Hep C Discussion Forum

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Hep C Discussion Forum -> Post Treatment -> Improvement After Treatment
Post Info TOPIC: Improvement After Treatment
Tig


Admin

Status: Offline
Posts: 9281
Date:
Improvement After Treatment
Permalink  
 

The first thing I thought to say when I saw your comment, was "Reborn"! Put your finger on that... smile



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Hey y'all.

I have been reading through this thread some and it occurred to me.

Two things I have not been, like I am now, in the last 40 years.

1) Rid of Hep C

2) As old as I now am

 

When I ponder those two things, it is hard for me to put my finger on how I "should" feel.

 

JimmyK

 



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Thanks Chris and Tig. I do think much is hormone related, starting to get menopause symptoms and see that doc in July. This getting old stuff is not for the birds, no spring chicken anymore. OK enough fowl references. HA



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Tig


Admin

Status: Offline
Posts: 9281
Date:
Permalink  
 

Hi Wendy,

I can relate to your situation. Toward the end of treatment, I had a lot of new energy, almost like I had found some inner speed reserve. Even with the profound fatigue and anemia, as a result from the treatment I was on, I had moments of great energy. Sadly, that was short lived and as the drugs wore off and/or their effect on my metabolism waned, so did those welcome (bizarre) episodes. I entered a repair mode after that. Once the virus is gone, the damage it caused still exists and your body is working to fix those problems. Some come faster than others. 

Years later, I'm finding things are better, but it's an ongoing project. I've got other problems I'm dealing with and a 60th birthday coming up, so some are age related as well. I was hoping for quick relief and I did see some of that, but I was infected and affected by this virus for decades. It takes it's toll on every part of our body. These issues can take time to resolve, but some may take time or not go away at all. Damage to various parts and pieces takes time to heal.

I have little doubt that you'll see welcome improvement in many areas, but it will take time to witness. You are obviously an active person and just being able to do what you're doing (now) is a testament to your drive and will. Find patience and keep up your routine. The things you're hoping for will happen on their own schedule. I find the ones that you want the most, can also be the most elusive. You'll find them, my Magic 8 Ball said so.....



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
RAGDOLL


Senior Member

Status: Offline
Posts: 123
Date:
Permalink  
 

Hi Wendy,  I am with you on that.  The only thing I can say is that I am just now starting to get sleep pattern back and I am a year and half almost post treatment.  I think between my hip surgery drugs, HCV treatment drugs and stopping hormone treatment at that time everything just got screwed up.  Plus RC's journey and stress.  So I guess it's just time and more patience to get everything back in line and I think with every birthday and age we just change.  So who knows what Normal is anymore and what we should feel like.  You might have Doctor check your hormones and  maybe thyroid.  My estrogen was low after treatment and that can cause sleep issues. Just a thought.   Take Care.  Chris



__________________

F 63,  1b  1974, no cirrhosis, fibro scan 5.8 F0-F1,fibro test .37 ,V/L 702987, ALT 90, AST 75.  ABBVIE Topaz II on 10-30-14 Viekira Pak no RIBA , EOT 1-22-15 SVR, ALT 37, AST 29, 4-15-15 SVR12 - fibro test .22,  1-21-16 SVR 52 ,  1-21-17 SVR 104! 1-21-18 SVR 3 years ,2020 5 years, 2022 7 years!
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

Does anyone have more energy than they did prior to treatment? I don't and that bums me out. I see the doc this week as I just had 24 week labs done. I am not sleeping well so that definitely could have something to do with it. I am not more tired, I still work and go to the gym, just thought I would feel better...more energy. Maybe my expectations are too high! Go figure lol. Its my expectations that always get me in trouble



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Gracie


Guru

Status: Offline
Posts: 618
Date:
Permalink  
 

From what I've read the F2 and F3 are the least accurate but both are a good place to be as improvement on these two stages are very high. It's nice to know that improvements are not only possible but likely after successful treatment. It's a whole new world.

Nice to hear from you skewed and so nice you are finally getting some improvements you notice. It was years of damage done to us, so regeneration will take awhile for sure. Good news is, it's now possible for many many more of us now.



__________________
  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
Pablito


Senior Member

Status: Offline
Posts: 363
Date:
Permalink  
 

Thanks Gracie for the description of the pings.

