvoni train, or on any other treatment journey, to try and get together afterwards to celebrate and party!  It would take a bit of organising with people living so far apart but I`m sure it could be possible for some at least. 

Thanks for coming up with such a lovely suggestion! 

 



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Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
shadow10cats


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Not ONE reply - that has to be a first lol!

Guess maybe I should have went to bed a little earlier.

Oh well I thought it was a good idea. But then as the saying goes "Good ideas are common whats uncommon are people wholl work hard enough to bring them about." 

or maybe this one fits better: It all starts with a tiny, stupid idea, then one thing leads to another, and suddenly you have a really huge, stupid idea!" giggle.gif

 



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Diagnosed 10/04 / VL 12.7 M / Genotype 1b - Grade 2, Stage 1 / 2007 -Pegylated Interferon & Ribavirin - Stopped Due to Sides / 2011 - Telaprevir, Interferon & Ribavirin - Stopped Due to Sides / APR 2015 - COMPLETED HARVONI So Far Undetectable :) 
shadow10cats


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Wouldn't it be neat if, say a year from now; maybe less we had a get together somewhere nice?  It could happen if we got enough interest and got some folks on board to help organize it.  Maybe  & this might be a stretch but there's a possibility, however slim, we could get Gilead to help too. After all most of us are being cured by their drug/s.  I have friends, that for years go to a convention for twins.  How hard could it be to organize something?  I have some experience & I bet there's a slew of talent out there between all the other members.  I just think it would be a kind of nice ending to a long journey that many have shared together but only online. I am pretty new but I can tell some of you have known each other for quite awhile. Wouldn't it be great to finally meet in person as healed people?  I don't know,  give it a thought and if anyone thinks it might have some merit let me know.  Of course it would all depend on the amount of interest and how many would show. I don't even know how many members this site has or if there's connections to other sites.

 Maybe I better just go to bed ! sleep.gif



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Diagnosed 10/04 / VL 12.7 M / Genotype 1b - Grade 2, Stage 1 / 2007 -Pegylated Interferon & Ribavirin - Stopped Due to Sides / 2011 - Telaprevir, Interferon & Ribavirin - Stopped Due to Sides / APR 2015 - COMPLETED HARVONI So Far Undetectable :) 
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