Hep C Discussion Forum

Cheddy · Moderator

RE: Harvoni sides and beyond

5-1-18 · Guru

hi iris. i got the shingles after a long hike , so for now easier walks could be the best medicine.

we'll all have our lab results soon

as for brain power, i'm making more mistakes at work than ever , oh well. i got sick and called in sunday so at least i didn't have to make any mistakes then

Iris Dragonfly · Guru

Ha, back with, eh...something. Yea, the ptsd thing... I think I need to live in a cave, I'm all cortisoled out. I feel sort of at the end of my rope in that department. Went for a hike the other day (finally) but I just kept going and going, I didn't want to leave or go home. I really liked the solitude. Like I could hear myself think. But I really overdid it and the nerve in my right leg is doing that thing where the pain is horrible and a blister pops out usually on my leg near my butt and occasionally at the same time in the nether regions...always right side.

And that's something that is bothering me, I and having (it would seem) more trouble getting things sorted out in my brain....like more severe "what did I come into this room for"

These seem all nerve /brain related, oh and besides the numb toes, a rash along the base of my hairline on the back of my neck has developed, it itches terrible and I can tell it getting worse, tried tea tree oil, cortizone cream head and shoulders shampoo And, to top it off, I have developed a periodic twitch in my chin and left thumb...more nerve ****.... ****. Now what?

Gotta GP appointment on Thursday, glad I just wrote this all down, now if I can remember to bring the tablet.

Iris

5-1-18 · Guru

iris , you've been thru a lot lately so it could all be related. cry

hang in there smile

Hoodietree · Senior Member

Virtual hugs to you ((((((IRIS))))))).

Its still very early in terms of getting the medications out of our systems. Please hang in there. I think we need to give it more time. You know how they say in the course of an illness that sometimes it gets worse before gets better? I think we may become intimately familiar with that phrase in the coming weeks and months. I think you are going to feel much much better, but its going to take time.

You have to continue treating yourself well and conserving your energy for a little while I think. Ive also been suffering with some of the same problems I had before and during treatment chiefly fatigue but also that electrical feeling that you described? I have that too, as well as itchiness, craziness, anxiety, and paranoia/PTSD flares.

Please continue talking about this, I think it is tremendously helpful to get it out of your head. Speaking your truth about it is a super positive way of dealing with it. Please know that we are with you in spirit and we want the best for you. Keep talking it out my sistah!

Big hugs and love to you

polosilver · Senior Member

Iris -- you have my empathy for all these little maladies that are happening. You have had a LOT going on there, and sometimes the stresses of life creep out through our bodies in strange ways. I hope you are feeling safe in your home now. Glad you shared with us and I sincerely hope that you will have time to be gentle with you while your body and overall being heals from all the trauma around you out there. You've been close to many tragic occurrences, so hang in there girl...and lay low as needed.

ps

Iris Dragonfly · Guru

I wanted to give a brief up date.

I seem to be having issues related to the nervous system, not really sure yet and I do not want to say they were Tx related because I did have some of these issues prior.

That pain I was getting in may back, feeling kinda like some one is cutting off the nerves, like sudden weakness or lack of strength has been present but fleeting, that heavy feeling in my arms and legs same as above, these I did not have prior. The carpal tunnel seems to have accelerated but I have been busy with my hands (as always), my foot numbness persists and is worse on some days, not so much on others. The vision in my right eye seems to be worse, but only slightly. I have had horrible sciatica flares and ones that feel like it may flare then doesn't, this causes blisters on my leg and the nether regions. These herpes breakouts almost always occur after a sciatic attack, well I've had three since completing treatment, they don't usually happen that often, and now I have a blister on my lip that sprang up while I was hiking in the ashes. I don't think I have had a lip blister in 10 years. Wonder if nuclear dust is to blame, or are my nerves just toasted? I also have a low voltage kind of zzzzzz that I can sense internally, and my mouth sorta taste like metal, not real strong, just there.

All for now, thanks for listening.