Next time I have a fibroscan I'll do just that and tilt my head to the side to see the scores. 

I did ask for the score after my first one, which was done recently, and it was 9.1.  I've found varying tables on the net correlating score to fibrosis stage, but this score seems to put me at just inside the F3 category.

The scan was done by the least qualified person on the trial I am on so with a little luck it may be a bit lower.  But even if it was a bit higher in reality I can live with that with all the positive post-treatment improvements I read about on this thread.



__________________

44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.
skewedButNotBroken


Senior Member

Status: Offline
Posts: 189
Date:
Permalink  
 

Way to go Gracie. I'm EOT+19 months now and I'm starting to feel cured. That is, most of my side effects are gone--very little of that LSD-like feeling and my heart flutters are about down to just 1 every couple of months. I'll take this any day over the way I felt before treatment.

 

Cheers,



__________________

Diag. with hep c in 1992; A3:F2;  GT 1a; IL28B CT; VL 900k, ALT 150, AST 100 on 8/5/2014; SOT 9/5/2014  S/O ---VL 127 after 6 days; VL detected on day 18 but < 15.; --> UND @ EOT+ 1 year SVR!
bubble


Senior Member

Status: Offline
Posts: 236
Date:
Permalink  
 

This is very good information Gracie. My local hospitals dont use Fibroscan. I have to go to Philly/Jefferson Hospital this August. It's great to hear from post treatment people how they are improving!  Good stuff Gracie. Thanks.



__________________

60 yrs. Geno1b 2001. 9mil. VL. �Failed Post Riba/Peg tx. 2006 46 weeks. Diagnosed 1A 2015(?) F3 fibr. 225k VL. Vikera/Riba 12 weeks 3/20/2015. "Undetected" start to finish. Undetected 1yr post tx.
Gracie


Guru

Status: Offline
Posts: 618
Date:
Permalink  
 

Just a quick note about the ping. When you get a fibroscan, you lie on your back with your arm over your head and they take 10 readings of how stiff your liver is. Each reading, there is a little ping thump. Doesn't hurt. As each ping happened, if you turn your head towards the screen you can see what number comes up. I felt like I was in Vegas playing a lucky slot machine... 8.8. 8.4 8.9 Then a 12.2 (yikes) 6.2 etc. The average was 8.8 which is a F2. I know the middle numbers aren't as accurate, and I'm most likely an F3 at best, but the good news is improvement! 

It's so strange this new life. Every once and awhile I just break out in a huge smile. People must think I'm going senile. And I just feel better knowing I never have to go for another viral load test, or tell a health practitioner I have Hep C. YAHOOOO.

And Shadowfax .. You hit the double jackpot! Love the good news thread. We earned this thread my peeps! 



__________________
  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
Shadowfax


Guru

Status: Offline
Posts: 681
Date:
Permalink  
 

Yes thank you Canuck,

I saw it and replied about 8 hours ago. I miss so many things here but the recent and post in the signature button helps to find things.

I hope you are feeling great and just so happy for you as well.

 

 



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Wow, lot's of good news on this thread!! smile

Hey SF!!!!, I posted you about your good news, but over/in/under "Harvoni". biggrin C.

_________________________________________________________________________________

Hey Pablo, I posted you about below, but over/in/under "I'M IN!! - Started the 8 week SOF/VEL/GS-9857 Trial". smile C.

Pablito wrote:

It does seem strange that VLs can't be given out during the trial?  Is it open label or blinded?  The only reason I can think of as to why they couldn't give them out is if participants and researchers are blinded to the arm you have been allocated to.  But then it wouldn't make sense that they would give out other blood tests like LFTs.

There'll be some scientific or practical reason why they can't give VLs, but must be frustrating for you.

 



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

Pablito wrote:

It does seem strange that VLs can't be given out during the trial?  Is it open label or blinded?  The only reason I can think of as to why they couldn't give them out is if participants and researchers are blinded to the arm you have been allocated to.  But then it wouldn't make sense that they would give out other blood tests like LFTs.

There'll be some scientific or practical reason why they can't give VLs, but must be frustrating for you.

 Greetings,

Because the Pharmaceutical Companies own the trial and it's data. The testing is paid for by them. Given the way large Corporations conduct business, my guess would be they are protecting the data from competitors.  Information is power. There is a lot of paperwork to sign when you are in a trial. Much of it is a simple matter of forfeiture of rights.

