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Post Info TOPIC: "HCV Not Detected"!
wmlj1960


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RE: "HCV Not Detected"!
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drummerman wrote:
 Thanks Mike!

you should figure out a way to put your water pdf on as a sticky.  Very helpful.

 

dm

 I agree. It's another of Tig56's excellent information finds so let's "Sticky" it here":

http://hepcfriends.activeboard.com/t60861992/hcv-treatment-side-effects-water-hcsp-fact-sheet/

 



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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drummerman


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coolheat wrote:

Drummerman! Congratulations, you're important, thanks for holding a torch high for us  !biggrin

 Thanks coolheat!

 

Good luck on your upcoming lab work!  I know you will do well.

 

dm



__________________

GT1Adiagnosed in 2007Interferon/riba2008non-responder7-25-2011 HCV RNA-10,783,000 7/6/15startedviekira/riba8/11/2015 - Week 5>15, 9/11/2015  "HCV not detected IU/mL. AST 16 ALT1110/16/16 - 2 weeks post EOT HCV NOT DETECTED AST18 ALT 14
drummerman


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wmlj1960 wrote:

Congrats on the UND Jack. Keep up the good work.

 Thanks Mike!

you should figure out a way to put your water pdf on as a sticky.  Very helpful.

 

dm



__________________

GT1Adiagnosed in 2007Interferon/riba2008non-responder7-25-2011 HCV RNA-10,783,000 7/6/15startedviekira/riba8/11/2015 - Week 5>15, 9/11/2015  "HCV not detected IU/mL. AST 16 ALT1110/16/16 - 2 weeks post EOT HCV NOT DETECTED AST18 ALT 14
drummerman


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Cinnamon Girl wrote:

Wonderful to hear this, Dm, congrats on your first UND result!

And please know that you certainly do deserve this, just as you deserve all of the good people along the way who`ve contributed to the process of getting you here. 

Hang on to the feeling, knowing that the treatment is working is a huge motivator even through the darkest of riba days!  smile

 Thanks Cinnamon Girl,

I appreciate it.

dm



__________________

GT1Adiagnosed in 2007Interferon/riba2008non-responder7-25-2011 HCV RNA-10,783,000 7/6/15startedviekira/riba8/11/2015 - Week 5>15, 9/11/2015  "HCV not detected IU/mL. AST 16 ALT1110/16/16 - 2 weeks post EOT HCV NOT DETECTED AST18 ALT 14
drummerman


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Penelope PePod wrote:

DM,

I'm so happy for you!  I was just thinking about you yesterday - you started viek/riba about 1 week ahead of my hubby and me, so you're kind of my 'benchmark'.  Bet you've never been called that before!

You keep up the good work until the end, cuz I'm watching you!  Congratulations!!

smile  Penny

 I've been called a lot of things!

 

Good luck with your labwork.. and keep us posted.  Must be difficult with 2 going at once...but at least you can remind each other to take pills... ugh.

dm



__________________

GT1Adiagnosed in 2007Interferon/riba2008non-responder7-25-2011 HCV RNA-10,783,000 7/6/15startedviekira/riba8/11/2015 - Week 5>15, 9/11/2015  "HCV not detected IU/mL. AST 16 ALT1110/16/16 - 2 weeks post EOT HCV NOT DETECTED AST18 ALT 14
Cinnamon Girl


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Wonderful to hear this, Dm, congrats on your first UND result!

And please know that you certainly do deserve this, just as you deserve all of the good people along the way who`ve contributed to the process of getting you here. 

Hang on to the feeling, knowing that the treatment is working is a huge motivator even through the darkest of riba days!  smile



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
wmlj1960


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Congrats on the UND Jack. Keep up the good work.



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60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

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coolheat


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Drummerman! Congratulations, you're important, thanks for holding a torch high for us  !biggrin



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65 YO F, GT 1a1b, ast 14 alt 21, fibrosis 3/4 DX 1968 non a or b, TX 12 wks Harvoni, SOT 6.1.15, 1st bld wk: detected unquantifiable EOT 8.28.15 detected unquantifiable, 3 mo.EOT mid Nov.~SVR 12: ) UNDETECTED
Penelope PePod


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DM,

I'm so happy for you!  I was just thinking about you yesterday - you started viek/riba about 1 week ahead of my hubby and me, so you're kind of my 'benchmark'.  Bet you've never been called that before!

You keep up the good work until the end, cuz I'm watching you!  Congratulations!!

smile  Penny



__________________

65;  Dx 1997 1a; VL 1.1m; TX naïve; SOT 7/20/15; 12 wks viek/riba 1200mg

09/14/15 draw: Undetected 8 wks into tx

10/12/15 draw: Undetected at EOT

01/05/16 draw: Undetected at E0T+12
drummerman


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yeah,  I know  I'm talking like its all over...

but just pretty excited.