Iris

(EDIT..oh ya, and I seem crazier than before, if that's possible, LoL)

-- Edited by Iris Dragonfly on Sunday 18th of November 2018 02:48:33 PM

Tig · Admin

One more entry. That way I can be part of this discussion! We have a number of moderation options, but the one we need the most (merging or moving a single post) leaves much to be desired. The subject has been discussed with the Internet service provider and we have repeatedly been given what I consider a virtual shoulder shrug. I will continue to seek a solution. Thanks for the help and understanding!

Hoodietree · Senior Member

The solution would be for lamassu and me to delete our posts (There is a "delete post" option under the - More - menu) But I agree with Iris it is more of a learning curve thing and I should have been more mindful about it. Since she's not asking for us to delete and we've already moved on deleting would actually cause more confusion when reading though the thread so I'm with Iris, the better solution is just to live and learn

Thanks and happy Saturday everyone!

Iris Dragonfly · Guru

It's really ok, learning curve/teachable moment, stuff happens.

I'm on another forum where I moderate, we are able to move individual posts. Sometimes that does mangle other threads because it merges them according to date. Maybe Hoodie or lamassu can put a link to the post here. Or we can forget it all together, LoL smile

bb, Iris

Cheddy · Moderator

Well, it turns out that this software does no allow me to move an individual thread. I can only merge whole threads but it's easy to loose track of who said what when. It's so easy for us to hijack a thread as we are responding to various people at once. The best way to keep a thread on track is to pay attention to the overall topic so we can post relies where they fit.

Often, this doesn't matter as we are chatting and sharing everything, but in the case of someone documenting, it's helpful to keep it clean.

So, now I've hijacked this thread with technicalities. I will erase this information after ya'll get it.

Remember, you can delete your own threads or merge them to your own area. I can't invade.

And thank you, Iris, for documenting your journey. It's helpful to other people in the same boat.

Cheddy · Moderator

Iris, Hoodie, and lammasu,

I agree, the topics have mutated. I'm trying to fix it but hit a dead end. Rather than lose any of the information, I've sent up smoke signals for help. I'll take care of it as soon as I can.

Thanks for the heads up.

When the Tig's away...the trainees fray.

Cheddy

5-1-18 · Guru

they never do, but other medical professionals see it in us and know that the daa's exacerbate anything we already had and that the hcv may have been part of it all along.

in time it should lessen as you recover from tx and your body gets a chance to heal other things besides just fighting the virus.

hang in there iris

Iris Dragonfly · Guru

Ok, so finally the Hep dr. called back. She doesn't think any of my symptoms are lingering side effects, Guess I'm just crazy hmm

Hoodietree · Senior Member

Iris Dragonfly wrote:
No worries, deletion unnecessary Thanks for understanding.
Ride on Appaloosa woman!!

You're incredibly gracious darling Iris

Iris Dragonfly · Guru

No worries, deletion unnecessary Thanks for understanding.

Ride on Appaloosa woman!!

Hoodietree · Senior Member

Absolutely let's take this to the Hoodie thread.

Apologies Iris.

Cheddy if your reading can you move these posts to Hoodies Epclusa Journey? Many thanks in advance.

lamassu · Senior Member

Hi Iris, a moderator is free to move or delete no problem. Hoodietree has been posting here and I wanted to make sure she saw the info I had no intention to derail your thread.

Edit: I see no option to delete posts by the way. Sorry about that.

-- Edited by lamassu on Thursday 25th of October 2018 07:20:39 PM

Iris Dragonfly · Guru

no offence but could you take this important information over to Hoodies thread? This is about Harvoni. Wouldn't want folks looking for Epclusa info to get confused. TY Iris

lamassu · Senior Member

Hi Hoodietree,

Its your body and your peace of mind, just tell your doc to quit screwing around and write you the damn lab order for a viral load and LFTs. As long as your insurance covers the cost I would expect your doc to be more receptive and caring. You could remind him/her it is the standard of care to check viral load and LFTs at end of treatment with Epclusa, and then again at EOT + 12 weeks. Especially for GT3 patients.

