Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Post Info TOPIC: Viekira Pak Long Term Side Effects


Guru

Status: Offline
Posts: 5629
Date:
Viekira Pak Long Term Side Effects
Permalink  
 


Hi Whitney, welcome to the forum!

I can well understand your frustration still feeling as you do at 12 months post end of tx.  I think we all expect to be so much better once the virus has gone, whichever drug treatment we`ve done, but unfortunately a lot of people find that they have lingering side effects or health issues for quite a while afterwards.  Ribavirin takes about 6 months to fully clear from your body, and sometimes the insomnia and fatigue can take even longer to resolve. 

You were on some very powerful medicines and so I would give yourself more time to fully recover.  In the meantime take good care of yourself by eating a good diet, drink plenty of fresh water, and as Bubble suggested... take frequent moderate aerobic exercise.  There are also various things you can do to help get a better night`s sleep, for example having a cut off time for drinking coffee, not eating a big meal too late in the evening, and practising some form of relaxation before bedtime.  If you can get your sleep pattern back under control then it`s quite likely your fatigue will improve too.

Best of luck to you, and well done for taking part in the Abbvie trials.  You didn`t say, but I`m assuming it was successful in your case, and that`s something to be very happy about.  smile

 

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 



Senior Member

Status: Offline
Posts: 236
Date:
Permalink  
 

Everyone is different. I look at my moodyness as an sx. Although it has tapered off a bit at 5 month's off. My sleep habits have greatly improved. No real complaint of insomnia. I suggest highly a change in your routine - like exercise. Even walking for the fresh air. Remember you have a whole new life ahead so open a new door.



__________________

60 yrs. Geno1b 2001. 9mil. VL. �Failed Post Riba/Peg tx. 2006 46 weeks. Diagnosed 1A 2015(?) F3 fibr. 225k VL. Vikera/Riba 12 weeks 3/20/2015. "Undetected" start to finish. Undetected 1yr post tx.



Guru

Status: Offline
Posts: 915
Date:
Permalink  
 

you as a 1a geno type , i would think your treatment was 12 weeks viekira pac with riba.

The S/X your talking about are the result of long term riba exposier.    Insomnia and fatigue are both bad sx fron riba.  the fatigue should get better soon after your HG goes up. the insomnia  takes a little longer to release its grip, could take 6 months or more, because the riba hangs on a long time in your system.     RC



__________________

 M-64) 3 Treatments)( SOF-RIBA 2014)(SOF-RIBA-PEG 2016)(HCC 2016) (LIVER TRANSPLANT 8-2017)(VOSEVI-RIBA 2017)   SVR-12. 3-13-18   



Newbie

Status: Offline
Posts: 1
Date:
Permalink  
 

I am nearly 12 months post treatment and am still working through the residual effects of this medication.  I'm 25 and was infected with genotype 1a for about 5 years prior to reaching SVR.  I always thought that reaching the end of this disease would be one of my greatest gifts in life, but for months I've had really bad insomnia and fatigue.  Since ending the medication, I can likely count the full nights of sleep I've had without using all of my limbs.  I was never made aware  of side effects lasting after the dosing period and the doctors/coordinators take little interest in my side effects.  (I was actually in Phase 3 of the Abbvie study for the Viekira Pak.)

 

Anyone else experiencing lasting unwanted side effects?

 

~W

-Seattle, WA



__________________
Page 1 of 1  sorted by
 
Quick Reply

Please log in to post quick replies.

Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.