 

I never thought I would see UND at any point.

 

dm



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GT1Adiagnosed in 2007Interferon/riba2008non-responder7-25-2011 HCV RNA-10,783,000 7/6/15startedviekira/riba8/11/2015 - Week 5>15, 9/11/2015  "HCV not detected IU/mL. AST 16 ALT1110/16/16 - 2 weeks post EOT HCV NOT DETECTED AST18 ALT 14
drummerman


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Matt Chris wrote:

Hey Jack

Way to go! This is a day that you will learn to cherish (UND). What it means physical is just as as important as the mental part. This is a great sign because your body is responding  to the Meds correctly and cleared your blood of the HCV, its a really big step but now its on to phase 2 of your treatment, finding the remaining spots within your liver and other areas of the body that replicate the virus and stoping them. Thats why its important to stay 100% compliant for the full 12 or 24 weeks of treatment because this HCV is a very stealthy tough SOB and we / you will not give it any chance to mutate to a resistant form of the virus by the consistent pounding of the meds.

BTW Jack are you doing 12 weeks or 24 ?

Nice to read of your feelings on your HCV journey.

matt       

 Doing 12 weeks.  Staying 100% compliant!!!

thanks,

dm



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GT1Adiagnosed in 2007Interferon/riba2008non-responder7-25-2011 HCV RNA-10,783,000 7/6/15startedviekira/riba8/11/2015 - Week 5>15, 9/11/2015  "HCV not detected IU/mL. AST 16 ALT1110/16/16 - 2 weeks post EOT HCV NOT DETECTED AST18 ALT 14
drummerman


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Gracie wrote:

Matt is correct. Everybody clears during, it's after you stop when it could (small chance) come back, so be very diligent with your meds throughout!  It's a huge first step, but more steps to go.

 yep, staying diligent!

 

dm



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GT1Adiagnosed in 2007Interferon/riba2008non-responder7-25-2011 HCV RNA-10,783,000 7/6/15startedviekira/riba8/11/2015 - Week 5>15, 9/11/2015  "HCV not detected IU/mL. AST 16 ALT1110/16/16 - 2 weeks post EOT HCV NOT DETECTED AST18 ALT 14
drummerman


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yep, thats my new fear.... relapse.

 

dm



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GT1Adiagnosed in 2007Interferon/riba2008non-responder7-25-2011 HCV RNA-10,783,000 7/6/15startedviekira/riba8/11/2015 - Week 5>15, 9/11/2015  "HCV not detected IU/mL. AST 16 ALT1110/16/16 - 2 weeks post EOT HCV NOT DETECTED AST18 ALT 14
drummerman


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Thanks Scruffy,

The riba cough haunts me daily.  Been to doc 3 times about it, chest x-ray, etc...... but its not painful , so not complaining...just super annoying.

 

Funny, it took 8 weeks to get really bad.

 

Staying 100% compliant for sure.... 3 more weeks.

 

dm

 



-- Edited by drummerman on Sunday 13th of September 2015 06:03:08 PM

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GT1Adiagnosed in 2007Interferon/riba2008non-responder7-25-2011 HCV RNA-10,783,000 7/6/15startedviekira/riba8/11/2015 - Week 5>15, 9/11/2015  "HCV not detected IU/mL. AST 16 ALT1110/16/16 - 2 weeks post EOT HCV NOT DETECTED AST18 ALT 14
drummerman


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Thanks Tig!

 

Staying compliant!

 

dm



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GT1Adiagnosed in 2007Interferon/riba2008non-responder7-25-2011 HCV RNA-10,783,000 7/6/15startedviekira/riba8/11/2015 - Week 5>15, 9/11/2015  "HCV not detected IU/mL. AST 16 ALT1110/16/16 - 2 weeks post EOT HCV NOT DETECTED AST18 ALT 14
Tig


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Great news Jack! The good news just keeps pouring in around here. Keep up what you're doing, it's working!  

 



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Tig

68yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

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Scruffy


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Those words (undetected) are great to hear esp. for your moral. They make the riba a little easyer to take. Hang in there and be 100% compliant for the rest of your TX.

CONGRATZ!!!!



__________________

Geno 1a null responder 2004 inter/riba   finished incivek,peg/riba 48 weeks May 17th 2014. undetect weeks 4-12-32.  EOT+7 undetect. EOT+24 SVR!!!!! EOT+!YEAR SVR!!!!
Gracie


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Matt is correct. Everybody clears during, it's after you stop when it could (small chance) come back, so be very diligent with your meds throughout!  It's a huge first step, but more steps to go.



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  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
bubble


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Your on your way Drummerman. You have excellent numbers. Stay confident and positive with that Riba.