I don't mean to be a "Debbie Downer" here but you are Genotype 3 and while Epclusa is the best first choice for treatment naive HCV patients with GT3 according to the Astral 3 study the cure percentage at 12 weeks post treatment is lower than other genotypes depending on whether or not you are NS5A resistant.

Please don't stress out about this (I am sure you are cured!) but I would think you need the EOT viral load plus the EOT + 12 week follow up to confirm you are cured. In the rare event you are not HCV undetectable at EOT + 12 weeks you have the evidence to prove to your insurance carrier that they need to cover an additional round of treatment with Vosevi. Again, please don't stress out. I just want you to receive the best care possible.

-- Edited by lamassu on Thursday 25th of October 2018 12:19:57 PM

5-1-18 · Guru

hoodie! exactly! you want to know if the viral load is down after going thru the treatment.

keep up the asking, someone will take notice smile

Hoodietree · Senior Member

Hi lamassu! I have requested it twice now from the nurse and will escalate to the doctor tomorrow or possibly this weekend. The nurse is saying no, they don't want to do a viral load test until January. But I will try to insist Rather I have already tried twice! now I guess I need to bump it up to the doctor and say "I insist!!" and then hope for the best

lamassu · Senior Member

Hi Hoodietree,

Congrats I see you finished your treatment on Epclusa! Did your doctor order an EOT viral load and LFTs? It seems some doctors especially in Canada are just ordering EOT + 12 week viral loads now but after three months of treatment I think we all deserve EOT labs. I would insist on it.

5-1-18 · Guru

hey iris, my hubs had really bad physical pain too. slowly he is getting better. The docs just don't know what to do for us since this is a treatment for a deadly virus cry

i also remember how depressed i was when i couldn't control my sides... once i made peace with it i was def in a better frame of mind.. i was like "ok, lets just get it done".

as for me, i'd let him marinate in that chewing out... if you can handle it and let go of the guilt then he can't turn around and make it all about you being the bad guy. if he's as hard headed as you say he may never see his part in all of this.

stay strong iris

-- Edited by 5-1-18 on Wednesday 24th of October 2018 06:28:13 PM

Hoodietree · Senior Member

Iris Dragonfly wrote:
I really wish I knew if this was related to the Rx Tx or not. I remember all too well the horrible time I had while still having my monthly, I used to joke I only had one normal week out of a month. But I have been menopausal for so long this took me by complete surprise.

Iris! I think you're onto something I think our hormones get out of whack when we have HCV, and then they get back on track somehow after treatment. My current tired spell of horrible fatigue coincides with my ovulation cycle. I'm gearing up for a period in a couple of weeks. I have a theory that hormonal fluctuations can be attributed to both HCV and the rebalancing effect of treatment. Hormones can make us terribly irritable and tired even when they're heading in the right direction. Even when we're in menopause, maybe especially when were in menopause!

Obviously I'm no doctor and don't even play one on TV LOL so take that with a grain of salt

In other words, I got it from Pooma University (Pulled Out Of My A$$). But it does sort of makes sense from what I know about hormones.

-- Edited by Hoodietree on Wednesday 24th of October 2018 06:19:39 PM

Cheddy · Moderator

Thanks for the report, Iris. That's a lot of symptoms. What does your doctor have to say? Are the multiple issues related?

Just to reinforce our mantra here, keep drinking massive water!!!! It's still key in flushing things out. You've got a lot to cope with, and remember you are still in recovery.

BTW, hormonal fluctuations do continue post menopause. It seems they come in from out of the blue, though not as often or as radically,

As for the apology: it's okay to apologize for your behavior and stand firm on your convictions. I'm not sure he can listen, but you need to let people know what you're going through. Do not live by his example. You'll feel better with each step toward grace.

Stay away from the brick pile! Be good to Iris.