Nothing Personal. It's just Business.

 



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Shadowfax


Guru

Status: Offline
Posts: 681
Date:
Permalink  
 

Thank you once again!

I will certainly post my 12 week results but will have more labs before then to ensure things are on track. I will update in a few weeks when that is done as well.

 

SF



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
dustbear


Senior Member

Status: Offline
Posts: 230
Date:
Permalink  
 

This is fabulous news!  I read your stats and it must be great to finally move in a better direction mentally and physically.

wink



__________________

Geno 1A, since 1981. SOT 1/2013   TX stopped 11/2013 in week 45/48 due to Myositis & Interstitial Lung Disease. Completed 94% of Peg-Inter dbl TX, UND since week 4.  SVR 4/2014!  Still SVR after 4+ yrs!

"Day by day, step by step, breath by breath"
Pablito


Senior Member

Status: Offline
Posts: 363
Date:
Permalink  
 

It does seem strange that VLs can't be given out during the trial?  Is it open label or blinded?  The only reason I can think of as to why they couldn't give them out is if participants and researchers are blinded to the arm you have been allocated to.  But then it wouldn't make sense that they would give out other blood tests like LFTs.

There'll be some scientific or practical reason why they can't give VLs, but must be frustrating for you.



__________________

44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

winner winner. A double bonus round for SF!



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Sydhanrahan


Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

SF,

everything does come to those who wait. Congrats on SVR and also on amazing improvements in Alt and Asp measurements. post week 12 and another fibrous can will be the icing on the cake.

So happy for you.

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
Shadowfax


Guru

Status: Offline
Posts: 681
Date:
Permalink  
 

Thank you everybody and I do feel better now that at least I got that result. Jimmy. my lft's moving up still concerns me a bit but I will have more labs done in a few weeks and I hope to see them stabilized and not elevating because that elevation was one week after EOT. There is this nagging doubt about what transpired in that week but hoping just fluctuations.

Really this great thread needs to be inspiration for others to start TX and not put it off. Catch this A.S.A.P. and do not wait until you get sicker. Knowledge is power. Use this forums combined knowledge to muster up the courage to get it done and be healthy.

 

SF 



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Hi SF... double congrats on your double undetected results!!   w00t.gifw00t.gif   That is such brilliant news, I`m very happy for you indeed!! 

Hi Tom.. your lab results are looking great, and an improvement in memory, even if small, makes a big difference to your quality of life!  Enjoy your trip, it sounds very exciting!!  smile

Hi Cheddy... congrats on your last dose!  We`ll be looking forward to celebrating your SVR!!  smile



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
wmlj1960


Moderator

Status: Offline
Posts: 1559
Date:
Permalink  
 

Gracie wrote:
I just had my post treatment fibroscan done and it went from 15.5 to 8.8.

It's all good so keep on trucking my peeps!

 

 That's great news Gracie! And I'm glad your feeling better right along with the fibrosis regression. Keep it up and I'll continue to be "trucking" right behind you, as usual. 

========================

Shadowfax wrote:
My Signature say`s it all but here it is HVC VL RNA UND HVB VL RNA UND


That's great news for you too SF. I had a good feeling that 'B' would behave during your 'C' Tx. I'm the only one around here taking Viread and I wasn't looking to share anyway. Lol biggrin

=========================

Cheddy wrote:
I JUST TOOK MY LAST DOSE bringing a 12 week treatment of sovaldi and ribavirin to a close.

Way to go Cheddar! Congrats on making it to EOT. 12 weeks until your freedom party. smile



__________________

60 yo, geno 1a, Dx 1994 HCV-HIV co-inf, Dx 2013 decompensated cirrhosis
Tx #1 - 24wks Sov+Riba /SOT 7-24-2014/UND@EOT/DETECTED@EOT+16 wks
Tx #2 - 24wks Harvoni /SOT 7-25-2015/UND@EOT,+12,+24,+52 = SVR

Mike

How To Create Your Signature / Forum Abbreviation Definitions

Support This Forum
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

SF!

That is fantastic news. You were pretty concerned just the other day and now just look at ya!

 

WhoooooHoooo!

Congrats my friend!