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60 yrs. Geno1b 2001. 9mil. VL. �Failed Post Riba/Peg tx. 2006 46 weeks. Diagnosed 1A 2015(?) F3 fibr. 225k VL. Vikera/Riba 12 weeks 3/20/2015. "Undetected" start to finish. Undetected 1yr post tx.
Matt Chris


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Hey Jack

Way to go! This is a day that you will learn to cherish (UND). What it means physical is just as as important as the mental part. This is a great sign because your body is responding  to the Meds correctly and cleared your blood of the HCV, its a really big step but now its on to phase 2 of your treatment, finding the remaining spots within your liver and other areas of the body that replicate the virus and stoping them. Thats why its important to stay 100% compliant for the full 12 or 24 weeks of treatment because this HCV is a very stealthy tough SOB and we / you will not give it any chance to mutate to a resistant form of the virus by the consistent pounding of the meds.

BTW Jack are you doing 12 weeks or 24 ?

Nice to read of your feelings on your HCV journey.

matt       



__________________

"And in the end, the love you take is equal to the love you make"

61 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! 
drummerman


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malekula man wrote:

Congrats!

 Thanks malekula,

 

hang in there.

 

Even better meds on the way

dm

 



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GT1Adiagnosed in 2007Interferon/riba2008non-responder7-25-2011 HCV RNA-10,783,000 7/6/15startedviekira/riba8/11/2015 - Week 5>15, 9/11/2015  "HCV not detected IU/mL. AST 16 ALT1110/16/16 - 2 weeks post EOT HCV NOT DETECTED AST18 ALT 14
malekula man


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Congrats!

__________________

G1b, stage 4, cirrhosis

Harvoni Tx: Jan-Jun 2015 for 24 wks, SVR12, SVR24

PrevTx : relapser, Sovaldi +Peg+Riba for 12 wks, Jun-Sep 2014

My thread
drummerman


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I never thought I would see those words on my lab reports.... but there they are...I am in shock and it has still not sunk in... it seems like a dream.   I never believed that I would see the results I'm seeing in my lifetime.  And even better tx is on the way!

So much gratitude to all those that blazed the trail, the research hospitals, the people that went through all of the trials....my original pharmacy nurse advocate, who got me authorization, even though my own insurance company would not let me use her pharmacy.  What a battle.

My boss , that gave me the one semester off for interferon/riba tx...WITH PAY!

And let me take the day off when I felt too bad to go in on round 2, which was only about 4 days so far, but still, he was so understanding and said " we will work with you  on this".  You are my hero!  Pretty ironic cause I had him in class 15 years ago, now he is my boss. .... lol.

You are my heroes.  

 

I do not deserve any of this and if I could give UND  to any of you on this forum , I gladly would.

 

Now..... the people who are not my heroes >:(... you were the ones that gave me a hard time on the phone,   you were the ones that treated me like I knew nothing about this virus,when in fact I knew more than you...I studied hcv for 9 years  and learned all I could from the internet and books, and would have learned even more except my chemistry sucks...(music major, lol) .... you were great at reading pamphlets, but that was about it. (that being said, I never had a specialist, only gastros...and I swear I would have done just as well with my gp.... but I could't talk him into it...but I almost did.

 

Non-heroes... YOU know HCV has a certain stigma,  please show a little compassion and know all you can know about hcv and tx.  Hope I don't sound bitter , but I had to fight with many who seemed to be unqualified to deal with the intricacies of this virus and tx.

 

Now just got to get to the 12 weeks check and then they do a blood draw in a year??

Guess I could read the pamphlet.   lol.

 

ps - I mysteriously acquired what I call the "smart people phone #" for the largest online pharmacy in the u.s..... Also the most difficult one to deal with.  If you think you are using this pharmacy, feel free to pm me and I will give you this phone #.   This is NOT the phone # you see on their web site....(of course).... and what a crappy website....I quit using it as it cause more problems than using the phone..I think it was designed by a junior high computer tech class.... pathetic.  Which sucked cause everytime I had to talk to a rep... I physically got nauseated , it was bizarre, and I hated talking to them on the phone....until I got the "good" phone #!!!

 

sorry to blather on... its the 3 riba crankin' me up.

 

Now I know the bottom line is (at this point I am UND), that being said, maybe I am being too hard on the my non-heroes.  But did you have to make it so hard???

 

dm



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GT1Adiagnosed in 2007Interferon/riba2008non-responder7-25-2011 HCV RNA-10,783,000 7/6/15startedviekira/riba8/11/2015 - Week 5>15, 9/11/2015  "HCV not detected IU/mL. AST 16 ALT1110/16/16 - 2 weeks post EOT HCV NOT DETECTED AST18 ALT 14
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