Iris Dragonfly · Guru

Hi...thanks you guys, I'm feeling, eh, on the fence this morning. My headache is present but not to the degree of the last three days, but I took aspirin anyway. Not as tearful this a.m. and thankfully mr. *^$%# is out of the house in the mornings. I didn't speak to him for the rest of the day and I'm feeling like I should apologize for screaming at him, but that doesn't change my stance on his actions so I may withhold a "sorry" ...when the hell has he ever apologized to me???? never. Unfortunately I cannot leave at this time, My daughter and I have to meet an insurance adjuster for my moms house (long story) and my washing machine has been on the fritz for over a year and I finally had the repair (nephew) guy out last week. He should be back to fix it today... am currently drowning in dirty clothes and I really hate public laundry mats. I've been filling it with the hose, but now it doesn't agitate or rinse, tired of water all over the garage from the wet willie hose.

I really wish I knew if this was related to the Rx Tx or not. I remember all too well the horrible time I had while still having my monthly, I used to joke I only had one normal week out of a month. But I have been menopausal for so long this took me by complete surprise.

Again I am so grateful to you folks, and Cheddy, Hoodie, Canuck and 5 after reading your comments I was again a blubbering mess but this time it was because some one gave a ****, I really haven't much support here (from friends or family), except daughter, but she at one point was trying to rationalize her fathers action, when I almost bit her head off too...*sigh*

@ Cheddy, that video was excellent and so true and unfortunately I had once taken a brick to the windshield of my ex boyfriends 69 Lincoln Continental. Sheeze that glass was tough, musta hit it ten times before it broke, and then there was my vw bug, I punched the windshield after an argument and it broke instantly wish he would cheat that would make it soooooo easy. (That sounded bad, huh?)

@ Hoodie, Yes I (try to) meditate, sorry I never answered your other question about a social media meditation type group? I really am not on line much but I did have my Pandora tuned to the Heart meditation channel that was helpful I'll keep at that, (frustrated it keeps turning off after a short while, (I have the free version)) People are still shocked when I tell them I don't have a cell phone, I really need that electrical disconnect. Sorry you are feeling tired, I hope this turns around for you. Anyone who can work and get better is a super warrior!

@ Canuck, You know the open wound thing makes a lot of sense, thanks for pointing that out. Not to mention my brain feel like an open emotional wound. I wondered about the medicine and the brain, I did have some weird hallucinations and had a pretty good one yesterday where I thought I saw our (dead) cat standing next to the tv. It was like a flash, there, then not.

@ 5, LoL ! Patience has probably been my greatest challenge, after that energy burst around 8, 9 weeks into Tx I thought that would be the new norm. I was feeling super deflated and scared that it may be returning, I so do not want to relapse. Now to sweep those negative thoughts away!!! I am my own worst enemy. Grrrrr

Now for the progress report:

My hands are pretty sore still (all my joints became hugely arthritic a few years into menopause) but my back and hips do not hurt as much, rising out of bed isn't such a painful event. I haven't been hiking much and better try that some to see how my hips hold out. I lead a weed walk every Fall through to Spring and feel super out of shape. I want to see the difference in pre treatment and post, because as much as I love hiking it would be a few days recovery after. My carpal tunnel seems to be getting worse, and my toes on the left foot are still going numb. Brain fog was bad in the last several days and even had some trouble finding words but that may have been in association to the migraine. I feel like I'm forgetting something. Well, I was sad to miss the full moon walk, the plane crash was two exits before the off ramp to our location what a mess the 101 was, that was weird.

Bye for now, Iris UnDragonfly

Cheddy · Moderator

I don't know how to attach a song, but you might get a kick out of Brandy Clark's song "Crazy Women" on YouTube. Stay away from the matches. Save yourself first, sister!

Heal first.

Sorry guys. We still love you.

Cheddy · Moderator

Just got home, Iris. I'm glad to see these wise replies. How are you this moment? Please just try to handle one thing at a time starting with putting yourself first. If you need to grieve, get 'er done. There is no shame in facing the past. I just hope you can find yourself a safe place to find respite. I understand losing my sh*t and going f*ing crazy, but you have had some crazy pushing you into this, too.

Hang on. Please report.