JimmyK



-- Edited by JimmyK on Wednesday 18th of May 2016 08:38:21 AM

__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Shadowfax


Guru

Status: Offline
Posts: 681
Date:
Permalink  
 

Thank you Tig,

The B was undetected from the start and did not relapse in the absence of C. This was the fear and viread was going to be the drug I would have had to take to control the B. I am thrilled it seems gone, resolved. We will still monitor it just in case a few more times.

 

 



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Cheddy


Moderator

Status: Offline
Posts: 795
Date:
Permalink  
 

Thanks so much Gracie. I JUST TOOK MY LAST DOSE bringing a 12 week treatment of sovaldi and ribavirin to a close. I was glad to start, glad to finish, and am ready to recover from the cure. So thanks for the good news. I'm feeling really happy now.

__________________

GT2a, VL 681,500, Less than F1, Treatment Naive

12 wks Sovaldi/Ribavirin, SOT 2/25/16, EOT 5/17/16

UND at 2,4,8 and 12 wks during treatment but ribavirin crazy.

ALT/AST normal EOT

SVR12 8/13/2016!!!!!!!!!  I WON!!

EOT 6 Months 11/12/2016  CURED

 
Tig


Admin

Status: Offline
Posts: 9281
Date:
Permalink  
 

Congrats SF! I couldn't be happier for you! Not only one undetected, but TWO!!!!

 WOOT  



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
Shadowfax


Guru

Status: Offline
Posts: 681
Date:
Permalink  
 

Excellent News Gracie,

This is a great thread you started especially for those still sitting on the fence about tx and afraid to start as I was.

I would like to add to your great news. My EOT Lab work was done May 3rd and although my LFT`s were up a bit one week after the end of TX, I finally got this news today and needed to share it.

 

My Signature say`s it all but here it is HVC VL RNA UND      HVB VL RNA UND

I feel quite good that the B is as the hospital said, resolved as the C had been removed and it did not barge back in as we hoped. Of course now I wait 10 more weeks for my lab work and two more for results. I also had a u;tra sound done and I will get those results on May 30th. I would love to get another Fibroscan sometime after I reach SVR since mine was just so high. Any regression would be great but for now, this is great news.

 

***** Friends, if you are waiting to take these new protocols, please do it. We want to see you post something in here as well and you will. The only thing you have to fear is NOT doing it. Jump aboard the train reserved for you.

SF

 



__________________

65 yo, GT1A, , Cirrhosis, F-Scan F4 33.5, TX Naive Harvoni 12 wks

SOT 2/9/16 / ALT 187 AST 114 VL 2.3M.    POSTS

EOT 5/2/16  ALT 35/ AST/25  platlets 126 C/B VL UND

EOT +12 7/26/16  ALT 25 /AST 22/ ALP 83  platlets 129 C/B VL UND

EOT + 24 10/18/16 ALT 27/ AST 20/ ALP 71 platlets 153 C UND

 * SVR *
Sydhanrahan


Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

Movebo

this will be the sweetest holiday ever.

so happy for you.

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
movebo


Member

Status: Offline
Posts: 39
Date:
Permalink  
 

Hi All,

well, maybe this is not really improvement, because I never had definite symptoms before treatment,
but my memory has gotten better, I think. I just cannot remember precisely how it was before treatment :)

But considering my F4 status I think all goes rather well:

My liver doc does not wish to see me often, so I asked my GP to do a liver profile as well when he checked
for kidney stuff and cholesterol (all fine and dandy), and so at 24 weeks post 12 weeks Harvoni & Riba:

AST 27, ALT 24, GGT 21, ALP 117, Albumin 4.5, AFP 4.

So I may well be on an hyperbolic trajectory away from the black hole, for now.

Got (online) visas today, for US and Canada, going for the inside passage in July ...

I do not post much, but I read a lot, and I am truly grateful to those who put so much time and expertise in,
Tig, Jimmy, Jill, Robert, Malcolm (hope he shows up again) and so many more.

Cheers,
Tom




__________________

M, 57 (@Dx, 2014)

7/14: VL 4E6, F0-2 MRI TE

8/15: biopsy, A2F4 (no good)

SOT 8/15 - Harv./RIBA 12 wks

12 wks post: UND, ALT 21, AST 21, GGT 23, platelets 206

5/19 (44 month post): UND, ALT 34(?), AST 24,  GGT 22, platelets 240 
Sydhanrahan


Guru

Status: Offline
Posts: 552
Date:
Permalink  
 

Thanks so much for sharing your fantastic news Gracie. We are so happy for you and that sort of news is really uplifting for people in all categories here.

