Hep C Discussion Forum

I am so lost on my situation.  Felt as if something was wrong, around 2000s computer and internet access became more available and by mid 2000s search engines of my symptoms lead me to Self-diagnosis of HepC.  

General Physician conformed this in 2004 through antibody blood testing.  Started with a Gastroenterology and we went looking for the Viral Load. First twice a year then once a year up until 2009 and for over those 5 years I was undetectable.

In 2011 I repeated my antibody test and it came back negative or non reactive for HepC.  Which from what GI doctor told me antibody test would always be positive no need to ever recheck it and the Viral Load is what's important now.  In 2014 I again took HepC viral load testing and some other testing due to all of the problems I am experiencing again it was undetectable again but my condition has done nothing but deteriorate.

Results: FERRITIN 356 (Abn: H)

HEPATIC FUNCTION PANEL:

SGOT (AST) 57 (Abn: H), SGPT (ALT) 63 (Abn: H), HCV RNA PCR QUANTITATION <15, HCV PCR LOG10 <1.18,

NASH FIBROSURE:

STEATOSIS SCORE (NASH) 0.88 (Abn:H), GGT (NASH) 82 Abn H, ALT (SGPT)/AST (SGOT) NASH 64 Abn H, CHOLESTEROL, TOTAL 225 Abn: H, GLUCOSE, SERUM 112 Abn: H, TRIGLYCERIDES 236 Abn:H

HepC antibody test in December of 2015 NEGATIVE/NON REACTIVE.

I read some other peoples issues in different forum, fatigue from things such as going up a flight of stairs or throwing a ball in the yard.  I have the same issues, loading dishes or getting tired from holding a basket walking in a grocery store.  My distended stomach even though I don't drink alcohol at all and that is the way it is whether I eat or not.  To steadily what I call losing a meal.  I went from 3 meals a day with snacking in between fine to 2 meals a day to 1 and now appetite is gone and I eat just for eating sake.

I have experienced pain in upper right quadrant, anyone who has experienced it knows what I'm speaking of.  It is comes and goes.  Diarrhea all of us suffers know all about that from foods that would never have bothered us before acquiring disease now causing immediate seeking of a toilet.  Insomnia at night, and dead tired during the day that I can't control staying awake no matter what I'm doing.  Muscle and tissue wasting, bone pain, doctors look for jaundice or yellowing in the white of the eyes but no one thinks to look at the teeth, I only noticed because I have never smoked cigars, cigarettes in my life or drank coffee consistent enough to be the cause.  I go to sleep at night only to wake up with back pain.  My bowel movements also have an odor of the food I ingest leads me to think the whole process of digestion is out of whack.  Name your symptoms I know them.

Can anyone relate to the fact that initial diagnosis was Hepatitis C but now it is that I have Fatty Liver.  People say undetectable is the goal which is what all these new treatments are achieving but I can attest that what I am suffering through is not what I would call cured.