Canuck · Guru

Hi Iris,

Just got back on-line not long that ago - we had some power outages around here last night (twice!) and, apparently they aren't finished inconveniencing us yet either, there will be more power outages tonight? Man! I was right in the middle of on-line something last night when we went out!

You sound a bit like me Iris, i had a lot of mixed and some very unpleasant feelings (not so long ago), I reached out to others where i could for some support, but sometimes these things (these times, these events) have no rhyme/reason/understanding. One of my galfriends said it was like a scab that keeps getting picked off/knocked off - and that odd way of looking at my pain did make a fair bit of sense to me at the time - painful sore bits denuded, made newly raw, uncovered from time to time, adding to other pains and woes, making the hurts worse/harder to tolerate, wounds that maybe shouldn't have been exposed at all or so soon, at least not before better/further healing took place (the bandaid off too soon) ... but I do think that these things (times/events) which occur/plague/torture/chase us - need time to find their own proper places, each heals in it's own time I am afraid. There can be a longer-than-we-want, cruel shuffling that takes place which we must endure, until time heals us and sweeps these events, and us and our scars into their proper order of importance.

I think Cheddy hears you right, when she notes the "boiling over", your cup is just too full at the moment. And Hoodie is right about taking care of number one. No choice but to accept was is happening, and no alternate but to do everything you need to to take care of yourself.

Good you share with us, and have an outlet/help like this therapist you mentioned, good you know what to try to do to comfort yourself and help your headache. Keep pulling Iris, it is early days, you are raw, be patient, wait for your healing to come in dribs and drabs. It will come. C.

5-1-18 · Guru

yep, i get lots of tired! and a lot less tolerant. cry confuse

there has been great changes in our liver and system so we just have to hang in there.

hubs was at the dr today and as they were talking the doc said "be patient, it hasn't even been a year yet"..... so some dr's know the truth.

no matter what, we were pretty much doomed if we didn't take it; and sooner or later we would be crashing and burning and being crankier just from the virus.

we had to do this treatment to save our lives, and now we have to go one day at a time till we wake up one day and realize our moods and fatigue have gotten better.

-- Edited by 5-1-18 on Tuesday 23rd of October 2018 11:00:30 PM

Hoodietree · Senior Member

Iris I'm sorry you're feeling so irritable and sad. I do think this is part of the transition off the Harvoni, yes.

I am Just finishing day 6 EOT off of Appaloosa, and I was great for four days but yesterday I had a fatigue crash. Came home from work early and slept for 12 solid hours.

You're going to be OK, I promise. But I do think that you need to allow yourself extra time for sleeping, gentle exercise, and proper nutrition. Great that you're in therapy! And great that the pilot of the vintage plane survived!

Do you have a meditation practice by any chance? I generally hit the meditation hard when I'm in a high stress situation. I should do it more regularly to control my stress but heck I'm only human

I find relationships so stressful, to be honest, that I choose to live alone. I have good friends and family that I give my attention to, but flying solo works best for me because I need lots of time for sleep and to take good care of myself. Every time I get into a relationship the guy always wants me to do more for him than I am capable of doing without sacrificing my own needs. I'm simply unwilling to do that anymore. It's way too stressful.

It's really hard in this modern age that we're living in. Please hang in there and please take some time for yourself every single day. Hoodies orders!

-- Edited by Hoodietree on Tuesday 23rd of October 2018 09:53:08 PM

Cheddy · Moderator

Whoa, Iris. I just hit an unsent message to you from earlier, but it does not go with your recent post My goodness! What is going on? ??

What I know is that your body will be adjusting for a while, including ups and down, but this is a big one. Have you considered going to your doc to get something to settle you down as you make your transitions. I don't know if that's the way to go, but I'm very concerned about you feeling so badly and really hate to find you feeling so hard hit.

Your husband has no right to be treating you badly, ever. Maybe you've just stuffed too much away and it's boiling over. Any clues from your therapist? I really don't know what to say just yet, but at least want you to know that you have my sympathies. I will have to give this some thought and will get back to you on this later tonight.

Can you get out of there for a few days? Maybe visit a friend or hide out on your own.