So happy for you.

Syd



__________________

Contracted Hep C 1969. Genome Type 2, treatment naive. Began 12 week RIBA/sof/Dac on 12/11/15. Cirrhosis. VL before treatment 4m. Treatment extended another 12 weeks without Riba. No virus detected at 9 weeks.
Cinnamon Girl


Guru

Status: Offline
Posts: 5629
Date:
Permalink  
 

Gracie wrote:

Hi All,

Thought I'd start a thread for good news for those starting treatment to see the potential after treatment.

I just had my post treatment fibroscan done and it went from 15.5 to 8.8. I watched every ping. All were in the 8's except one 6 and one 12. Amazing really. I know my liver has a way to go yet as far as damage reversal but I am for sure heading in the right direction.

I feel stronger and healthier every day. Less pain in hands, hardly ever in my feet. And the occasional liver area pain, but that's lessening too. 

It's all good so keep on trucking my peeps!

 

 

Hi Gracie, how wonderful to hear how far you`ve come since your EOT, that really is a very significant improvement in your fibroscan score!  I`m sure you`ll feel even better as the weeks and months go by, it must feel like a new life for you!

Thanks for starting this `good news` thread, what a great idea!  We all love hearing that people are making a good recovery, and stories of post treatment improvement are always very welcome and give so much hope and encouragement to members still on tx or about to start. 

Hi Dave, very good news that you`re feeling so much better now! 

Let`s hear from more people who are feeling better post treatment, we want to hear from you!!  smile

 



__________________

Jill 

(71 yo, lives in UK)

Was Gen 3a, 

24wks Peg Ifn/Riba, Sep 2010 - Mch 2011

UND @ Wk.4, UND @ EOT, 

SVR Nov 2011 --> Still UND @ EOT + 4 yrs.

 

 
Canuck


Guru

Status: Offline
Posts: 3249
Date:
Permalink  
 

Oh Gracie, more wonderful changes for the good for you. Exciting to have/see something like that! I vaguely recall a writing by Lucinda, wherein what might have seemed a trialing time, she looked at things differently, and was speaking to relief and a change in her life for the better, which went something to effect of "drop by drop, moment by moment, layer by layer" - that is how I think you must feel with this good news, (at least I would) ... another lovely thick soft warm layer of relief. Nevermind sundaes, what you got right there is the very best kind of sweet.  biggrin C.



__________________

HCV/HBV 1973. HBV resolved. HCV undiagnosed to 2015. 64 y.o. F. Canada.

GT3a, Fibroscan F3/12 kPa - F4/12.6 kPa, VL log 7.01 (10,182,417), steatosis, high iron load.

SOF/VEL with/without GS-9857 trial - NCT02639338.

SOT March 10 - EOT May 5, 2016 - SOF/VEL/VOX 8 week trial.

 

(SEE UPDATES IN BIO)
singsong


Veteran Member

Status: Offline
Posts: 80
Date:
Permalink  
 

Congratulations, Gracie.  Really good news.  I'm interested in the pings also



__________________

Age 66. 1988? Dx 1996. G1a.  Biopsies 1996/1998.  Mild inflam. Tx naive.12/2015-Fibro F3/10.5 kPa. VL 1.1m Harvoni 8 wks. 5/9 VL was 69.  EOT 6-13-16. ALT/AST 13/16. Platelets 325. UND.  9/4/16 EOT+12 UND & 1-10-17 EOT+30 UND!
Tig


Admin

Status: Offline
Posts: 9281
Date:
Permalink  
 

That's substantial Gracie! Good for you and even better for that liver of yours. I can just see you laying there, like a Sonar Technician, >>>>ping>>>>ping>>>>ping.... biggrin These are the things in life that really make such a difference. We can be truly thankful for the advances we're witnessing every day now. So much good news flowing through this forum now. It has really become a place of celebration. Congratulations my friend!



__________________

Tig

67yo GT1A - 5 Mil - A2/F3 - (1996) Intron A - Non Responder, (2013) Peg/Riba/Vic SOT:05/23/13 EOT:12/04/13 SVR 9+ years!

