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Post Info TOPIC: Welcome!
Cinnamon Girl


Guru

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Posts: 5629
Date:
Welcome!
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Hello Jen, welcome to the forum!!

Try not to be scared, I`m sure this treatment will be so much easier for you than the last time.  I can`t say you won`t experience some side effects, it varies from person to person, but as long as you`re well prepared and have the commitment to stay the course then you should be able to clear the virus once and for all, without too much difficulty. 

By quitting your heroin use and staying clean you`ve already shown how strong and determined you can be, so try to go into this with a positive frame of mind.  And you`ll be able to use this forum for support and advice at any time. 

Could you tell us what your Genotype is, please?  That would be very helpful information for us when replying to you.  You could add that to your `Signature` line, as well as your previous treatment history and the one you`re about to start. 

Also, I wonder if you`d mind starting your own new thread, just click on where you see `Start a New Topic` at the top right hand side of this thread, and then I`m sure you`ll have other people replying to you and sharing their experiences. 

I`m glad you`ve found us, keep in touch and we`ll be with you throughout your journey...  smile

 

 

 

 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Jvand2b


Newbie

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Posts: 3
Date:
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Hi all,

My name is Jen. I contracted hep c back around 2003, during my years spent in heroin addiction. I got clean in 2008 & in 2010 went through interferon. It worked too for about two years. In 2012 my swelling in legs, feet, & hands came back so I'm figuring that's when it came back. I was in denial & just didn't want to believe I'd have to go through another treatment. It was horrible. The Ribavirn gave me a migraine.

starting Ribavirn & sovaldi this month & im so scared after reading the side effects. With any medication, if there's a side effect I get it.

just wanted to ask about others experiences & how bad it truly is.

thank you

jen



__________________
Jenn
Cinnamon Girl


Guru

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Posts: 5629
Date:
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Hi Cuddie, welcome!

So sorry to hear you relapsed after your treatment with Sovaldi and riba, I can imagine what a disappointment that was for you.   Don`t give up though, you`ll be able to retreat and clear the virus, we have others here who have been in your situation. 

Would you mind telling us what Genotype you are, please?  That would be very helpful for us when we reply to you. 

Please feel free to start your own new thread for us to continue our conversation with you...just look at the top right hand side of this thread, and click on where it says `Start a New Topic`. 

Looking forward to hearing more from you, you`re not alone now you`ve found us!  smile

 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
coolheat


Senior Member

Status: Offline
Posts: 209
Date:
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Hi Cuddie, glad you are here or back. Sorry about it coming back. Has happened to other also. Great place to get support and loads of good info.. Have a seat on the train and relax.



__________________

65 YO F, GT 1a1b, ast 14 alt 21, fibrosis 3/4 DX 1968 non a or b, TX 12 wks Harvoni, SOT 6.1.15, 1st bld wk: detected unquantifiable EOT 8.28.15 detected unquantifiable, 3 mo.EOT mid Nov.~SVR 12: ) UNDETECTED
Groupergetter


Guru

Status: Offline
Posts: 796
Date:
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Hi Cuddie, and welcome.  You'll find this is a great forum with very special people.  :)   Sorry to hear about the relapse.  I know how difficult that can be.  It's hard to get your hopes so high only to have them dashed. 

I relapsed on the Sovaldi/Olysio and just reached SVR after 24 weeks on Harvoni.  I did have early stage varices but hoping this will improve.  How soon will you start the new tx?  Do you know which meds are planned?  There are many knowledgeable people here, all very glad to share and lend support.  You've found a very special place. Hoping the best for you.  As Jill said, you may wish to start a new topic/thread, or simply post in one of the existing threads.  Be well.



__________________

1b  Int/Riba relapse @ 48 weeks.  Stop tx Peg Int/Riba 12 weeks ill. Relapse S/O 6/23/14 :(   Started Harvoni 11/12/14  EOT 4/28/15.  EOT+4 UND :)  SVR! 8/4/15  :)     Thankful for every morning.
cuddie


Newbie

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Posts: 2
Date:
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Hello,
I am a 60 year old lady that just recently relapsed on Sol/ Rib. I was on this combo for 24 weeks, but relapsed 3 months after stopping it. Wow, so expensive for someone that was a non responder. I have advanced Cirrosis of the liver and have problems with esophageal varices and have had bands to tie off bleeding veins. Now they are looking at another treatment. Anyone else here in the same predicament?



__________________
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink Closed

Hi and a warm welcome from the Admin Team!  We hope you will find this forum helpful, informative and easy to use.  This is a very friendly and supportive group so do feel free to start a new topic to introduce yourself and join in with the discussions if you so wish.

If you have a look around the forum you`ll find lots of useful and up to date information posted in our `Knowledge Base`, `HCV News`, `On Treatment` and other discussion areas.

Note that we do have a `Search` box if you`re looking for something in particular.  You`ll find it located at the top on each page, in the middle of the dark blue band.  Just enter a key word or two and a list of relevant previous discussions will come up.

We have a list of commonly used forum and medical abbreviations which you`ll find is very informative, and here`s the link to that...

http://hepcfriends.activeboard.com/t51085702/forum-abbreviations/

If you can`t find what you`re looking for then please don`t hesitate to ask, we`re here to help and will try to answer any questions you may have.

It`s very helpful if you can edit your `Biography` to tell us a bit about yourself, such as your genotype, treatment history and current liver status if you know it.  You can also include a few brief details in your `Signature` line which will then appear underneath all of your posts.  You`ll find both of these in your `User Details`.   Knowing a little information about you and your situation helps us a lot when we are replying to you.

We`d also appreciate it if all new members could take the time to read through the forum guidelines...

http://hepcfriends.activeboard.com/t59007208/forum-guidelines-required-reading-for-all-members/

 

Many thanks for taking the time to read this, and we wish all our members good health and a life free from Hep C!

 

With warm wishes,

Jill  (on behalf of the Admin Team...)

Mallani (Malcolm)

Tig56

Matt Chris (Matt)

Gator Man (John)

 

( Please note - This is not a medical forum and is not intended to replace qualified medical advice.)

 

 

 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
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