I know for certain that you are going to feel better. You're a diligent survivor. Sorry its so hard now. Many hugs for now.

Cheddy · Moderator

That's such a great update, Iris. That was a long haul and you endured a lot! You might be surprised how much younger that older body feels. I am really just tickled for you.

Thanks for all the input and good advice you've given along the way. You've been a real trooper and a fine member of our group.

Iris Dragonfly · Guru

If I didn't know better I would say I have PMS. (that has not been an issue for nearly 10 years now) I have felt terribly blue and listless. I am missing my cousin and my ferret, at least those were the first thoughts of yesterday and today, respectively. Will be honoring my cousin soon, at Hallows, but my ferret has been dead over 16 years now. Why would that be my tearful awakening? Included was the worst headache ever, for about 3 days now. And I am exhausted. I have been nodding out in the day time, just little 1 minute...oh, I'll just rest my eyes a bit and then realize I'm falling asleep. I feel like I tried to do everything to get out of the funk... do something I like, exercise, take a shower, go out and do something with people, draw, crochet, cook. Nothing feels good or right and all I want to do is cry, Not to mention about an hour ago I just got home and mr. *&#%@! has sprayed mud all over the car that is parked in front of our house because he doesn't like it parked there. I went ****ing crazy. I mean really crazy, I have been able to hold it together in the past because with him, I have to "grey rock" it quite a bit around here, BUT I told him he was a F-ing ass hole and a jerk and he is going to get our house damaged when they found out who did it. (We don't live in the bestest part of town, it's just stupid to do such a thing.) He pisses me off so much when he is disrespectful of others property, if it were just him that would be retributed upon I wouldn't care but I live here too. After that I flip on the TV and the vintage airplane I just pointed out to the parking director at my therapist's office ( really love these vintage planes and you can here them coming miles away) has just crashed on the 101 fwy. I burst into tears. initially thinking the pilot had perished, it looked bad, but he survived. (There is a group of vintage planes that fly in formation every Wednesday eve, I always run out to see them, must be the pilot in my dad that got me interested) Still, all so strange to add to my strange days.

I guess what I'm wondering is if there is any chance this is related to the Harvoni. Someone suggested it sounds hormonal and maybe my system is resetting??? does that happen? The tiredness is bothersome, and the crushing headache ain't much fun either. Aspirin helps.

bb, Iris

Tig · Admin

That kind of goodness will follow you into the future! Once that pesky Dragon is no longer dragging you down, great things are possible smile Enjoy that newfound energy!

Cinnamon Girl · Guru

Wonderful to hear how well you`re doing, Iris!

You`ve had to wait so long to get to this point, I know, but better late than never, and your life will be so much better now!

Great that you sold most of your corn dollies, I saw the photo of them and absolutely love them! Well done, Iris!

Wishing you all the best! smile

Canuck · Guru

Look at you go Iris. Me too, proud of you. We all wish we had access to those corn dollies, they were neat, loved the dancey/dervishy ones. I am glad you were not too wiped out - excellent! How good it is - this healing within! biggrin C.

Hoodietree · Senior Member

Thanks for the great update Iris! Really really happy for you

5-1-18 · Guru

most awesome iris biggrin biggrin biggrin

Iris Dragonfly · Guru

I managed to get up at 4:30am and out the door by a quarter of 6 to attend the fair where I sold my corn dollies. What an epic day. Pre TX would have killed me and wracked my body to the extent I would have been really tired, ill and sore and feeling like I was catching the flu. I hesitated to sign up for this show because I really didn't know how I would hold up.

Welp 'm shocked and glad to report other than my back being pretty sore I feel ok. wow, that is huge. I woke up with a headache but I'm sure I didn't drink enough water yesterday plus it is very windy today, that always dehydrates me a bit, took asprin went back to bed for an hour and woke up great.

Our show went well, I sold nearly all the dollies and presented a ceremony to promote healing within.

Wish I could put this new me into my younger me, my old body would appreciate it so much more!