Hep C FAQ   Lab Ref. Ranges  HCV Resistance

Signature Line Set Up/Abbreviations   Payment Assistance

 
wendyo


Guru

Status: Offline
Posts: 1031
Date:
Permalink  
 

That's terrific Gracie! 



__________________

Wendy 53 y/o, DX 1994, geno 1A F1

1999 TX 1 - Inter -non responder 2001 TX 2 - Peg + Riba - viral load tripled and taken off

T3:  Harvoni 12 weeks Sept. 19, 2015 ALT 41 AST 30 VL 541800 UND at EOT and SVR 24 ALT 18 AST 26 platelets 223

 
Linuxter


Guru

Status: Offline
Posts: 1515
Date:
Permalink  
 

Hi Gracie,

Wonderful News!! WOW, that's a REAL change ... how nice it is to hear of improvements like this ... encouraging for Those Pre-Tx, Those On Tx and Those who've finished Tx (and those with all stages of liver damage) ... Thanks for posting the great news, it's appreciated!! smile

 

Dave

p.s. I'm Post Tx (EOT 04/12/16) but waiting on SVR and actually starting to feel much better already. If I had to guess, I'd say I feel better at times than I have for 20 years ... others days the Riba still in my system puts a little damper on that but I know that will go away. thumbsup.gif



-- Edited by Linuxter on Monday 16th of May 2016 04:51:48 PM

__________________

63yy,HCV,2b,F3-A1, Sof/Riba,12wks Tx   SOT: 1/20/16, HCV-RNA 9,816,581, ALT 56, Hb 14.6

4wk: HCV-RNA <15 Detected, ALT 15, AST 17, Hb 13.6 EOT: 4/12/16, ALT 18 , Hb 12.9176a2f85d05d9c965eafe199f2ba9ba5.jpg SVR Achieved 7/8/16

 
JimmyK


Guru

Status: Offline
Posts: 1839
Date:
Permalink  
 

That is incredible! Thanks for the awesome news!

 

JimmyK



__________________

Harvoni TX 2 12 weeks. UND weeks 4, 12 and now EOT + 4 Weeks. SVR-12 09/29/16. All Glory, Honor and Thanks be to God.

"I go to war with the brothers I trust."
Pablito


Senior Member

Status: Offline
Posts: 363
Date:
Permalink  
 

Hi Gracie

That's great to know about your fibroscan score drop.  And good to know for someone who is half way through a trial (8 weeks sof/vel-GS-9857) with a pre-trial fibroscan score of 9.1.

But can you explain the 'ping' thing to me please?  Is each ping a recording of the elasticity reading for various moments the fibroscan is done, and then the average ping score is the result?  Or are different ping readings taken at various places on the liver?  I've only had one fibroscan so my memory maybe poor but I don't remember the technician moving the device around.

Thanks

Pablo



__________________

44 y.o. male, HCV G4 since 1996, F-scan score 9, F2, Failed prior I/R, finished sof/vel/vox 8 weeks 5/16, pre-treatment VL 2 million, EOT UND, EOT+4 UND, EOT+12 UND.
Gracie


Guru

Status: Offline
Posts: 618
Date:
Permalink  
 

Hi All,

Thought I'd start a thread for good news for those starting treatment to see the potential after treatment.

I just had my post treatment fibroscan done and it went from 15.5 to 8.8. I watched every ping. All were in the 8's except one 6 and one 12. Amazing really. I know my liver has a way to go yet as far as damage reversal but I am for sure heading in the right direction.

I feel stronger and healthier every day. Less pain in hands, hardly ever in my feet. And the occasional liver area pain, but that's lessening too. 

It's all good so keep on trucking my peeps!

 



__________________
  1. Gracie

1A. Previously treated non responder Rebetron in 2000 And Incevik in 2014 with a breakthrough at week 12. Fibroscan 15.5. VL 6,000,000. Finished 24 weeks harvoni on Dec. 19, 2015. SVR. Latest Fibroscan 8.8.
«First  <  1 2 | Page of 2  sorted by
 
Quick Reply

Please log in to post quick replies.
Hep C Discussion Forum -> Post Treatment -> Improvement After Treatment
Legal Disclaimer:

THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.