Blessings, Iris

5-1-18 · Guru

Iris Dragonfly wrote:
Actually I meant this paragraph
"I also wanted to say I had my EOT appointment with the hepatologist yesterday! The blood work was as we expected .UNDECTECTED !!!! She did say come back in 3 months and if I was undetected at that time I would be considered cured...I thought it was a year. I asked for blood work at 6 months and a year, and she said ok."
so, I'm confused.

eot UND , these daa's are the good stuff

Cheddy · Moderator

Yippee!

Tig · Admin

Back when you (we) joined the forum, SVR wasn’t considered set in stone until 6 month and/or 1 year viral load testing. In the last few years, through exhaustive studies and comparative analysis, SVR 12 is proof of the “cure”. They have even concluded, though not officially, SVR 4 is only a percentage point or two away from the same determination. I am certain that SVR 12 is the latest golden rule of thumb! Many people, especially old school Heppers, will continue to request 6 month tests until they refuse to do it. Anything after SVR 12 really isn’t needed. The proof is in the rates of success!

Iris Dragonfly · Guru

Actually I meant this paragraph

"I also wanted to say I had my EOT appointment with the hepatologist yesterday! The blood work was as we expected .UNDECTECTED !!!! She did say come back in 3 months and if I was undetected at that time I would be considered cured...I thought it was a year. I asked for blood work at 6 months and a year, and she said ok."

so, I'm confused.

Tig · Admin

Are you referring to the dreaming, Iris? If yes, then Harvoni has been well known to cause vivid dreams. I don’t know if it’s the Sovaldi or the Ledipasvir or the combination. More people commented about the dreams with it, than the other DAA’s. Come to think of it, more people mentioned deeper sleep on it as well. Dreaming takes place during the REM level of sleep, if I remember correctly. So, it’s hard to say how it affects that. Maybe you spend more time in that level of sleep, or the drugs allow you to remember things more clearly. Even though I don’t recall dreams very well, I do know I’ve had some doozies and wish I could have them again! I’ve also had plenty of them that I’m glad I don’t remember...

Iris Dragonfly · Guru

Hi, thanks Tig, honestly I get lost in the long threads. Did you happen to catch my question in the last paragraph there?

Good to know that the meds may have been the dreaming thing, but I still want them back...the dreams that is.

Up here at moms celebrating her 90th, feeing pretty good today.

Tig · Admin

We have an existing thread pertaining to this same subject. I would like to keep them as close together as possible, so have made this thread a “Sticky” which will keep it near the top of our post treatment threads.

Glad to hear your EOT labs returned undetected, Iris! I never had a doubt smile

Canuck · Guru

Iris,

I agree with Hoodie - very good documenting. Thorough. It's good to note these things (to actually write them down) as feelings/facts get lost over time and we need to know them clearly to compare how things change going forward.

I think 5 and i both tried extra hard to keep "non-stressing" ourselves as best we could (post-treatment) as i note we both had stuff happening to us for a while after treatment - i would suggest the same for you (if you possibly can) ... keep the activities/stress/demands down (as much as you can) - and keep drinking the water, eat and sleep good - still important. Recovery/equilibrium is part of the process, it will take some time yet.

I recall several people here on the site and several threads discussing "Harvoni dreams"! One in particular, as he was bothered by the intensity of the dreaming.

CONGRATS!!!!!!!!!!!! Iris. On the EOT UND lab news you got at your doc appointment yesterday! Yay - that lovely UND goes very well with your other lovely labs and UNDS! And really nice by the way that your doc has already agreed to giving you repeat VL's at EOT+12 weeks, EOT+24 weeks and then again at one year! Great!

Have a good week away from home, just try not to stretch yourself too far for too long. Try to take it a little easy. C.

Karyl · Veteran Member

Hi Iris! I, too, have been having vivid dreams on this. Last night I met (and married) Jonathan Marchessault, one of our Vegas Golden Knights hockey players. He has a Lamborghini and is cute as a bug in a rug. I am a 65 yr old grandma and never knew I had a crush on him. LOLOL. Here's a pic of his ride.

(As long as the dreams are GOOD, I say bring them on!!)

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